Literature DB >> 21292753

Theory and practice in participatory research: lessons from the Native Elder Care Study.

R Turner Goins1, Eva Marie Garroutte, Susan Leading Fox, Sarah Dee Geiger, Spero M Manson.   

Abstract

Models for community-based participatory research (CBPR) urge academic investigators to collaborate with communities to identify and pursue research questions, processes, and outcomes valuable to both partners. The tribal participatory research (TPR) conceptual model suggests modifications to CBPR to fit the special needs of American Indian communities. This paper draws upon authors' collaboration with one American Indian tribe to recommend theoretical revision and practical strategies for conducting gerontological research in tribal communities. We rated the TPR model as a strong, specialized adaptation of participatory research principles. Although the need for some TPR mechanisms may vary, our experience recommends incorporating dissemination as a central TPR mechanism. Researchers and communities can expect well-crafted collaborative projects to generate particular types of positive project outcomes for both partners, but should prepare for both predictable and unique challenges.

Mesh:

Year:  2011        PMID: 21292753      PMCID: PMC3095653          DOI: 10.1093/geront/gnq130

Source DB:  PubMed          Journal:  Gerontologist        ISSN: 0016-9013


  17 in total

1.  "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician.

Authors:  M F Folstein; S E Folstein; P R McHugh
Journal:  J Psychiatr Res       Date:  1975-11       Impact factor: 4.791

2.  Tribal participatory research: mechanisms of a collaborative model.

Authors:  Philip A Fisher; Thomas J Ball
Journal:  Am J Community Psychol       Date:  2003-12

3.  Academic incentives for faculty participation in community-based participatory research.

Authors:  Philip Nyden
Journal:  J Gen Intern Med       Date:  2003-07       Impact factor: 5.128

4.  Evaluating from the outside: conducting cross-cultural evaluation research on an American Indian reservation.

Authors:  Bethany L Letiecq; Sandra J Bailey
Journal:  Eval Rev       Date:  2004-08

5.  Racial inequality in active life among adult Americans.

Authors:  M D Hayward; M Heron
Journal:  Demography       Date:  1999-02

6.  The Havasupai Indian tribe case--lessons for research involving stored biologic samples.

Authors:  Michelle M Mello; Leslie E Wolf
Journal:  N Engl J Med       Date:  2010-06-09       Impact factor: 91.245

Review 7.  Review of community-based research: assessing partnership approaches to improve public health.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Annu Rev Public Health       Date:  1998       Impact factor: 21.981

8.  The role of community advisory boards: involving communities in the informed consent process.

Authors:  R P Strauss; S Sengupta; S C Quinn; J Goeppinger; C Spaulding; S M Kegeles; G Millett
Journal:  Am J Public Health       Date:  2001-12       Impact factor: 9.308

9.  Ethics in public health research: protecting human subjects: the role of community advisory boards.

Authors:  Sandra Crouse Quinn
Journal:  Am J Public Health       Date:  2004-06       Impact factor: 9.308

10.  Screening for dementia in the outpatient setting: the time and change test.

Authors:  T E Froehlich; J T Robison; S K Inouye
Journal:  J Am Geriatr Soc       Date:  1998-12       Impact factor: 5.562

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  28 in total

1.  Lower body functioning prevalence and correlates in older American Indians in a southeastern tribe: the Native Elder Care Study.

Authors:  R Turner Goins; Kim Innes; Lili Dong
Journal:  J Am Geriatr Soc       Date:  2012-02-08       Impact factor: 5.562

2.  Dietary Beliefs and Management of Older American Indians With Type 2 Diabetes.

Authors:  Mark Schure; Ruth Turner Goins; Jacqueline Jones; Blythe Winchester; Vickie Bradley
Journal:  J Nutr Educ Behav       Date:  2018-12-20       Impact factor: 3.045

3.  Traumatic Stress, Social Support, and Health Among Older American Indians: The Native Elder Care Study.

Authors:  Melissa Tehee; Dedra Buchwald; Cathryn Booth-LaForce; Adam Omidpanah; Spero M Manson; R Turner Goins
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2019-06-14       Impact factor: 4.077

4.  Handgrip strength among older American Indians: the Native Elder Care Study.

Authors:  R Turner Goins; Rose M Pignataro; Lili Dong; Joan C Rogers
Journal:  Age Ageing       Date:  2011-05-07       Impact factor: 10.668

5.  An Examination of the Disablement Process Among Older American Indians: The Native Elder Care Study.

Authors:  Marc B Schure; R Turner Goins
Journal:  Gerontologist       Date:  2015-02-25

6.  Positive Aspects of Family Caregiving for Dementia: Differential Item Functioning by Race.

Authors:  David L Roth; Peggye Dilworth-Anderson; Jin Huang; Alden L Gross; Laura N Gitlin
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2015-06-01       Impact factor: 4.077

7.  Unmet Assistance Need Among Older American Indians: The Native Elder Care Study.

Authors:  Marc B Schure; Kathleen P Conte; R Turner Goins
Journal:  Gerontologist       Date:  2014-01-22

8.  Association of depressive symptomatology with receipt of informal caregiving among older American Indians: the native elder care study.

Authors:  Marc B Schure; R Turner Goins
Journal:  Am J Geriatr Psychiatry       Date:  2014-04-05       Impact factor: 4.105

9.  Listening to the voices of native Hawaiian elders and ‘ohana caregivers: discussions on aging, health, and care preferences.

Authors:  Colette V Browne; Noreen Mokuau; Lana S Ka'opua; Bum Jung Kim; Paula Higuchi; Kathryn L Braun
Journal:  J Cross Cult Gerontol       Date:  2014-06

10.  Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States.

Authors:  Erika Blacksher; Vanessa Y Hiratsuka; Jessica W Blanchard; Justin R Lund; Justin Reedy; Julie A Beans; Bobby Saunkeah; Micheal Peercy; Christie Byars; Joseph Yracheta; Krystal S Tsosie; Marcia O'Leary; Guthrie Ducheneaux; Paul G Spicer
Journal:  AJOB Empir Bioeth       Date:  2021-06-14
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