Literature DB >> 20536538

'What difference does it make?' Finding evidence of the impact of mental health service user researchers on research into the experiences of detained psychiatric patients.

Steven Gillard1, Rohan Borschmann, Kati Turner, Norman Goodrich-Purnell, Kathleen Lovell, Mary Chambers.   

Abstract

BACKGROUND: Interest in the involvement of members of the public in health services research is increasingly focussed on evaluation of the impact of involvement on the research process and the production of knowledge about health. Service user involvement in mental health research is well-established, yet empirical studies into the impact of involvement are lacking.
OBJECTIVE: To investigate the potential to provide empirical evidence of the impact of service user researchers (SURs) on the research process.
DESIGN: The study uses a range of secondary analyses of interview transcripts from a qualitative study of the experiences of psychiatric patients detained under the Mental Health Act (1983) to compare the way in which SURs and conventional university researchers (URs) conduct and analyse qualitative interviews.
RESULTS: Analyses indicated some differences in the ways in which service user- and conventional URs conducted qualitative interviews. SURs were much more likely to code (analyse) interview transcripts in terms of interviewees' experiences and feelings, while conventional URs coded the same transcripts largely in terms of processes and procedures related to detention. The limitations of a secondary analysis based on small numbers of researchers are identified and discussed.
CONCLUSIONS: The study demonstrates the potential to develop a methodologically robust approach to evaluate empirically the impact of SURs on research process and findings, and is indicative of the potential benefits of collaborative research for informing evidence-based practice in mental health services.

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Mesh:

Year:  2010        PMID: 20536538      PMCID: PMC5060533          DOI: 10.1111/j.1369-7625.2010.00596.x

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  14 in total

1.  Harnessing expertise: involving peer interviewers in qualitative research with hard-to-reach populations.

Authors:  Eva Elliott; Alison J Watson; Ursula Harries
Journal:  Health Expect       Date:  2002-06       Impact factor: 3.377

Review 2.  Involving users in the delivery and evaluation of mental health services: systematic review.

Authors:  Emma L Simpson; Allan O House
Journal:  BMJ       Date:  2002-11-30

Review 3.  Consumer involvement in health research: a review and research agenda.

Authors:  Jonathan Boote; Rosemary Telford; Cindy Cooper
Journal:  Health Policy       Date:  2002-08       Impact factor: 2.980

4.  Matrix analysis as a complementary analytic strategy in qualitative inquiry.

Authors:  Jennifer Bates Averill
Journal:  Qual Health Res       Date:  2002-07

5.  [Mental health service user involvement in therapeutic and service delivery decisions: professional service staff appear optimistic].

Authors:  Ingrid Sibitz; Hemma Swoboda; Beate Schrank; Stefan Priebe; Michaela Amering
Journal:  Psychiatr Prax       Date:  2007-11-06

6.  Developing service user involvement in the South Korean disability services: lessons from the experience of community care policy and practice in UK.

Authors:  Yong Deug Kim; Liz Ross
Journal:  Health Soc Care Community       Date:  2008-03

7.  [User involvement in the Danish health care sector].

Authors:  Morten Freil; Janne Lehmann Knudsen
Journal:  Ugeskr Laeger       Date:  2009-05-11

Review 8.  Patients' perspectives on electroconvulsive therapy: systematic review.

Authors:  Diana Rose; Pete Fleischmann; Til Wykes; Morven Leese; Jonathan Bindman
Journal:  BMJ       Date:  2003-06-21

Review 9.  Quality improvement report: Improving design and conduct of randomised trials by embedding them in qualitative research: ProtecT (prostate testing for cancer and treatment) study. Commentary: presenting unbiased information to patients can be difficult.

Authors:  Jenny Donovan; Nicola Mills; Monica Smith; Lucy Brindle; Ann Jacoby; Tim Peters; Stephen Frankel; David Neal; Freddie Hamdy
Journal:  BMJ       Date:  2002-10-05

10.  Men's accounts of depression: reconstructing or resisting hegemonic masculinity?

Authors:  Carol Emslie; Damien Ridge; Sue Ziebland; Kate Hunt
Journal:  Soc Sci Med       Date:  2005-11-14       Impact factor: 4.634

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  34 in total

1.  Involving service users in qualitative analysis: approaches and assessment.

Authors:  Vikki A Entwistle
Journal:  Health Expect       Date:  2010-06       Impact factor: 3.377

2.  Factors Supporting the Employment of Young Adult Peer Providers: Perspectives of Peers and Supervisors.

Authors:  Jonathan Delman; Vanessa V Klodnick
Journal:  Community Ment Health J       Date:  2016-10-22

Review 3.  'The missing links': understanding how context and mechanism influence the impact of public involvement in research.

Authors:  Kristina Staley; Sarah A Buckland; Helen Hayes; Maryrose Tarpey
Journal:  Health Expect       Date:  2012-10-29       Impact factor: 3.377

4.  Life in acute mental health settings: experiences and perceptions of service users and nurses.

Authors:  D Rose; J Evans; C Laker; T Wykes
Journal:  Epidemiol Psychiatr Sci       Date:  2013-12-16       Impact factor: 6.892

5.  An exercise intervention for people with serious mental illness: Findings from a qualitative data analysis using participatory theme elicitation.

Authors:  Jade Yap; Claire McCartan; Gavin Davidson; Chris White; Liam Bradley; Paul Webb; Jennifer Badham; Gavin Breslin; Paul Best
Journal:  Health Expect       Date:  2020-10-09       Impact factor: 3.377

6.  Expectations of new treatment in rheumatoid arthritis: developing a patient-generated questionnaire.

Authors:  Darija Hofmann; Fowzia Ibrahim; Diana Rose; David L Scott; Andrew Cope; Til Wykes; Heidi Lempp
Journal:  Health Expect       Date:  2013-04-25       Impact factor: 3.377

7.  Measuring the impact of participatory research in psychiatry: How the search for epistemic justifications obscures ethical considerations.

Authors:  Phoebe Friesen; Sapfo Lignou; Mark Sheehan; Ilina Singh
Journal:  Health Expect       Date:  2019-12-18       Impact factor: 3.318

Review 8.  Designed to Clash? Reflecting on the Practical, Personal, and Structural Challenges of Collaborative Research in Psychiatry.

Authors:  Timo Beeker; Rosa Kato Glück; Jenny Ziegenhagen; Lena Göppert; Patrick Jänchen; Helene Krispin; Julian Schwarz; Sebastian von Peter
Journal:  Front Psychiatry       Date:  2021-07-07       Impact factor: 4.157

9.  Multiperspective and Multimethod Evaluation of Flexible and Integrative Psychiatric Care Models in Germany: Study Protocol of a Prospective, Controlled Multicenter Observational Study (PsychCare).

Authors:  Bettina Soltmann; Anne Neumann; Stefanie March; Ines Weinhold; Dennis Häckl; Roman Kliemt; Fabian Baum; Marcel Romanos; Julian Schwarz; Sebastian von Peter; Yuriy Ignatyev; Katrin Arnold; Enno Swart; Martin Heinze; Jochen Schmitt; Andrea Pfennig
Journal:  Front Psychiatry       Date:  2021-06-01       Impact factor: 4.157

10.  Service users as collaborators in mental health research: less stick, more carrot.

Authors:  K Staley; T Kabir; G Szmukler
Journal:  Psychol Med       Date:  2012-07-31       Impact factor: 7.723

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