Guadalupe R Palos1, Martha Hare. 1. Cancer Survivorship Program, The University of Texas MD Anderson Cancer Center, 1515 Holcombe Blvd., Houston, TX 77030, USA. gpalos@mdanderson.org
Abstract
BACKGROUND: Navigation services may be strengthened by establishing a partnership between the patient, family/caregiver, and the navigator. Involvement of a patient's familial or social network in the navigation process would allow patient navigators to spend more time and resources with the subset of patients who do not have support from family and friends. The Partnership Approach evolves from combining the strength of a patient's existing social support and network with the delivery of navigation services. METHODS: To develop this novel approach, the Family and Caregiver Workgroup was convened at the American Cancer Society's National Leadership Summit. Individuals were asked to serve in this group due to their interest, research, or experience in family and caregiver issues. RESULTS: By the end of the Summit, the workgroup had achieved 3 major outcomes: 1) enhancement of current patient navigation services by building a partnership between the patient, family or primary caregivers, and navigators; 2) identification of a set of core functions that a family/caregiver could perform in a partnership; and 3) consensus on a set of metrics to use with caregivers and patients. Five major domains were selected to measure patient and/or caregiver outcomes: quality of life, satisfaction with care, social support, distress, and caregiver burden. Metrics appropriate for each domain were recommended. CONCLUSIONS: Integration of these domains and scales in current navigation services is needed to develop future research. Evidence from such research would help determine whether the Partnership Approach contributes to improved patient and caregiver outcomes.
BACKGROUND: Navigation services may be strengthened by establishing a partnership between the patient, family/caregiver, and the navigator. Involvement of a patient's familial or social network in the navigation process would allow patient navigators to spend more time and resources with the subset of patients who do not have support from family and friends. The Partnership Approach evolves from combining the strength of a patient's existing social support and network with the delivery of navigation services. METHODS: To develop this novel approach, the Family and Caregiver Workgroup was convened at the American Cancer Society's National Leadership Summit. Individuals were asked to serve in this group due to their interest, research, or experience in family and caregiver issues. RESULTS: By the end of the Summit, the workgroup had achieved 3 major outcomes: 1) enhancement of current patient navigation services by building a partnership between the patient, family or primary caregivers, and navigators; 2) identification of a set of core functions that a family/caregiver could perform in a partnership; and 3) consensus on a set of metrics to use with caregivers and patients. Five major domains were selected to measure patient and/or caregiver outcomes: quality of life, satisfaction with care, social support, distress, and caregiver burden. Metrics appropriate for each domain were recommended. CONCLUSIONS: Integration of these domains and scales in current navigation services is needed to develop future research. Evidence from such research would help determine whether the Partnership Approach contributes to improved patient and caregiver outcomes.
Authors: Kristen J Wells; Paul C Winters; Pascal Jean-Pierre; Victoria Warren-Mears; Douglas Post; Mary Ann S Van Duyn; Kevin Fiscella; Julie Darnell; Karen M Freund Journal: Support Care Cancer Date: 2015-10-05 Impact factor: 3.603
Authors: J Nicholas Dionne-Odom; Allison J Applebaum; Katherine A Ornstein; Andres Azuero; Paula P Warren; Richard A Taylor; Gabrielle B Rocque; Elizabeth A Kvale; Wendy Demark-Wahnefried; Maria Pisu; Edward E Partridge; Michelle Y Martin; Marie A Bakitas Journal: Psychooncology Date: 2017-12-28 Impact factor: 3.894
Authors: Douglas M Post; Ann Scheck McAlearney; Gregory S Young; Jessica L Krok-Schoen; Jesse J Plascak; Electra D Paskett Journal: J Cancer Educ Date: 2015-12 Impact factor: 2.037
Authors: Rabih Chattat; Giovanni Ottoboni; Anita Zeneli; Maria Alejandra Berardi; Veronica Cossu; Marco Maltoni Journal: Support Care Cancer Date: 2016-04-11 Impact factor: 3.603
Authors: Bailey A Hendricks; Corey Lofton; Andres Azuero; Matthew Kenny; Richard A Taylor; Chao-Hui Sylvia Huang; Gabrielle Rocque; Grant R Williams; Chinara Dosse; Kathryn Louis; Marie A Bakitas; J Nicholas Dionne-Odom Journal: Contemp Clin Trials Commun Date: 2019-11-12