Literature DB >> 21523753

Palliative care in adolescents and young adults with cancer.

Sheila Pritchard1, Geoff Cuvelier, Mike Harlos, Ronald Barr.   

Abstract

Adolescents and young adults (AYA) with advanced or terminal cancer have distinctive medical and psychosocial needs that may not have been adequately provided by either pediatric or adult palliative care services. A discussion group, as part of a larger workshop on AYA with cancer, was held in Toronto on March 11-13, 2010;117:-. Recommendations were as follows: Develop a specific AYA screening tool designed to detect increased anxiety or new symptoms and to initiate discussion about palliative or symptom care; Set Canadian standards for palliative care in AYA patients. These standards should be included in hospital accreditation; Involve the palliative/symptom care team early in the disease trajectory to help manage clinically important symptoms that may not be associated with imminent death; Establish specific AYA multidisciplinary palliative care teams throughout Canada that are flexible and can work in both pediatric and adult facilities, and are able to work in a "virtual" environment to support patients being cared for at home; Improve physical facilities in hospices and hospitals to meet the distinctive needs of terminally ill AYA patients; Enhance support for palliative care at home by: changing legislation to improve Compassionate Care Benefits and developing "virtual palliative care support teams". Adequate provision of AYA palliative care and symptom management services will likely confer notable benefits to AYA patients and their families, and is likely to be cost saving to the tax payer by avoiding prolonged hospitalization and promoting easier return to work for the families and caregivers.
© 2011 American Cancer Society

Entities:  

Mesh:

Year:  2011        PMID: 21523753      PMCID: PMC5231403          DOI: 10.1002/cncr.26044

Source DB:  PubMed          Journal:  Cancer        ISSN: 0008-543X            Impact factor:   6.860


  70 in total

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Review 6.  Determinants of place of death for terminal cancer patients.

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Authors:  Manish Agrawal; Ezekiel J Emanuel
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  24 in total

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Review 3.  Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review.

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Journal:  Palliat Med       Date:  2015-04-28       Impact factor: 4.762

Review 4.  Identifying and addressing the needs of adolescents and young adults with cancer: summary of an Institute of Medicine workshop.

Authors:  Sharyl J Nass; Lynda K Beaupin; Wendy Demark-Wahnefried; Karen Fasciano; Patricia A Ganz; Brandon Hayes-Lattin; Melissa M Hudson; Brenda Nevidjon; Kevin C Oeffinger; Ruth Rechis; Lisa C Richardson; Nita L Seibel; Ashley W Smith
Journal:  Oncologist       Date:  2015-01-07

5.  "Perhaps I will die young." Fears and worries regarding disease and death among Danish adolescents and young adults with cancer. A mixed method study.

Authors:  Bibi Hølge-Hazelton; Helle U Timm; Christian Graugaard; Kirsten A Boisen; Cecilie Dyg Sperling
Journal:  Support Care Cancer       Date:  2016-06-28       Impact factor: 3.603

6.  End-of-life care among adolescent and young adult patients with cancer living in poverty.

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Journal:  Cancer       Date:  2019-11-14       Impact factor: 6.860

7.  High Intensity of End-of-Life Care Among Adolescent and Young Adult Cancer Patients in the New York State Medicaid Program.

Authors:  Jennifer W Mack; Kun Chen; Francis P Boscoe; Foster C Gesten; Patrick J Roohan; Maria J Schymura; Deborah Schrag
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8.  Survival differences between adolescents/young adults and children with B precursor acute lymphoblastic leukemia after allogeneic hematopoietic cell transplantation.

Authors:  Michael J Burke; Nathan Gossai; John E Wagner; Angela R Smith; Veronika Bachanova; Qing Cao; Margaret L MacMillan; Heather S Stefanski; Daniel J Weisdorf; Michael R Verneris
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