Literature DB >> 20878835

The supportive care needs survey for partners and caregivers of cancer survivors: development and psychometric evaluation.

Afaf Girgis1, Sylvie Lambert, Christophe Lecathelinais.   

Abstract

OBJECTIVE: Begin to test the psychometric properties of a measure designed to capture the multi-dimensional supportive care needs of cancer caregivers: the Supportive Care Needs Survey-Partners and Caregivers (SCNS-P&C).
METHODS: Draft SCNS-P&C items were developed with reference to the literature and existing instruments and reviewed for face and content validity. The final SCNS-P&C was then completed by 547 cancer caregivers. Psychometric analyses conducted included principal factor analysis, internal consistency, and construct validity through the known-group approach.
RESULTS: Factor analysis revealed four domains of needs: Health Care Service Needs, Psychological and Emotional Needs, Work and Social Needs, and Information Needs, with Cronbach's α coefficients ranging from 0.88 to 0.94. Construct validity of the SCNS-P&C was partially supported. Across all domains, individuals with anxiety or depression were more likely to report at least one unmet moderate or high need in comparison to non-anxious or non-depressed participants. A greater proportion of younger participants experienced at least one unmet moderate or high need within the Psychological and Emotional Needs and Work and Social Needs domains. Proportion of reported unmet needs varied across cancer types for the Health Care Service Needs and Information Needs domains.
CONCLUSIONS: The SCNS-P&C has the potential to comprehensively assess the range of caregivers' supportive care needs, across the illness trajectory. Analyses supported the tool's internal consistency and construct validity. The SCNS-P&C can be used by researchers and clinicians to determine caregivers' unmet needs, prioritize health-care resources, and tailor supportive cancer care services accordingly.
Copyright © 2010 John Wiley & Sons, Ltd.

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Mesh:

Year:  2010        PMID: 20878835     DOI: 10.1002/pon.1740

Source DB:  PubMed          Journal:  Psychooncology        ISSN: 1057-9249            Impact factor:   3.894


  37 in total

1.  Walking a mile in their shoes: anxiety and depression among partners and caregivers of cancer survivors at 6 and 12 months post-diagnosis.

Authors:  Sylvie D Lambert; Afaf Girgis; Christophe Lecathelinais; Fiona Stacey
Journal:  Support Care Cancer       Date:  2012-06-03       Impact factor: 3.603

2.  Feasibility Testing and Refinement of a Supportive Educational Intervention for Carers of Patients with High-Grade Glioma - a Pilot Study.

Authors:  Georgia K B Halkett; Elizabeth A Lobb; Lisa Miller; Thérèse Shaw; Rachael Moorin; Anne Long; Anne King; Jenny Clarke; Stephanie Fewster; Anna K Nowak
Journal:  J Cancer Educ       Date:  2018-10       Impact factor: 2.037

3.  Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers.

Authors:  Michael T Halpern; Mallorie H Fiero; Melanie L Bell
Journal:  Qual Life Res       Date:  2017-02-16       Impact factor: 4.147

4.  Do carer's levels of unmet needs change over time when caring for patients diagnosed with high-grade glioma and how are these needs correlated with distress?

Authors:  G K B Halkett; E A Lobb; T Shaw; M M Sinclair; L Miller; E Hovey; A K Nowak
Journal:  Support Care Cancer       Date:  2017-08-14       Impact factor: 3.603

5.  Burden and happiness in head and neck cancer carers: the role of supportive care needs.

Authors:  Paul Hanly; Rebecca Maguire; Myles Balfe; Philip Hyland; Aileen Timmons; Eleanor O'Sullivan; Phyllis Butow; Linda Sharp
Journal:  Support Care Cancer       Date:  2016-05-16       Impact factor: 3.603

6.  Enhancing the experience of carers in the chemotherapy outpatient setting: an exploratory randomised controlled trial to test impact, acceptability and feasibility of a complex intervention co-designed by carers and staff.

Authors:  V Tsianakas; G Robert; A Richardson; R Verity; C Oakley; T Murrells; M Flynn; E Ream
Journal:  Support Care Cancer       Date:  2015-03-06       Impact factor: 3.603

7.  The unmet supportive care needs-what advanced lung cancer patients' caregivers need and related factors.

Authors:  Shu-Ching Chen; Shiuan-Chen Chiou; Chong-Jen Yu; Yun-Hsiang Lee; Wei-Yu Liao; Pei-Yin Hsieh; Sin-Yuan Jhang; Yeur-Hur Lai
Journal:  Support Care Cancer       Date:  2016-02-13       Impact factor: 3.603

Review 8.  Head and Neck Cancer Survivorship Care: A Review of the Current Guidelines and Remaining Unmet Needs.

Authors:  Nhu-Tram A Nguyen; Jolie Ringash
Journal:  Curr Treat Options Oncol       Date:  2018-07-09

9.  A telephone outcall program to support caregivers of people diagnosed with cancer: utility, changes in levels of distress, and unmet needs.

Authors:  Leila Heckel; Kate M Fennell; Liliana Orellana; Anna Boltong; Monica Byrnes; Patricia M Livingston
Journal:  Support Care Cancer       Date:  2018-05-15       Impact factor: 3.603

10.  Assessing patient-caregiver communication in cancer--a psychometric validation of the Cancer Communication Assessment Tool (CCAT-PF) in a German sample.

Authors:  Markus W Haun; Halina Sklenarova; Eva C Winkler; Johannes Huber; Michael Thomas; Laura A Siminoff; Michael Woll; Anette Brechtel; Wolfgang Herzog; Mechthild Hartmann
Journal:  Support Care Cancer       Date:  2014-04-11       Impact factor: 3.603

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