Literature DB >> 20629765

Why values elicitation techniques enable people to make informed decisions about cancer trial participation.

Purva Abhyankar1, Hilary L Bekker, Barbara A Summers, Galina Velikova.   

Abstract

BACKGROUND: Decision aids help patients make informed treatment decisions. Values clarification (VC) techniques are part of decision aids that help patients assimilate the information with their personal values. There is little evidence that these techniques contribute to enhanced decision making over and above the provision of good quality information.
OBJECTIVES: To assess whether VC techniques are active ingredients in enhancing informed decision making and explain how and why they work.
METHODS: Participants were randomly assigned to one of three groups: (i) information only, (ii) information plus implicit task, (iii) information plus explicit task. Thirty healthy women from a UK University participated by making a hypothetical choice between taking part in a clinical trial and having the standard treatment for breast cancer. Verbal protocols were elicited by think-aloud method and content analysed to assess informed decision making; a questionnaire was completed after the decision assessing decision preference, perceptions of decisional conflict and ambivalence. Data were analysed using multivariate statistics.
FINDINGS: No participants changed their decision preference as a result of the VC techniques. Women in the explicit VC group evaluated more information in accord with personal values, expressed lower ambivalence, decisional uncertainty and greater clarity of personal values than those in the implicit VC and control groups. Feelings of ambivalence about both options were related to decisional conflict.
CONCLUSION: Explicit VC techniques are likely to be active ingredients in decision aids. They work by enabling people to deliberate about the decision information in accord with their personal values, which is associated with a better decision experience.
© 2010 Blackwell Publishing Ltd.

Entities:  

Mesh:

Year:  2011        PMID: 20629765      PMCID: PMC5057171          DOI: 10.1111/j.1369-7625.2010.00615.x

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  29 in total

1.  Decision technology.

Authors:  W Edwards; B Fasolo
Journal:  Annu Rev Psychol       Date:  2001       Impact factor: 24.137

2.  Informed decision making: an annotated bibliography and systematic review.

Authors:  H Bekker; J G Thornton; C M Airey; J B Connelly; J Hewison; M B Robinson; J Lilleyman; M MacIntosh; A J Maule; S Michie; A D Pearman
Journal:  Health Technol Assess       Date:  1999       Impact factor: 4.014

3.  Treatment decision aids: conceptual issues and future directions.

Authors:  Cathy Charles; Amiram Gafni; Tim Whelan; Mary Ann O'Brien
Journal:  Health Expect       Date:  2005-06       Impact factor: 3.377

4.  A new readability yardstick.

Authors:  R FLESCH
Journal:  J Appl Psychol       Date:  1948-06

5.  The gradual threshold model of ambivalence: relating the positive and negative bases of attitudes to subjective ambivalence.

Authors:  J R Priester; R E Petty
Journal:  J Pers Soc Psychol       Date:  1996-09

6.  Validation of a decisional conflict scale.

Authors:  A M O'Connor
Journal:  Med Decis Making       Date:  1995 Jan-Mar       Impact factor: 2.583

Review 7.  Patient preference for cancer therapy: an overview of measurement approaches.

Authors:  A M Stiggelbout; J C de Haes
Journal:  J Clin Oncol       Date:  2001-01-01       Impact factor: 44.544

8.  Conflict monitoring in dual process theories of thinking.

Authors:  Wim De Neys; Tamara Glumicic
Journal:  Cognition       Date:  2007-07-12

9.  Understanding why decision aids work: linking process with outcome.

Authors:  Hilary L Bekker; Jenny Hewison; Jim G Thornton
Journal:  Patient Educ Couns       Date:  2003-07

10.  Sequential docetaxel as adjuvant chemotherapy for early breast cancer (TACT): an open-label, phase III, randomised controlled trial.

