Literature DB >> 21946237

The design and implementation of an open-source, data-driven cohort recruitment system: the Duke Integrated Subject Cohort and Enrollment Research Network (DISCERN).

Jeffrey M Ferranti1, William Gilbert, Jonathan McCall, Howard Shang, Tanya Barros, Monica M Horvath.   

Abstract

OBJECTIVE: Failure to reach research subject recruitment goals is a significant impediment to the success of many clinical trials. Implementation of health-information technology has allowed retrospective analysis of data for cohort identification and recruitment, but few institutions have also leveraged real-time streams to support such activities.
DESIGN: Duke Medicine has deployed a hybrid solution, The Duke Integrated Subject Cohort and Enrollment Research Network (DISCERN), that combines both retrospective warehouse data and clinical events contained in prospective Health Level 7 (HL7) messages to immediately alert study personnel of potential recruits as they become eligible.
RESULTS: DISCERN analyzes more than 500000 messages daily in service of 12 projects. Users may receive results via email, text pages, or on-demand reports. Preliminary results suggest DISCERN's unique ability to reason over both retrospective and real-time data increases study enrollment rates while reducing the time required to complete recruitment-related tasks. The authors have introduced a preconfigured DISCERN function as a self-service feature for users. LIMITATIONS: The DISCERN framework is adoptable primarily by organizations using both HL7 message streams and a data warehouse. More efficient recruitment may exacerbate competition for research subjects, and investigators uncomfortable with new technology may find themselves at a competitive disadvantage in recruitment.
CONCLUSION: DISCERN's hybrid framework for identifying real-time clinical events housed in HL7 messages complements the traditional approach of using retrospective warehoused data. DISCERN is helpful in instances when the required clinical data may not be loaded into the warehouse and thus must be captured contemporaneously during patient care. Use of an open-source tool supports generalizability to other institutions at minimal cost.

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Year:  2011        PMID: 21946237      PMCID: PMC3392865          DOI: 10.1136/amiajnl-2011-000115

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  37 in total

1.  Enrolling patients into clinical trials faster using RealTime Recuiting.

Authors:  A J Butte; D A Weinstein; I S Kohane
Journal:  Proc AMIA Symp       Date:  2000

2.  Using technology to address recruitment issues in the clinical trial process.

Authors:  Lara Marks; Emmett Power
Journal:  Trends Biotechnol       Date:  2002-03       Impact factor: 19.536

3.  Leveraging of open EMR architecture for clinical trial accrual.

Authors:  Lawrence B Afrin; James C Oates; Caroline K Boyd; Mark S Daniels
Journal:  AMIA Annu Symp Proc       Date:  2003

4.  Computerized recruiting for clinical trials in real time.

Authors:  Debra L Weiner; Atul J Butte; Patricia L Hibberd; Gary R Fleisher
Journal:  Ann Emerg Med       Date:  2003-02       Impact factor: 5.721

5.  Recruitment for controlled clinical trials: literature summary and annotated bibliography.

Authors:  L C Lovato; K Hill; S Hertert; D B Hunninghake; J L Probstfield
Journal:  Control Clin Trials       Date:  1997-08

6.  Prospective trial of real-time electronic surveillance to expedite early care of severe sepsis.

Authors:  Jessica L Nelson; Barbara L Smith; Jeremy D Jared; John G Younger
Journal:  Ann Emerg Med       Date:  2011-01-12       Impact factor: 5.721

7.  Effect of early patient enrollment on the time to completion and publication of randomized controlled trials.

Authors:  A B Haidich; J P Ioannidis
Journal:  Am J Epidemiol       Date:  2001-11-01       Impact factor: 4.897

8.  Implementing syndromic surveillance: a practical guide informed by the early experience.

Authors:  Kenneth D Mandl; J Marc Overhage; Michael M Wagner; William B Lober; Paola Sebastiani; Farzad Mostashari; Julie A Pavlin; Per H Gesteland; Tracee Treadwell; Eileen Koski; Lori Hutwagner; David L Buckeridge; Raymond D Aller; Shaun Grannis
Journal:  J Am Med Inform Assoc       Date:  2003-11-21       Impact factor: 4.497

