Literature DB >> 24027474

Managing uncertainty in the context of clubfoot care: exploring the value of uncertainty management theory and the sense of virtual community.

Florin Oprescu1, Shelly Campo, John Lowe, Julie Andsager, Jose A Morcuende.   

Abstract

Serious health conditions, such as clubfoot, could be a major source of uncertainty and stress for parents of children affected. How parents deal with uncertainty and stress as related to their child's health condition is of interest for medical professionals and health communicators alike. While physicians remain a preferred source of health information, during medical encounters or via phone and email communication, many individuals seek out health information on the Internet, including in online support communities. This study explored the connections between Uncertainty Management Theory (UMT) constructs and the potential contribution of the sense of virtual community (SOVC) to the UMT framework. The results of this research suggest that the UMT needs to be adapted for use in online contexts. One way is to include theoretical constructs, such as the sense of virtual community, specifically developed to measure online interactions. A modified and updated Uncertainty Management Theory could be useful in exploring, analyzing and understanding online behaviors related to health conditions such as clubfoot and thus contribute substantially to what we know about caregivers in their role as uncertainty managers.

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Year:  2013        PMID: 24027474      PMCID: PMC3748870     

Source DB:  PubMed          Journal:  Iowa Orthop J        ISSN: 1541-5457


  28 in total

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Review 2.  Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions.

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4.  Discussing prognosis: "how much do you want to know?" talking to patients who are prepared for explicit information.

Authors:  Anthony L Back; Robert M Arnold
Journal:  J Clin Oncol       Date:  2006-09-01       Impact factor: 44.544

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7.  Comparative levels of psychological distress, stress symptoms, depression and anxiety after childbirth--a prospective population-based study of mothers and fathers.

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Journal:  BJOG       Date:  2002-10       Impact factor: 6.531

8.  The health and well-being of caregivers of children with cerebral palsy.

Authors:  Parminder Raina; Maureen O'Donnell; Peter Rosenbaum; Jamie Brehaut; Stephen D Walter; Dianne Russell; Marilyn Swinton; Bin Zhu; Ellen Wood
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9.  Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy.

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Authors:  Liisamaija Nuutila; Sanna Salanterä
Journal:  J Pediatr Nurs       Date:  2006-04       Impact factor: 2.145

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  2 in total

1.  The impact of the Ponseti treatment method on parents and caregivers of children with clubfoot: a comparison of two urban populations in Europe and Africa.

Authors:  Francesc Malagelada; Sadia Mayet; Greg Firth; Manoj Ramachandran
Journal:  J Child Orthop       Date:  2016-02-22       Impact factor: 1.548

Review 2.  Contexts and Outcomes of Proxy Online Health Information Seeking: Mixed Studies Review With Framework Synthesis.

Authors:  Reem El Sherif; Pierre Pluye; Fidelia Ibekwe
Journal:  J Med Internet Res       Date:  2022-06-24       Impact factor: 7.076

  2 in total

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