Literature DB >> 20818548

"Human non-subjects research": privacy and compliance.

Kyle Bertram Brothers1, Ellen Wright Clayton.   

Abstract

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Year:  2010        PMID： 20818548     DOI： 10.1080/15265161.2010.492891

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  13 in total

Review 1.  Return of individual research results and incidental findings: facing the challenges of translational science.

Authors:  Susan M Wolf
Journal:  Annu Rev Genomics Hum Genet       Date:  2013-07-15       Impact factor: 8.929

2.  Don't take your EHR to heaven, donate it to science: legal and research policies for EHR post mortem.

Authors:  Vojtech Huser; James J Cimino
Journal:  J Am Med Inform Assoc       Date:  2013-08-21       Impact factor: 4.497

3.  Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide.

Authors:  Susan M Wolf; Wylie Burke; Barbara A Koenig
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

4.  Patient awareness and approval for an opt-out genomic biorepository.

Authors:  Kyle B Brothers; Mathew J Westbrook; M Frances Wright; John A Myers; Daniel R Morrison; Jennifer L Madison; Jill M Pulley; Ellen Wright Clayton
Journal:  Per Med       Date:  2013-06       Impact factor: 2.512

5.  How anonymous is 'anonymous'? Some suggestions towards a coherent universal coding system for genetic samples.

Authors:  Harald Schmidt; Shawneequa Callier
Journal:  J Med Ethics       Date:  2012-02-16       Impact factor: 2.903

6.  Research ethics. Research practice and participant preferences: the growing gulf.

Authors:  S B Trinidad; S M Fullerton; E J Ludman; G P Jarvik; E B Larson; W Burke
Journal:  Science       Date:  2011-01-21       Impact factor: 47.728

7.  Biobanking in pediatrics: the human nonsubjects approach.

Authors:  Kyle Bertram Brothers
Journal:  Per Med       Date:  2011-01       Impact factor: 2.512

8.  Inclusion of pediatric samples in an opt-out biorepository linking DNA to de-identified medical records: pediatric BioVU.

Authors:  T L McGregor; S L Van Driest; K B Brothers; E A Bowton; L J Muglia; D M Roden
Journal:  Clin Pharmacol Ther       Date:  2012-11-21       Impact factor: 6.875

9.  Secondary use of clinical data: the Vanderbilt approach.

Authors:  Ioana Danciu; James D Cowan; Melissa Basford; Xiaoming Wang; Alexander Saip; Susan Osgood; Jana Shirey-Rice; Jacqueline Kirby; Paul A Harris
Journal:  J Biomed Inform       Date:  2014-02-14       Impact factor: 6.317

10.  Parental Perspectives on a Pediatric Human Non-Subjects Biobank.

Authors:  Kyle B Brothers; Ellen Wright Clayton
Journal:  AJOB Prim Res       Date:  2012-06-19
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