Literature DB >> 21931233

A framework for assessing the quality of democratic deliberation: enhancing deliberation as a tool for bioethics.

Raymond De Vries1, Aimee E Stanczyk, Kerry A Ryan, Scott Y H Kim.   

Abstract

The goal of democratic deliberation (DD) bioethics research is to elicit informed and considered opinions on ethically controversial issues. But the trustworthiness of DD outcomes depends on the quality of deliberations. We provide a framework to evaluate the quality of deliberations and apply that framework to a DD project on surrogate consent for dementia research involving randomly selected samples of the older general public. Using a mixed method approach, we found that participants were very satisfied with the sessions, learned and used new information, were respectful and collaborative, and were able to "reason together" to arrive at societal policy recommendations. Implications and limitations of the paper are also discussed.

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Year:  2011        PMID: 21931233      PMCID: PMC3336203          DOI: 10.1525/jer.2011.6.3.3

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  11 in total

Review 1.  Deliberations about deliberative methods: issues in the design and evaluation of public participation processes.

Authors:  Julia Abelson; Pierre-Gerlier Forest; John Eyles; Patricia Smith; Elisabeth Martin; Francois-Pierre Gauvin
Journal:  Soc Sci Med       Date:  2003-07       Impact factor: 4.634

2.  Does the public think it is reasonable to wait for more evidence before funding innovative health technologies? The case of PET scanning in Ontario.

Authors:  Roger Chafe; Farhan Merali; Andreas Laupacis; Wendy Levinson; Doug Martin
Journal:  Int J Technol Assess Health Care       Date:  2010-04       Impact factor: 2.188

3.  Assessing the quality of democratic deliberation: a case study of public deliberation on the ethics of surrogate consent for research.

Authors:  Raymond De Vries; Aimee Stanczyk; Ian F Wall; Rebecca Uhlmann; Laura J Damschroder; Scott Y Kim
Journal:  Soc Sci Med       Date:  2010-03-16       Impact factor: 4.634

Review 4.  Public participation in health care priority setting: A scoping review.

Authors:  Craig Mitton; Neale Smith; Stuart Peacock; Brian Evoy; Julia Abelson
Journal:  Health Policy       Date:  2009-03-03       Impact factor: 2.980

5.  Can we trust "democratic deliberation"?

Authors:  Leonard M Fleck
Journal:  Hastings Cent Rep       Date:  2007 Jul-Aug       Impact factor: 2.683

6.  Deliberating about bioethics.

Authors:  A Gutmann; D Thompson
Journal:  Hastings Cent Rep       Date:  1997 May-Jun       Impact factor: 2.683

7.  Evaluation of two methods of deliberative participation of older people in food-policy development.

Authors:  Lada Timotijevic; Monique Maria Raats
Journal:  Health Policy       Date:  2006-10-25       Impact factor: 2.980

8.  What is a good public participation process? Five perspectives from the public.

Authors:  T Webler; S Tuler; R Krueger
Journal:  Environ Manage       Date:  2001-03       Impact factor: 3.266

9.  Effect of public deliberation on attitudes toward surrogate consent for dementia research.

Authors:  S Y H Kim; H M Kim; D S Knopman; R De Vries; L Damschroder; P S Appelbaum
Journal:  Neurology       Date:  2011-10-05       Impact factor: 9.910

10.  Assessing the public's views in research ethics controversies: deliberative democracy and bioethics as natural allies.

Authors:  Scott Y H Kim; Ian F Wall; Aimee Stanczyk; Raymond De Vries
Journal:  J Empir Res Hum Res Ethics       Date:  2009-12       Impact factor: 1.742

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  12 in total

1.  Patient Preferences Regarding Informed Consent Models for Participation in a Learning Health Care System for Oncology.

