Literature DB >> 12506961

Cystic fibrosis and the transition to adulthood.

MaryKay Lannon Palmer1, Laura S Boisen.   

Abstract

Cystic fibrosis (CF) has long been thought of as a childhood disease but the life expectancy for those with CF has been steadily on the rise and now reaches well into adulthood. There has been little or no research on the psychosocial impact of CF on becoming an adult. This exploratory, qualitative study examined the perceptions of young adults with CF regarding the impact the disease has had on their lives, especially during the transition from adolescence to adulthood. The findings indicate concerns about health insurance and finances, as well as the achievement of independence and optimism for the future.

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Year:  2002        PMID: 12506961     DOI: 10.1300/J010v36n01_04

Source DB:  PubMed          Journal:  Soc Work Health Care        ISSN: 0098-1389


  6 in total

Review 1.  Health care transitions among youth with disabilities or special health care needs: an ecological approach.

Authors:  Grace Wang; Barbara Burns McGrath; Carolyn Watts
Journal:  J Pediatr Nurs       Date:  2009-08-22       Impact factor: 2.145

2.  Hoping to live a "normal" life whilst living with unpredictable health and fear of death: impact of cystic fibrosis on young adults.

Authors:  Lorraine Higham; Shenaz Ahmed; Mushtaq Ahmed
Journal:  J Genet Couns       Date:  2012-12-14       Impact factor: 2.537

3.  Relationships among health-related quality of life, pulmonary health, and newborn screening for cystic fibrosis.

Authors:  Audrey Tluczek; Tara Becker; Anita Laxova; Adam Grieve; Caroline N Racine Gilles; Michael J Rock; William M Gershan; Christopher G Green; Philip M Farrell
Journal:  Chest       Date:  2010-11-24       Impact factor: 9.410

4.  Young adults with MSUD and their transition to adulthood: psychosocial issues.

Authors:  Wendy Packman; Indira Mehta; Samantha Rafie; Jayanthi Mehta; Mariana Naldi; Kim Hart Mooney
Journal:  J Genet Couns       Date:  2012-02-17       Impact factor: 2.537

5.  Living with primary ciliary dyskinesia: a prospective qualitative study of knowledge sharing, symptom concealment, embarrassment, mistrust, and stigma.

Authors:  Simon Whalley; I C McManus
Journal:  BMC Pulm Med       Date:  2006-10-13       Impact factor: 3.317

6.  Understanding the relationship transitions and associated end of life clinical needs of young adults with life-limiting illnesses: A triangulated longitudinal qualitative study.

Authors:  Bridget Johnston; Divya Jindal-Snape; Jan Pringle; Libby Gold; Jayne Grant; Raymond Dempsey; Ros Scott; Pat Carragher
Journal:  SAGE Open Med       Date:  2016-10-13
  6 in total

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