Literature DB >> 20444822

Need for a wider view of autonomy in epidemiological research.

Mats G Hansson1.   

Abstract

Mesh:

Year:  2010        PMID: 20444822     DOI: 10.1136/bmj.c2335

Source DB:  PubMed          Journal:  BMJ        ISSN: 0959-8138


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  10 in total

1.  Children, biobanks and the scope of parental consent.

Authors:  Kristien Hens; Jean-Jacques Cassiman; Herman Nys; Kris Dierickx
Journal:  Eur J Hum Genet       Date:  2011-03-09       Impact factor: 4.246

2.  Use of a medical records linkage system to enumerate a dynamic population over time: the Rochester epidemiology project.

Authors:  Jennifer L St Sauver; Brandon R Grossardt; Barbara P Yawn; L Joseph Melton; Walter A Rocca
Journal:  Am J Epidemiol       Date:  2011-03-23       Impact factor: 4.897

Review 3.  History of the Rochester Epidemiology Project: half a century of medical records linkage in a US population.

Authors:  Walter A Rocca; Barbara P Yawn; Jennifer L St Sauver; Brandon R Grossardt; L Joseph Melton
Journal:  Mayo Clin Proc       Date:  2012-11-28       Impact factor: 7.616

4.  Increasing value and reducing waste in biomedical research regulation and management.

Authors:  Rustam Al-Shahi Salman; Elaine Beller; Jonathan Kagan; Elina Hemminki; Robert S Phillips; Julian Savulescu; Malcolm Macleod; Janet Wisely; Iain Chalmers
Journal:  Lancet       Date:  2014-01-08       Impact factor: 79.321

Review 5.  Data Safe Havens in health research and healthcare.

Authors:  Paul R Burton; Madeleine J Murtagh; Andy Boyd; James B Williams; Edward S Dove; Susan E Wallace; Anne-Marie Tassé; Julian Little; Rex L Chisholm; Amadou Gaye; Kristian Hveem; Anthony J Brookes; Pat Goodwin; Jon Fistein; Martin Bobrow; Bartha M Knoppers
Journal:  Bioinformatics       Date:  2015-06-25       Impact factor: 6.937

6.  Considerations for an integrated population health databank in Africa: lessons from global best practices.

Authors:  Jude O Igumbor; Edna N Bosire; Marta Vicente-Crespo; Ehimario U Igumbor; Uthman A Olalekan; Tobias F Chirwa; Sam M Kinyanjui; Catherine Kyobutungi; Sharon Fonn
Journal:  Wellcome Open Res       Date:  2021-08-23

7.  Ethical issues in biomedical research using electronic health records: a systematic review.

Authors:  Jan Piasecki; Ewa Walkiewicz-Żarek; Justyna Figas-Skrzypulec; Anna Kordecka; Vilius Dranseika
Journal:  Med Health Care Philos       Date:  2021-06-19

Review 8.  "Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study.

Authors:  Elizabeth M Hill; Emma L Turner; Richard M Martin; Jenny L Donovan
Journal:  BMC Med Res Methodol       Date:  2013-06-04       Impact factor: 4.615

9.  Observational research with adolescents: a framework for the management of the parental permission.

Authors:  Miguel Ruiz-Canela; Cristina Lopez-del Burgo; Silvia Carlos; Maria Calatrava; Carlos Beltramo; Alfonso Osorio; Jokin de Irala
Journal:  BMC Med Ethics       Date:  2013-01-03       Impact factor: 2.652

10.  The risk of re-identification versus the need to identify individuals in rare disease research.

Authors:  Mats G Hansson; Hanns Lochmüller; Olaf Riess; Franz Schaefer; Michael Orth; Yaffa Rubinstein; Caron Molster; Hugh Dawkins; Domenica Taruscio; Manuel Posada; Simon Woods
Journal:  Eur J Hum Genet       Date:  2016-05-25       Impact factor: 4.246

  10 in total

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