Authors:  Rochelle D Jones; Chris Krenz; Michele Gornick; Kent A Griffith; Rebecca Spence; Angela R Bradbury; Raymond De Vries; Sarah T Hawley; Rodney A Hayward; Robin Zon; Sage Bolte; Navid Sadeghi; Richard L Schilsky; Reshma Jagsi
Journal:  JCO Oncol Pract       Date:  2020-04-30

2.  Effect of Public Deliberation on Patient Attitudes Regarding Consent and Data Use in a Learning Health Care System for Oncology.

Authors:  Reshma Jagsi; Kent A Griffith; Rochelle D Jones; Chris Krenz; Michele Gornick; Rebecca Spence; Raymond De Vries; Sarah T Hawley; Robin Zon; Sage Bolte; Navid Sadeghi; Richard L Schilsky; Angela R Bradbury
Journal:  J Clin Oncol       Date:  2019-10-02       Impact factor: 44.544

3.  Public's approach to surrogate consent for dementia research: cautious pragmatism.

Authors:  Raymond De Vries; Kerry A Ryan; Aimee Stanczyk; Paul S Appelbaum; Laura Damschroder; David S Knopman; Scott Y H Kim
Journal:  Am J Geriatr Psychiatry       Date:  2013-01-12       Impact factor: 4.105

4.  Research translation for military and veteran health: research, practice, policy.

Authors:  Jeffrey P Haibach; Katherine D Hoerster; Lindsey Dorflinger; Lisa M McAndrew; Daniel G Cassidy; David E Goodrich; Jill E Bormann; Julie Lowery; Steven M Asch; Susan D Raffa; Tannaz Moin; Alan L Peterson; Michael G Goldstein; Tracy Neal-Walden; Gerald W Talcott; Christopher L Hunter; Sara J Knight
Journal:  Transl Behav Med       Date:  2021-03-16       Impact factor: 3.046

Review 5.  Current practice of public involvement activities in biomedical research and innovation: a systematic qualitative review.

Authors:  Jonas Lander; Tobias Hainz; Irene Hirschberg; Daniel Strech
Journal:  PLoS One       Date:  2014-12-03       Impact factor: 3.240

6.  Assessment of a multimedia-based prospective method to support public deliberations on health technology design: participant survey findings and qualitative insights.

Authors:  P Lehoux; J Jimenez-Pernett; F A Miller; B Williams-Jones
Journal:  BMC Health Serv Res       Date:  2016-10-26       Impact factor: 2.655

7.  Developing and applying a deductive coding framework to assess the goals of Citizen/Community Jury deliberations.

Authors:  Anna Mae Scott; Rebecca Sims; Chris Degeling; Stacy Carter; Rae Thomas
Journal:  Health Expect       Date:  2019-03-12       Impact factor: 3.377

8.  Evaluating community deliberations about health research priorities.

Authors:  Susan Dorr Goold; Marion Danis; Julia Abelson; Michelle Gornick; Lisa Szymecko; C Daniel Myers; Zachary Rowe; Hyungjin Myra Kim; Cengiz Salman
Journal:  Health Expect       Date:  2019-06-28       Impact factor: 3.377

9.  Eliciting patient views on the allocation of limited healthcare resources: a deliberation on hepatitis C treatment in the Veterans Health Administration.

Authors:  Akbar K Waljee; Kerry A Ryan; Chris D Krenz; George N Ioannou; Lauren A Beste; Monica A Tincopa; Sameer D Saini; Grace L Su; Maria E Arasim; Patti T Roman; Brahmajee K Nallamothu; Raymond De Vries
Journal:  BMC Health Serv Res       Date:  2020-05-01       Impact factor: 2.655

10.  How important is 'accuracy' of surrogate decision-making for research participation?

Authors:  Scott Y H Kim; H Myra Kim; Kerry A Ryan; Paul S Appelbaum; David S Knopman; Laura Damschroder; Raymond De Vries
Journal:  PLoS One       Date:  2013-01-31       Impact factor: 3.240

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