| Literature DB >> 30864216 |
Anna Mae Scott1, Rebecca Sims1, Chris Degeling2, Stacy Carter2, Rae Thomas1.
Abstract
BACKGROUND: Public participation in health policy decision making is thought to improve the quality of the decisions and enhance their legitimacy. Citizen/Community Juries (CJs) are a form of public participation that aims to elicit an informed community perspective on controversial topics. Reporting standards for CJ processes have already been proposed. However, less clarity exists about the standards for what constitutes a good quality CJ deliberation-we aim to begin to address this gap here.Entities:
Keywords: citizens jury; community jury; health; public deliberation; public engagement; quality; stakeholder involvement
Mesh:
Year: 2019 PMID: 30864216 PMCID: PMC6543138 DOI: 10.1111/hex.12880
Source DB: PubMed Journal: Health Expect ISSN: 1369-6513 Impact factor: 3.377
Mapping key CJ goals onto published coding frameworks
| Goals of CJ deliberation processes | Frameworks to assess deliberation content | |||||
|---|---|---|---|---|---|---|
| De Vries et al | Longstaff & Secko | Anderson & Hansen |
Han et al | O'Doherty | Operationalized deductive coding framework | |
| G1: Express values and preferences of participants | Does the CJ deliberation refer to individuals’ values and preferences? | |||||
| G2: Reciprocal interactions and consideration of alternative views |
Participant engagement; |
Outputs reflected a broad view of the situation that addressed all issues considered important by participants; | Increasing mutual understanding among participants; Openness towards the arguments of others | Interactivity (evidence participants are interacting with one another evidenced by referencing names or statements); Constructive politics (degree to which participants offer alternative proposals or attempt to mediate proposals) | Listen to others and take views into consideration | Did the jurors engage with each other's perspectives during the deliberation? |
| G3: Enhance participants’ knowledge |
Use of on‐site experts; | Information was added | Educating citizens | Does the CJ deliberation reference information from the experts? | ||
| G4: Produce thoughtful, well‐informed solutions | Understanding and application of information; |
More information was considered in the process; | Consideration of trade‐offs (participants weigh potential advantages and disadvantages of proposals) |
Does the information provided by the experts enrich the deliberation? | ||
| G5: Provide reasons for recommendations | Impact of information on opinions; Justification of opinion; | Formation of reasoned opinion |
Justification rationality (extent to which participants offer justifications for their claims) | Considered opinions offered | Do the jurors provide justification(s) for the recommendation they reached? | |
| G6: Produce recommendations from a societal (rather than individual) perspective | Adoption of societal perspective | Minimizing the use of arguments referring to narrow self‐interest | Common good orientation (extent to which participants express claims that address more collective than personal impacts) | Reach agreement | Does the CJ deliberation reflect a societal perspective? | |
G, Goal.
Deductive coding framework analysis
| Elements | Operationalized goal | Explanation | Text that could be coded as demonstrating that this element is present |
|---|---|---|---|
| Deliberation Elements | G1: Does the CJ deliberation refer to individuals’ values and preferences? | Do the jurors raise values and preferences (eg autonomy, transparency, greater good, etc) during the deliberation |
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| G2: Did the jurors engage with each other's perspectives during the deliberation? | Do the jurors engage with each other's points, views and arguments? (Eg via clarification, agreement, building on each other's point…) | “ | |
| G3: Does the CJ deliberation reference information from the experts? | Do the jurors raise (eg cite) points that were made by experts during expert presentations, unprompted by facilitators/note‐takers. |
| |
| G4: Does the information provided by the experts enrich the deliberation? | Do the jurors engage with the points made by experts during the presentations—for example a juror raises a point, and others engage with it (eg challenge it, affirm it, negate it, provide further clarification or examples pertinent to the point raised, etc) |
| |
| Recommendation Elements | G4: Has the CJ reached a clear and identifiable recommendation? | Do the jurors reach a recommendation that can be clearly identified? |
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| G4: Does the CJ recommendation directly address the charge that the CJ was given? | Do the jurors reach a recommendation that directly responds to the issue or charge or topic that the jury aimed to address? | No, the health system should not encourage GPs to case find for dementia. However, because the jurors recognized that Australian GP Guidelines encourage doctors to practice case‐finding for dementia, they suggested several amendments to the Guidelines—including that the testing be conducted by specialists rather than GPs; there ought not to be financial incentives for testing; education on testing and treatment options should be provided to the community and to health‐care providers; age limit should be removed in favour of eligibility on the basis of risk factors; and several other amendments | |
| G5: Do the jurors provide justification(s) for the recommendation they reached? | Are reasons offered in support of the recommendation reached? |
No effective treatment: | |
| G6: Does the CJ deliberation reflect a societal (rather than individual) perspective? | Do the jurors differentiate between the decision they would make for themselves personally and the decision they would make for the community as a whole |
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G, Goal.
Figure 1Search results