Literature DB >> 2061787

Does "telling" less protect more? Relationships among age, information disclosure, and what children with cancer see and feel.

C J Claflin1, O A Barbarin.   

Abstract

Parents report telling young children less about the diagnosis, treatment, and prognosis of cancer than older children and adolescents. This is often based on the desire to spare children from being overwhelmed. 43 children diagnosed with cancer reported on information disclosed to them at diagnosis, their causal attributions, illness-related stress, and coping strategies. Consistent with parental reports, children under 9 years (n = 18) were told less than children 9-14 years (n = 15) and adolescents (n = 10). Young children's reports of illness impact differed from older children and adolescents only with respect to school and social domains. Younger children reported fewer cognitive strategies than older children and adolescents. Even though young children were told much less than older children they reported similar levels of distress. This suggests that nondisclosure fails to mask the salient and distressing aspects of the illness.

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Mesh:

Year:  1991        PMID: 2061787     DOI: 10.1093/jpepsy/16.2.169

Source DB:  PubMed          Journal:  J Pediatr Psychol        ISSN: 0146-8693


  24 in total

Review 1.  Why tell asymptomatic children of the risk of an adult-onset disease in the family but not test them for it?

Authors:  P J Malpas
Journal:  J Med Ethics       Date:  2006-11       Impact factor: 2.903

2.  Barriers to pain management among adolescents with cancer.

Authors:  Suzanne Ameringer
Journal:  Pain Manag Nurs       Date:  2009-09-12       Impact factor: 1.929

3.  Ethical issues concerning disclosures of HIV diagnoses to perinatally infected children and adolescents.

Authors:  Robert Klitzman; Stephanie Marhefka; Claude Mellins; Lori Wiener
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4.  The Client's Perspective of Genetic Counseling-A Grounded Theory Study.

Authors:  H Skirton
Journal:  J Genet Couns       Date:  2001-08       Impact factor: 2.537

5.  Changing methods of disclosure. Literature review of disclosure to children with terminal illnesses, including HIV.

Authors:  G Anita Heeren
Journal:  Innovation (Abingdon)       Date:  2011

6.  Psychosocial Outcomes of Sharing a Diagnosis of Cancer with a Pediatric Patient.

Authors:  Haya Raz; Nili Tabak; Shulamith Kreitler
Journal:  Front Pediatr       Date:  2016-07-20       Impact factor: 3.418

Review 7.  Prognostic Disclosures to Children: A Historical Perspective.

Authors:  Bryan A Sisk; Myra Bluebond-Langner; Lori Wiener; Jennifer Mack; Joanne Wolfe
Journal:  Pediatrics       Date:  2016-08-25       Impact factor: 7.124

8.  Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents.

Authors:  Bridget Young; Mary Dixon-Woods; Kate C Windridge; David Heney
Journal:  BMJ       Date:  2003-02-08

9.  Clinicians' routine use of non-disclosure: prioritizing "protection" over the information needs of adolescents with cancer.

Authors:  Ignasi Clemente
Journal:  Can J Nurs Res       Date:  2007-12

10.  A tale worth telling: the impact of the diagnosis experience on disclosure of genetic disorders.

Authors:  J Goodwin; K Schoch; V Shashi; S R Hooper; O Morad; M Zalevsky; D Gothelf; L E Campbell
Journal:  J Intellect Disabil Res       Date:  2014-07-25
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