B Kao1, L Romero-Bosch, W Plante, D Lobato. 1. Department of Pediatrics, The Alpert Medical School of Brown University, Providence, RI, USA. bkao@lifespan.org
Abstract
OBJECTIVE: This qualitative study explored the experiences of Latino siblings of children with developmental disabilities. METHODS: Parents and typically developing siblings from 15 Latino families with a child with a developmental disability participated in separate interviews. RESULTS: Using consensual qualitative research methodology, domains reflecting siblings' relationships, emotional experiences and communication about the disability were identified. The child's need for caregiving was a prominent topic in the sibling and parent narratives. Parents reported concerns about siblings' experience of differential treatment, whereas siblings reported concerns about restricted social activities because of their brother/sister. CONCLUSIONS: Including multiple informants revealed commonalities and differences in parents' and siblings' perspectives on the impact of a child's disability. The importance of considering sibling adaptation in sociocultural context is discussed.
OBJECTIVE: This qualitative study explored the experiences of Latino siblings of children with developmental disabilities. METHODS: Parents and typically developing siblings from 15 Latino families with a child with a developmental disability participated in separate interviews. RESULTS: Using consensual qualitative research methodology, domains reflecting siblings' relationships, emotional experiences and communication about the disability were identified. The child's need for caregiving was a prominent topic in the sibling and parent narratives. Parents reported concerns about siblings' experience of differential treatment, whereas siblings reported concerns about restricted social activities because of their brother/sister. CONCLUSIONS: Including multiple informants revealed commonalities and differences in parents' and siblings' perspectives on the impact of a child's disability. The importance of considering sibling adaptation in sociocultural context is discussed.
Authors: Leida E Matías-Carrelo; Ligia M Chávez; Gisela Negrón; Glorisa Canino; Sergio Aguilar-Gaxiola; Sue Hoppe Journal: Cult Med Psychiatry Date: 2003-09
Authors: Lauren Bishop-Fitzpatrick; Sarah Dababnah; Mary J Baker-Ericzén; Matthew J Smith; Sandra M Magaña Journal: Soc Work Ment Health Date: 2018-08-23
Authors: Felicia Andrioni; Claudiu Coman; Roxana-Catalina Ghita; Maria Cristina Bularca; Gabriela Motoi; Ioan-Valentin Fulger Journal: Int J Environ Res Public Health Date: 2022-02-14 Impact factor: 3.390