Literature DB >> 21391239

Transition to adult care for children with chronic neurological disorders.

Peter Camfield1, Carol Camfield.   

Abstract

Chronic neurological disorders in children have significant effects on adult medical and social function. Transition and then formal transfer of care from pediatric to adult services is a complex process, although there are virtually no objective data to inform physicians about the most effective approach. Some neurological disorders that start in children are a danger to society if poorly treated in adulthood, some disorders that were previously lethal in childhood now permit survival well into adulthood, and others are static in childhood but progressive in adulthood. Some disorders remit or are cured in childhood but continue to have serious comorbidity in adulthood, whereas others are similar and persistent in children and adults. Maturity, provision of information, and cognitive problems are confounders. We discuss several models of transition/transfer but prefer a joint pediatric/adult transition clinic. We make a series of suggestions about how to improve the transition/transfer process with the hope of better medical and social adult outcome for children with neurological disorders.
Copyright © 2011 American Neurological Association.

Entities:  

Mesh:

Year:  2011        PMID: 21391239     DOI: 10.1002/ana.22393

Source DB:  PubMed          Journal:  Ann Neurol        ISSN: 0364-5134            Impact factor:   10.422


  17 in total

1.  MicroRNAs: a light into the "black box" of neuropediatric diseases?

Authors:  Ahmed Omran; Dalia Elimam; Sherien Shalaby; Jing Peng; Fei Yin
Journal:  Neuromolecular Med       Date:  2012-07-19       Impact factor: 3.843

2.  Pediatric and adult neurologist perspectives on the challenges of sustaining a transfer clinic.

Authors:  Tadeu A Fantaneanu; Claire S Jacobs; Claudio De Gusmao; Ann M Bergin; Tracey A Milligan; Phillip L Pearl; Barbara A Dworetzky
Journal:  Neurol Clin Pract       Date:  2020-08

Review 3.  Integrating Adolescents and Young Adults into Adult-Centered Care for IBD.

Authors:  Itishree Trivedi; Jane L Holl; Stephen Hanauer; Laurie Keefer
Journal:  Curr Gastroenterol Rep       Date:  2016-05

4.  Psychiatric and medical comorbidity and quality of life outcomes in childhood-onset epilepsy.

Authors:  Christine B Baca; Barbara G Vickrey; Rochelle Caplan; Stefanie D Vassar; Anne T Berg
Journal:  Pediatrics       Date:  2011-11-28       Impact factor: 7.124

Review 5.  Systematic Review of the Impact of Transition Interventions for Adolescents With Chronic Illness on Transfer From Pediatric to Adult Healthcare.

Authors:  Patricia Y Chu; Gary R Maslow; Megan von Isenburg; Richard J Chung
Journal:  J Pediatr Nurs       Date:  2015-07-22       Impact factor: 2.145

6.  Focusing on transitions of care: A change is here.

Authors:  S Andrew Josephson
Journal:  Neurol Clin Pract       Date:  2016-04

7.  Treatment adherence among adolescents with epilepsy: what really matters?

Authors:  Loretta Carbone; Bradley Zebrack; Melissa Plegue; Sucheta Joshi; Renée Shellhaas
Journal:  Epilepsy Behav       Date:  2013-01-31       Impact factor: 2.937

8.  Mortality risks in new-onset childhood epilepsy.

Authors:  Anne T Berg; Katherine Nickels; Elaine C Wirrell; Ada T Geerts; Petra M C Callenbach; Willem F Arts; Christina Rios; Peter R Camfield; Carol S Camfield
Journal:  Pediatrics       Date:  2013-06-10       Impact factor: 7.124

9.  Lifespan Development: Symptoms Experienced by Individuals with Neurofibromatosis Type 1 Associated Plexiform Neurofibromas from Childhood into Adulthood.

Authors:  Sally E Jensen; Zabin S Patel; Robert Listernick; Joel Charrow; Jin-Shei Lai
Journal:  J Clin Psychol Med Settings       Date:  2019-09

10.  Transition to adult mental health services for young people with attention deficit/hyperactivity disorder (ADHD): a qualitative analysis of their experiences.

Authors:  Katie D Swift; Charlotte L Hall; Vic Marimuttu; Lucy Redstone; Kapil Sayal; Chris Hollis
Journal:  BMC Psychiatry       Date:  2013-03-05       Impact factor: 3.630

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