9.  Central challenges facing the national clinical research enterprise.

Authors:  Nancy S Sung; William F Crowley; Myron Genel; Patricia Salber; Lewis Sandy; Louis M Sherwood; Stephen B Johnson; Veronica Catanese; Hugh Tilson; Kenneth Getz; Elaine L Larson; David Scheinberg; E Albert Reece; Harold Slavkin; Adrian Dobs; Jack Grebb; Rick A Martinez; Allan Korn; David Rimoin
Journal:  JAMA       Date:  2003-03-12       Impact factor: 56.272

10.  Technical description of RODS: a real-time public health surveillance system.

Authors:  Fu-Chiang Tsui; Jeremy U Espino; Virginia M Dato; Per H Gesteland; Judith Hutman; Michael M Wagner
Journal:  J Am Med Inform Assoc       Date:  2003-06-04       Impact factor: 4.497

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  15 in total

1.  Embedding research recruitment in a community resource e-prescribing system: lessons from an implementation study on Chicago's South Side.

Authors:  Gillian Feldmeth; Edward T Naureckas; Julian Solway; Stacy Tessler Lindau
Journal:  J Am Med Inform Assoc       Date:  2019-08-01       Impact factor: 4.497

2.  Design-phase prediction of potential cancer clinical trial accrual success using a research data mart.

Authors:  Jack W London; Luanne Balestrucci; Devjani Chatterjee; Tingting Zhan
Journal:  J Am Med Inform Assoc       Date:  2013-07-14       Impact factor: 4.497

3.  Research START: A Multimethod Study of Barriers and Accelerators of Recruiting Research Participants.

Authors:  Mark A Stein; Michele Shaffer; Abigail Echo-Hawk; Jody Smith; Ann Stapleton; Ann Melvin
Journal:  Clin Transl Sci       Date:  2015-12-08       Impact factor: 4.689

4.  Design and multicentric implementation of a generic software architecture for patient recruitment systems re-using existing HIS tools and routine patient data.

Authors:  B Trinczek; F Köpcke; T Leusch; R W Majeed; B Schreiweis; J Wenk; B Bergh; C Ohmann; R Röhrig; H U Prokosch; M Dugas
Journal:  Appl Clin Inform       Date:  2014-03-19       Impact factor: 2.342

5.  Accrual and recruitment practices at Clinical and Translational Science Award (CTSA) institutions: a call for expectations, expertise, and evaluation.

Authors:  Rhonda G Kost; Sabrena Mervin-Blake; Rose Hallarn; Charles Rathmann; H Robert Kolb; Cheryl Dennison Himmelfarb; Toni D'Agostino; Eric P Rubinstein; Ann M Dozier; Kathryn G Schuff
Journal:  Acad Med       Date:  2014-08       Impact factor: 6.893

6.  ACE: the Advanced Cohort Engine for searching longitudinal patient records.

Authors:  Alison Callahan; Vladimir Polony; José D Posada; Juan M Banda; Saurabh Gombar; Nigam H Shah
Journal:  J Am Med Inform Assoc       Date:  2021-07-14       Impact factor: 4.497

7.  Clinical research informatics: a conceptual perspective.

Authors:  Michael G Kahn; Chunhua Weng
Journal:  J Am Med Inform Assoc       Date:  2012-04-20       Impact factor: 4.497

Review 8.  A review of approaches to identifying patient phenotype cohorts using electronic health records.

Authors:  Chaitanya Shivade; Preethi Raghavan; Eric Fosler-Lussier; Peter J Embi; Noemie Elhadad; Stephen B Johnson; Albert M Lai
Journal:  J Am Med Inform Assoc       Date:  2013-11-07       Impact factor: 4.497

Review 9.  Employing computers for the recruitment into clinical trials: a comprehensive systematic review.

Authors:  Felix Köpcke; Hans-Ulrich Prokosch
Journal:  J Med Internet Res       Date:  2014-07-01       Impact factor: 5.428

10.  Real-Time Enrollment Dashboard For Multisite Clinical Trials.

Authors:  William A Mattingly; Robert R Kelley; Timothy L Wiemken; Julia H Chariker; Paula Peyrani; Brian E Guinn; Laura E Binford; Kimberley Buckner; Julio Ramirez
Journal:  Contemp Clin Trials Commun       Date:  2015-10-30
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