Authors:  Paul Ellis; Peter Barrett-Lee; Lindsay Johnson; David Cameron; Andrew Wardley; Susan O'Reilly; Mark Verrill; Ian Smith; John Yarnold; Robert Coleman; Helena Earl; Peter Canney; Chris Twelves; Christopher Poole; David Bloomfield; Penelope Hopwood; Stephen Johnston; Mitchell Dowsett; John M S Bartlett; Ian Ellis; Clare Peckitt; Emma Hall; Judith M Bliss
Journal:  Lancet       Date:  2009-05-16       Impact factor: 79.321

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  17 in total

1.  Shared decision making: vision to reality.

Authors:  Michael Barry; Carrie Levin; Morgan MacCuaig; Al Mulley; Karen Sepucha
Journal:  Health Expect       Date:  2011-03       Impact factor: 3.377

2.  Does Patient Preference Measurement in Decision Aids Improve Decisional Conflict? A Randomized Trial in Men with Prostate Cancer.

Authors:  Joseph D Shirk; Catherine M Crespi; Josemanuel D Saucedo; Sylvia Lambrechts; Ely Dahan; Robert Kaplan; Christopher Saigal
Journal:  Patient       Date:  2017-12       Impact factor: 3.883

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Authors:  Linda Fleisher; Dominique G Ruggieri; Suzanne M Miller; Sharon Manne; Terrance Albrecht; Joanne Buzaglo; Michael A Collins; Michael Katz; Tyler G Kinzy; Tasnuva Liu; Cheri Manning; Ellen Specker Charap; Jennifer Millard; Dawn M Miller; David Poole; Stephanie Raivitch; Nancy Roach; Eric A Ross; Neal J Meropol
Journal:  Patient Educ Couns       Date:  2014-04-21

Review 4.  Strategies to improve recruitment to randomised trials.

Authors:  Shaun Treweek; Marie Pitkethly; Jonathan Cook; Cynthia Fraser; Elizabeth Mitchell; Frank Sullivan; Catherine Jackson; Tyna K Taskila; Heidi Gardner
Journal:  Cochrane Database Syst Rev       Date:  2018-02-22

5.  Decision aids for randomised controlled trials: a qualitative exploration of stakeholders' views.

Authors:  Katie Gillies; Zoë C Skea; Marion K Campbell
Journal:  BMJ Open       Date:  2014-08-19       Impact factor: 2.692

Review 6.  Decision aids for people considering taking part in clinical trials.

Authors:  Katie Gillies; Seonaidh C Cotton; Jamie C Brehaut; Mary C Politi; Zoe Skea
Journal:  Cochrane Database Syst Rev       Date:  2015-11-27

7.  Making a decision about trial participation: the feasibility of measuring deliberation during the informed consent process for clinical trials.

Authors:  Katie Gillies; Glyn Elwyn; Jonathan Cook
Journal:  Trials       Date:  2014-07-30       Impact factor: 2.279

8.  Values clarification in a decision aid about fertility preservation: does it add to information provision?

Authors:  Mirjam M Garvelink; Moniek M ter Kuile; Anne M Stiggelbout; Marieke de Vries
Journal:  BMC Med Inform Decis Mak       Date:  2014-08-09       Impact factor: 2.796

9.  Recognizing difficult trade-offs: values and treatment preferences for end-of-life care in a multi-site survey of adult patients in family practices.

Authors:  Michelle Howard; Nick Bansback; Amy Tan; Doug Klein; Carrie Bernard; Doris Barwich; Peter Dodek; Aman Nijjar; Daren K Heyland
Journal:  BMC Med Inform Decis Mak       Date:  2017-12-06       Impact factor: 2.796

10.  Patient information leaflets (PILs) for UK randomised controlled trials: a feasibility study exploring whether they contain information to support decision making about trial participation.

Authors:  Katie Gillies; Wan Huang; Zoë Skea; Jamie Brehaut; Seonaidh Cotton
Journal:  Trials       Date:  2014-02-18       Impact factor: 2.279

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