Literature DB >> 15860052

Treatment decision aids: conceptual issues and future directions.

Cathy Charles1, Amiram Gafni, Tim Whelan, Mary Ann O'Brien.   

Abstract

BACKGROUND: In the last 10 years, there has been a major growth in the development of treatment decision aids. Multiple goals have been identified for these tools. However, the rationale for and meaning of these goals at the conceptual level, the mechanisms through which decision aids are intended to achieve these goals, and value assumptions underlying the design of aids and associated values clarification exercises have often not been made explicit.
OBJECTIVE: In this paper, we present ideas to help inform the future development and evaluation of decision aids.
RESULTS: We suggest, (i) that the appropriateness of using any decision aid be assessed within the context of the wider decision-making encounter within which it is embedded; (ii) that goal setting activities drive measurement activities and not the other way round; (iii) that the rationale for and meaning of goals at the conceptual level, and mechanisms through which they are intended to have an impact be clearly thought through and made explicit; (iv) that value assumptions underlying both decision aids and associated values clarification exercises be communicated to patients; (v) that taxonomies developed and used to classify various types of decision aids include a section on value assumptions underlying each tool; (vi) that further debate and discussion take place on the role of explicit values clarification exercises as a component of or adjunct to treatment decision aids and the feasibility of implementing valid measures.
CONCLUSION: Further debate and discussion is needed on the above issues.

Entities:  

Mesh:

Year:  2005        PMID: 15860052      PMCID: PMC5060284          DOI: 10.1111/j.1369-7625.2005.00325.x

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  33 in total

1.  Standard consultations are not enough to ensure decision quality regarding preference-sensitive options.

Authors:  Annette M O'Connor; Albert G Mulley; John E Wennberg
Journal:  J Natl Cancer Inst       Date:  2003-04-16       Impact factor: 13.506

2.  The role of patients' meta-preferences in the design and evaluation of decision support systems.

Authors:  Jack Dowie
Journal:  Health Expect       Date:  2002-03       Impact factor: 3.377

3.  Validation of a decisional conflict scale.

Authors:  A M O'Connor
Journal:  Med Decis Making       Date:  1995 Jan-Mar       Impact factor: 2.583

4.  A decision aid for women considering hormone therapy after menopause: decision support framework and evaluation.

Authors:  A M O'Connor; P Tugwell; G A Wells; T Elmslie; E Jolly; G Hollingworth; R McPherson; H Bunn; I Graham; E Drake
Journal:  Patient Educ Couns       Date:  1998-03

5.  Do potential patients prefer tissue plasminogen activator (TPA) over streptokinase (SK)? An evaluation of the risks and benefits of TPA from the patient's perspective.

Authors:  D K Heyland; A Gafni; M A Levine
Journal:  J Clin Epidemiol       Date:  2000-09       Impact factor: 6.437

6.  Randomised controlled trial of an interactive multimedia decision aid on hormone replacement therapy in primary care.

Authors:  E Murray; H Davis; S S Tai; A Coulter; A Gray; A Haines
Journal:  BMJ       Date:  2001-09-01

7.  Lessons learned from the Decision Board: a unique and evolving decision aid.

Authors:  Tim Whelan; Amiram Gafni; Cathy Charles; Mark Levine
Journal:  Health Expect       Date:  2000-03       Impact factor: 3.377

8.  Evaluating decision aids--where next?

Authors:  Alicia O'Cathain; Kate J Thomas
Journal:  Health Expect       Date:  2004-06       Impact factor: 3.377

9.  Preliminary validation of the Satisfaction With Decision scale with depressed primary care patients.

Authors:  Celia E Wills; Margaret Holmes-Rovner
Journal:  Health Expect       Date:  2003-06       Impact factor: 3.377

10.  Validation of a decision regret scale.

Authors:  Jamie C Brehaut; Annette M O'Connor; Timothy J Wood; Thomas F Hack; Laura Siminoff; Elisa Gordon; Deb Feldman-Stewart
Journal:  Med Decis Making       Date:  2003 Jul-Aug       Impact factor: 2.583

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  34 in total

Review 1.  The importance and complexity of regret in the measurement of 'good' decisions: a systematic review and a content analysis of existing assessment instruments.

Authors:  Natalie Joseph-Williams; Adrian Edwards; Glyn Elwyn
Journal:  Health Expect       Date:  2010-09-23       Impact factor: 3.377

2.  Shared decision-making: the debate continues.

Authors:  Angela Coulter
Journal:  Health Expect       Date:  2005-06       Impact factor: 3.377

3.  Can I accurately predict the impact of an illness and its treatment on my future subjective well-being? A complex question that does not have a simple answer.

Authors:  Cathy Charles; Amiram Gafni
Journal:  Health Expect       Date:  2006-09       Impact factor: 3.377

4.  Communicating with parents of high-risk infants in neonatal intensive care.

Authors:  Wendy Yee; Sue Ross
Journal:  Paediatr Child Health       Date:  2006-05       Impact factor: 2.253

5.  Supporting participation in clinical research: decision aids for trial recruitment?

Authors:  Vikki Entwistle
Journal:  Health Expect       Date:  2008-09       Impact factor: 3.377

6.  An intervention to promote patient participation and self-management in long term conditions: development and feasibility testing.

Authors:  Joanne Protheroe; Tom Blakeman; Peter Bower; Carolyn Chew-Graham; Anne Kennedy
Journal:  BMC Health Serv Res       Date:  2010-07-14       Impact factor: 2.655

7.  Health innovations in patient decision support: Bridging the gaps and challenges.

Authors:  Chirk Jenn Ng; Yew Kong Lee; Ping Yein Lee; Khatijah Lim Abdullah
Journal:  Australas Med J       Date:  2013-02-28

8.  The impact of thyroid cancer and post-surgical radioactive iodine treatment on the lives of thyroid cancer survivors: a qualitative study.

Authors:  Anna M Sawka; David P Goldstein; James D Brierley; Richard W Tsang; Lorne Rotstein; Shereen Ezzat; Sharon Straus; Susan R George; Susan Abbey; Gary Rodin; Mary Ann O'Brien; Amiram Gafni; Lehana Thabane; Jeannette Goguen; Asima Naeem; Lilian Magalhaes
Journal:  PLoS One       Date:  2009-01-14       Impact factor: 3.240

9.  MATRIX - development and feasibility of a guide for quality assessment of patient decision aids.

Authors:  Matthias Lenz; Jürgen Kasper
Journal:  Psychosoc Med       Date:  2007-08-29

10.  Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi).

Authors:  Glyn Elwyn; Annette M O'Connor; Carol Bennett; Robert G Newcombe; Mary Politi; Marie-Anne Durand; Elizabeth Drake; Natalie Joseph-Williams; Sara Khangura; Anton Saarimaki; Stephanie Sivell; Mareike Stiel; Steven J Bernstein; Nananda Col; Angela Coulter; Karen Eden; Martin Härter; Margaret Holmes Rovner; Nora Moumjid; Dawn Stacey; Richard Thomson; Tim Whelan; Trudy van der Weijden; Adrian Edwards
Journal:  PLoS One       Date:  2009-03-04       Impact factor: 3.240

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