Literature DB >> 21804645

Internet-Based Interactive Support for Cancer Patients: Are Integrated Systems Better?

David H Gustafson1, Robert Hawkins, Fiona McTavish, Suzanne Pingree, Wei Chih Chen, Kanittha Volrathongchai, William Stengle, James A Stewart, Ronald C Serlin.   

Abstract

To compare the benefits of the Internet generally versus a focused system of services, 257 breast cancer patients were randomly assigned to a control group, access to the Internet with links to high-quality breast cancer sites, or access to an eHealth system (Comprehensive Health Enhancement Support System, CHESS) that integrated information, support, and decision and analysis tools. The intervention lasted 5 months, and self-report data on quality of life, health-care competence, and social support were collected at pretest and at 2-, 4-, and 9-month posttests. CHESS subjects logged on more overall than Internet subjects and accessed more health resources, but the latter used non health-related sites more. Subjects with access to the Internet alone experienced no better outcomes than controls at any of the 3 time points, compared to pretest levels. Subjects with CHESS experienced greater social support during the intervention period and had higher scores on all 3 outcomes at 9 months, 4 months after the intervention ended. CHESS subjects also scored higher than those with Internet access during the intervention period but not significantly after the intervention ended. Thus, CHESS (with one simple interface and integrated information, communication, and skills services) helped newly diagnosed breast cancer patients even after computers were removed. In contrast, patients received little benefit from Internet access, despite having links to a variety of high-quality sites.

Entities:  

Year:  2008        PMID: 21804645      PMCID: PMC3144782          DOI: 10.1111/j.1460-2466.2008.00383.x

Source DB:  PubMed          Journal:  J Commun        ISSN: 0021-9916


  23 in total

1.  Limiting factors on the transformative powers of e-mail in patient-physician relationships: a critical analysis.

Authors:  C Baur
Journal:  Health Commun       Date:  2000

2.  The prevention of depression using the Internet.

Authors:  Helen Christensen; Kathleen M Griffiths
Journal:  Med J Aust       Date:  2002-10-07       Impact factor: 7.738

3.  Quality of life among older survivors of breast cancer.

Authors:  Angela Sammarco
Journal:  Cancer Nurs       Date:  2003-12       Impact factor: 2.592

4.  Impact of a patient-centered, computer-based health information/support system.

Authors:  D H Gustafson; R Hawkins; E Boberg; S Pingree; R E Serlin; F Graziano; C L Chan
Journal:  Am J Prev Med       Date:  1999-01       Impact factor: 5.043

5.  How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews.

Authors:  Gunther Eysenbach; Christian Köhler
Journal:  BMJ       Date:  2002-03-09

6.  Effect of computer support on younger women with breast cancer.

Authors:  D H Gustafson; R Hawkins; S Pingree; F McTavish; N K Arora; J Mendenhall; D F Cella; R C Serlin; F M Apantaku; J Stewart; A Salner
Journal:  J Gen Intern Med       Date:  2001-07       Impact factor: 5.128

7.  Reliability and validity of the Functional Assessment of Cancer Therapy-Breast quality-of-life instrument.

Authors:  M J Brady; D F Cella; F Mo; A E Bonomi; D S Tulsky; S R Lloyd; S Deasy; M Cobleigh; G Shiomoto
Journal:  J Clin Oncol       Date:  1997-03       Impact factor: 44.544

8.  Online interaction. Effects of storytelling in an internet breast cancer support group.

Authors:  Mette Terp Høybye; Christoffer Johansen; Tine Tjørnhøj-Thomsen
Journal:  Psychooncology       Date:  2005-03       Impact factor: 3.894

9.  Breast cancer treatment in older women: impact of the patient-physician interaction.

Authors:  Rose C Maly; Barbara Leake; Rebecca A Silliman
Journal:  J Am Geriatr Soc       Date:  2004-07       Impact factor: 5.562

Review 10.  Outcomes and quality of life following breast cancer treatment in older women: when, why, how much, and what do women want?

Authors:  Jeanne Mandelblatt; Melissa Figueiredo; Jennifer Cullen
Journal:  Health Qual Life Outcomes       Date:  2003-09-17       Impact factor: 3.186

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  67 in total

1.  Predictors and Effects of Training on an Online Health Education and Support System for Women with Breast Cancer.

Authors:  Helene McDowell; Eunkyung Kim; Bret R Shaw; Jeong Yeob Han; Lauren Gumieny
Journal:  J Comput Mediat Commun       Date:  2010-04

2.  The value of theory for enhancing and understanding e-health interventions.

Authors:  Suzanne Pingree; Robert Hawkins; Tim Baker; Lori duBenske; Linda J Roberts; David H Gustafson
Journal:  Am J Prev Med       Date:  2010-01       Impact factor: 5.043

3.  Managing uncertainty in the context of clubfoot care: exploring the value of uncertainty management theory and the sense of virtual community.

Authors:  Florin Oprescu; Shelly Campo; John Lowe; Julie Andsager; Jose A Morcuende
Journal:  Iowa Orthop J       Date:  2013

4.  The Development of an eHealth tool suite for prostate cancer patients and their partners.

Authors:  Donna Van Bogaert; Robert Hawkins; Suzanne Pingree; David Jarrard
Journal:  J Support Oncol       Date:  2012-05-15

5.  Creating a bond between caregivers online: effect on caregivers' coping strategies.

Authors:  Kang Namkoong; Lori L DuBenske; Bret R Shaw; David H Gustafson; Robert P Hawkins; Dhavan V Shah; Fiona M McTavish; James F Cleary
Journal:  J Health Commun       Date:  2011-10-17

Review 6.  Inclusion of underserved racial and ethnic groups in cancer intervention research using new media: a systematic literature review.

Authors:  Hayley S Thompson; Rachel C Shelton; Jamie Mitchell; Tara Eaton; Pamela Valera; Anne Katz
Journal:  J Natl Cancer Inst Monogr       Date:  2013-12

7.  Web-based cancer communication and decision making systems: connecting patients, caregivers, and clinicians for improved health outcomes.

Authors:  Lori L DuBenske; David H Gustafson; Bret R Shaw; James F Cleary
Journal:  Med Decis Making       Date:  2010-11-01       Impact factor: 2.583

Review 8.  Consumer Health Informatics: Past, Present, and Future of a Rapidly Evolving Domain.

Authors:  G Demiris
Journal:  Yearb Med Inform       Date:  2016-05-20

9.  Opinion Leaders in Online Cancer Support Groups: An Investigation of Their Antecedents and Consequences.

Authors:  Eunkyung Kim; Dietram A Scheufele; Jeong Yeob Han; Dhavan Shah
Journal:  Health Commun       Date:  2016-05-18

10.  Cancer survivors in the United States: prevalence across the survivorship trajectory and implications for care.

Authors:  Janet S de Moor; Angela B Mariotto; Carla Parry; Catherine M Alfano; Lynne Padgett; Erin E Kent; Laura Forsythe; Steve Scoppa; Mark Hachey; Julia H Rowland
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2013-03-27       Impact factor: 4.254

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