Literature DB >> 15249289

Ethics in public health research: protecting human subjects: the role of community advisory boards.

Sandra Crouse Quinn1.   

Abstract

Increasingly, researchers grapple with meaningful efforts to involve communities in research, recognizing that communities are distinct from individuals. We also struggle to ensure that individual participants in research are fully protected. Community advisory boards (CABs) offer an opportunity to adopt a relationships paradigm that enables researchers to anticipate and address the context in which communities understand risks and benefits, and individuals give consent. CABs provide a mechanism for community consultation that contributes to protecting communities and fostering meaningful research. Furthermore, CABs can help us to re-create informed consent as a process. It is critical that we conduct research to understand the role of CABs in the informed consent process.

Entities:  

Keywords:  Biomedical and Behavioral Research

Mesh:

Year:  2004        PMID: 15249289      PMCID: PMC1448363          DOI: 10.2105/ajph.94.6.918

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  10 in total

1.  Protecting communities in research: philosophical and pragmatic challenges.

Authors:  C Weijer
Journal:  Camb Q Healthc Ethics       Date:  1999       Impact factor: 1.284

2.  Involving study populations in the review of genetic research.

Authors:  R R Sharp; M W Foster
Journal:  J Law Med Ethics       Date:  2000       Impact factor: 1.718

3.  Development of a "survival" guide for substance users in Harlem, New York City.

Authors:  Stephanie H Factor; Sandro Galea; Lucia Garcia de Duenas Geli; Megan Saynisch; Suzannah Blumenthal; Eric Canales; Michael Poulson; Mary Foley; David Vlahov
Journal:  Health Educ Behav       Date:  2002-06

4.  Access to resources for substance users in Harlem, New York City: service provider and client perspectives.

Authors:  Sandro Galea; Stephanie H Factor; Ann-Gel Palermo; Daniel Aaron; Eric Canales; David Vlahov
Journal:  Health Educ Behav       Date:  2002-06

5.  Improving collaboration between researchers and communities.

Authors:  A Koné; M Sullivan; K D Senturia; N J Chrisman; S J Ciske; J W Krieger
Journal:  Public Health Rep       Date:  2000 Mar-Jun       Impact factor: 2.792

6.  Ethics. Protecting communities in biomedical research.

Authors:  C Weijer; E J Emanuel
Journal:  Science       Date:  2000-08-18       Impact factor: 47.728

7.  Ethical principles for the conduct of human subject research: population-based research and ethics.

Authors:  L Gostin
Journal:  Law Med Health Care       Date:  1991 Fall-Winter

Review 8.  Review of community-based research: assessing partnership approaches to improve public health.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Annu Rev Public Health       Date:  1998       Impact factor: 21.981

9.  The role of community advisory boards: involving communities in the informed consent process.

Authors:  R P Strauss; S Sengupta; S C Quinn; J Goeppinger; C Spaulding; S M Kegeles; G Millett
Journal:  Am J Public Health       Date:  2001-12       Impact factor: 9.308

10.  Collaboration among community members, local health service providers, and researchers in an urban research center in Harlem, New York.

Authors:  S Galea; S H Factor; S Bonner; M Foley; N Freudenberg; M Latka; A G Palermo; D Vlahov
Journal:  Public Health Rep       Date:  2001 Nov-Dec       Impact factor: 2.792

  10 in total
  70 in total

1.  A Twenty-Two-Year-Old Community Advisory Board: Health Research as an Opportunity for Social Change.

Authors:  Anthony J Silvestre; Sandra J Quinn; Charles R Rinaldo
Journal:  J Community Pract       Date:  2010-01-01

Review 2.  Ethical goals of community consultation in research.

Authors:  Neal Dickert; Jeremy Sugarman
Journal:  Am J Public Health       Date:  2005-06-16       Impact factor: 9.308

3.  Recruiting minority men who have sex with men for HIV research: results from a 4-city campaign.

Authors:  Anthony J Silvestre; John B Hylton; Lisette M Johnson; Carmoncelia Houston; Mallory Witt; Lisa Jacobson; David Ostrow
Journal:  Am J Public Health       Date:  2006-05-02       Impact factor: 9.308

Review 4.  A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders.

Authors:  Sheba George; Nelida Duran; Keith Norris
Journal:  Am J Public Health       Date:  2013-12-12       Impact factor: 9.308

5.  The development of the Bronx Community Research Review Board: a pilot feasibility project for a model of community consultation.

Authors:  Francisco Martin del Campo; Joann Casado; Paulette Spencer; Hal Strelnick
Journal:  Prog Community Health Partnersh       Date:  2013

6.  Theory and practice in participatory research: lessons from the Native Elder Care Study.

Authors:  R Turner Goins; Eva Marie Garroutte; Susan Leading Fox; Sarah Dee Geiger; Spero M Manson
Journal:  Gerontologist       Date:  2011-02-03

7.  Defining and Measuring Community Engagement and Community-Engaged Research: Clinical and Translational Science Institutional Practices.

Authors:  Milton Mickey Eder; Eunbyul Evans; Melanie Funes; Hui Hong; Katja Reuter; Syed Ahmed; Karen Calhoun; Giselle Corbie-Smith; Gaurav Dave; Mia DeFino; Eileen Harwood; Anne Kissack; Lawrence C Kleinman; Nina Wallerstein
Journal:  Prog Community Health Partnersh       Date:  2018

8.  An extended model of reasoned action to understand the influence of individual- and network-level factors on African Americans' participation in HIV vaccine research.

Authors:  Paula M Frew; Matthew Archibald; Dazon Dixon Diallo; Su-I Hou; Takeia Horton; Kayshin Chan; Mark J Mulligan; Carlos del Rio
Journal:  Prev Sci       Date:  2010-06

9.  Racial differences in parents' distrust of medicine and research.

Authors:  Kumaravel Rajakumar; Stephen B Thomas; Donald Musa; Donna Almario; Mary A Garza
Journal:  Arch Pediatr Adolesc Med       Date:  2009-02

10.  Challenges of establishing a Community Advisory Board (CAB) in a low-income, low-resource setting: experiences from Bagamoyo, Tanzania.

Authors:  Kafuruki Shubis; Omar Juma; Rahiya Sharifu; Brandt Burgess; Salim Abdulla
Journal:  Health Res Policy Syst       Date:  2009-06-17
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