Literature DB >> 21135081

Impact of death and dying on the personal lives and practices of palliative and hospice care professionals.

Shane Sinclair1.   

Abstract

Background Working within the landscape of death and dying, professionals in palliative and hospice care provide insight into the nature of mortality that may be of benefit to individuals facing the end of life. Much less is known about how these professionals incorporate these experiences into their personal lives and clinical practices. Methods This ethnographic inquiry used semi-structured interviews and participant observation to elicit an in-depth understanding of the impact of death and dying on the personal lives of national key leaders (n = 6) and frontline clinicians (n = 24) involved in end-of-life care in Canada. Analysis of findings occurred in the field through constant comparative method and member checking, with more formal levels of analysis occurring after the data-collection phase. Results Eleven specific themes, organized under three overarching categories (past, present and future), were discovered. Early life experiences with death were a common and prominent feature, serving as a major motivator in participants' career path of end-of-life care. Clinical exposure to death and dying taught participants to live in the present, cultivate a spiritual life, reflect on their own mortality and reflect deeply on the continuity of life. Interpretation Participants reported that their work provided a unique opportunity for them to discover meaning in life through the lessons of their patients, and an opportunity to incorporate these teachings in their own lives. Although Western society has been described as a "death-denying" culture, the participants felt that their frequent exposure to death and dying was largely positive, fostering meaning in the present and curiosity about the continuity of life.

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Mesh:

Year:  2010        PMID: 21135081      PMCID: PMC3033923          DOI: 10.1503/cmaj.100511

Source DB:  PubMed          Journal:  CMAJ        ISSN: 0820-3946            Impact factor:   8.262


  20 in total

1.  Historical and cultural variants on the good death.

Authors:  Tony Walter
Journal:  BMJ       Date:  2003-07-26

2.  Is there such a thing as a good death?

Authors:  Geoffrey Walters
Journal:  Palliat Med       Date:  2004-07       Impact factor: 4.762

3.  The denial of death thesis: sociological critique and implications for palliative care.

Authors:  Camilla Zimmermann; Gary Rodin
Journal:  Palliat Med       Date:  2004-03       Impact factor: 4.762

4.  The importance of spirituality in hospice work: a study of hospice professionals.

Authors:  M B Millison; J R Dudley
Journal:  Hosp J       Date:  1990

5.  Reflexivity in fieldwork: toward a feminist epistemology.

Authors:  J M Anderson
Journal:  Image J Nurs Sch       Date:  1991

6.  Reducing the risk of burnout in end-of-life care settings: the role of daily spiritual experiences and training.

Authors:  Jason M Holland; Robert A Neimeyer
Journal:  Palliat Support Care       Date:  2005-09

7.  Spirituality and the caregiver. Developing an underutilized facet of care.

Authors:  M B Millison
Journal:  Am J Hosp Care       Date:  1988 Mar-Apr

8.  Factors considered important at the end of life by patients, family, physicians, and other care providers.

Authors:  K E Steinhauser; N A Christakis; E C Clipp; M McNeilly; L McIntyre; J A Tulsky
Journal:  JAMA       Date:  2000-11-15       Impact factor: 56.272

9.  The landscape of distress in the terminally ill.

Authors:  Harvey Max Chochinov; Thomas Hassard; Susan McClement; Thomas Hack; Linda J Kristjanson; Mike Harlos; Shane Sinclair; Alison Murray
Journal:  J Pain Symptom Manage       Date:  2009-08-26       Impact factor: 3.612

10.  The experience of hope for informal caregivers of palliative patients.

Authors:  Lorraine F Holtslander; Wendy Duggleby; Allison M Williams; Karen E Wright
Journal:  J Palliat Care       Date:  2005       Impact factor: 2.250

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  21 in total

1.  Caring for dying patients can be a satisfying experience.

Authors:  Pam McGrath; John Kearsley
Journal:  CMAJ       Date:  2010-12-06       Impact factor: 8.262

2.  Relationships between personal attitudes about death and communication with terminally ill patients: How oncology clinicians grapple with mortality.

Authors:  Rachel A Rodenbach; Kyle E Rodenbach; Mohamedtaki A Tejani; Ronald M Epstein
Journal:  Patient Educ Couns       Date:  2015-10-23

Review 3.  Existential distress among healthcare providers caring for patients at the end of life.

Authors:  Hayley Pessin; Natalie Fenn; Ellen Hendriksen; Antonio P DeRosa; Allison Applebaum
Journal:  Curr Opin Support Palliat Care       Date:  2015-03       Impact factor: 2.302

4.  Meaning of work and personal protective factors among palliative care professionals.

Authors:  Beatriz Moreno-Milan; Antonio Cano-Vindel; Pedro Lopez-Dóriga; Leonardo Adrián Medrano; William Breitbart
Journal:  Palliat Support Care       Date:  2019-08

5.  How Internal Medicine Residents Deal with Death and Dying: a Qualitative Study of Transformational Learning and Growth.

Authors:  Halah Ibrahim; Thana Harhara
Journal:  J Gen Intern Med       Date:  2022-02-22       Impact factor: 6.473

6.  An integrative review to identify how nurses practicing in inpatient specialist palliative care units uphold the values of nursing.

Authors:  Sue Moran; Maria Bailey; Owen Doody
Journal:  BMC Palliat Care       Date:  2021-07-16       Impact factor: 3.234

7.  Cultural Considerations in Palliative Care Provision: A Scoping Review of Canadian Literature.

Authors:  Erynn M Monette
Journal:  Palliat Med Rep       Date:  2021-05-20

8.  Insight and Inner Peace in Palliative Care Professionals after an Art Therapy Workshop Focused on Personal Self-Care: A Preliminary Experience.

Authors:  María Arantzamendi; Paula Sapeta; Nadia Collette; Ana Baños Sesma; María Teresa Torres Pérez-Solero; Fernando Iribarren Echarri; Carlos Centeno
Journal:  Palliat Med Rep       Date:  2021-02-08

9.  Patient and healthcare perspectives on the importance and efficacy of addressing spiritual issues within an interdisciplinary bone marrow transplant clinic: a qualitative study.

Authors:  Shane Sinclair; Shelagh McConnell; Shelley Raffin Bouchal; Naree Ager; Reanne Booker; Bert Enns; Tak Fung
Journal:  BMJ Open       Date:  2015-11-27       Impact factor: 2.692

10.  Hospice nurses' emotional challenges in their encounters with the dying.

Authors:  Lina Paola Ingebretsen; Mette Sagbakken
Journal:  Int J Qual Stud Health Well-being       Date:  2016-06-01
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