Literature DB >> 20826868

Why do patients want information if not to take part in decision making?

Neil C Manson1.   

Abstract

There is empirical evidence that many patients want information about treatment options even though they do not want to take a full part in decision-making about treatment. Such evidence may have considerable ethical implications but is methodologically problematic. It is argued here that, in fact, it is not at all surprising that patients' informational interests should be separable from (and often stronger than) their interests in decision-making. A number of different reasons for wanting information are offered, some to do with the content of information; some with the process, others with the fact or occasion of informing. This philosophical clarification leads to some suggestions for further empirical study.

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Year:  2010        PMID: 20826868     DOI: 10.1136/jme.2010.036491

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  12 in total

1.  Discussing molecular testing in oncology care: Comparing patient and physician information preferences.

Authors:  Ana P M Pinheiro; Rachel H Pocock; Jeffrey M Switchenko; Margie D Dixon; Walid L Shaib; Suresh S Ramalingam; Rebecca D Pentz
Journal:  Cancer       Date:  2017-01-31       Impact factor: 6.860

2.  Education and parental involvement in decision-making about newborn screening: understanding goals to clarify content.

Authors:  Beth K Potter; Holly Etchegary; Stuart G Nicholls; Brenda J Wilson; Samantha M Craigie; Makda H Araia
Journal:  J Genet Couns       Date:  2014-11-18       Impact factor: 2.537

3.  Unpacking cancer patients' preferences for information about their care.

Authors:  Erin M Ellis; Ashley Varner
Journal:  J Psychosoc Oncol       Date:  2017-11-21

4.  Health research participants' preferences for receiving research results.

Authors:  Christopher R Long; M Kathryn Stewart; Thomas V Cunningham; T Scott Warmack; Pearl A McElfish
Journal:  Clin Trials       Date:  2016-08-24       Impact factor: 2.486

5.  Communicating with clinicians: the experiences of surrogate decision-makers for hospitalized older adults.

Authors:  Alexia M Torke; Sandra Petronio; Christianna E Purnell; Greg A Sachs; Paul R Helft; Christopher M Callahan
Journal:  J Am Geriatr Soc       Date:  2012-08-06       Impact factor: 5.562

6.  Expected survival with and without second-line palliative chemotherapy: who wants to know?

Authors:  Linda J M Oostendorp; Petronella B Ottevanger; Agnes J van de Wouw; Ivonne J H Schoenaker; Hiltje de Graaf; Winette T A van der Graaf; Peep F M Stalmeier
Journal:  Health Expect       Date:  2014-10-10       Impact factor: 3.377

7.  What potential research participants want to know about research: a systematic review.

Authors:  Helen Michelle Kirkby; Melanie Calvert; Heather Draper; Thomas Keeley; Sue Wilson
Journal:  BMJ Open       Date:  2012-05-30       Impact factor: 2.692

8.  Factors associated with knowledge of and satisfaction with newborn screening education: a survey of mothers.

Authors:  Makda H Araia; Brenda J Wilson; Pranesh Chakraborty; Kimberly Gall; Christina Honeywell; Jennifer Milburn; Tim Ramsay; Beth K Potter
Journal:  Genet Med       Date:  2012-08-16       Impact factor: 8.822

9.  Cardiologist and cardiac surgeon view on decision-making in prosthetic aortic valve selection: does profession matter?

Authors:  N M Korteland; J Kluin; R J M Klautz; J W Roos-Hesselink; M I M Versteegh; A J J C Bogers; J J M Takkenberg
Journal:  Neth Heart J       Date:  2014-08       Impact factor: 2.380

10.  How psychotherapists handle treatment errors -- an ethical analysis.

Authors:  Irina Medau; Ralf J Jox; Stella Reiter-Theil
Journal:  BMC Med Ethics       Date:  2013-12-09       Impact factor: 2.652

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