Literature DB >> 20058086

Psychometric evaluation of the Impact of Cancer (IOC-CS) scale for young adult survivors of childhood cancer.

Brad J Zebrack1, Janet E Donohue, James G Gurney, Mark A Chesler, Smita Bhatia, Wendy Landier.   

Abstract

INTRODUCTION: Psychosocial outcomes derived from standardized and disease-specific measures are often used in pediatric oncology; however, the reliability, validity and utility of these instruments in adult survivors of childhood cancer have yet to be established.
PURPOSE: To develop and evaluate a new instrument that measures aspects of long-term survivorship not measured by existing tools.
METHODS: A new candidate instrument--the Impact of Cancer for childhood cancer survivors (IOC-CS)--was administered to childhood cancer survivors aged 18-39 who were 21 years of age or younger when diagnosed with cancer. Psychometric properties of newly derived scales were assessed.
RESULTS: Factor analyses of items derived eight new and specific subscales: Life Challenges, Body/Health, Talking With Parents, Personal Growth, Thinking/Memory Problems, Health Literacy, Socializing and Financial Problems. Internal consistency measurements for these subscales ranged from 0.70 to 0.86. Expected associations within and among the IOC-CS subscales and standardized measures of health-related quality of life (HRQOL) were observed, as were some unexpected findings.
CONCLUSION: Psychometric analyses indicated that this initial version of the IOC-CS measures distinct and relevant constructs for young adult survivors of childhood cancer. Future work is necessary to confirm the responsiveness and further validate the instrument in multiple and representative samples. © Springer Science+Business Media B.V. 2010

Entities:  

Mesh：

Year:  2010        PMID： 20058086      PMCID： PMC2906664          DOI： 10.1007/s11136-009-9576-x

Source DB:  PubMed          Journal:  Qual Life Res        ISSN： 0962-9343            Impact factor:   4.147


  36 in total

1.  The Miami pediatric quality of life questionnaire: parent scale.

Authors:  F D Armstrong; S R Toledano; K Miloslavich; L Lackman-Zeman; J D Levy; C L Gay; W B Schuman; P E Fishkin
Journal:  Int J Cancer Suppl       Date:  1999

2.  Self-image of adolescent survivors of long-term childhood leukemia.

Authors:  A Maggiolini; R Grassi; L Adamoli; A Corbetta; G P Charmet; K Provantini; D Fraschini; M Jankovic; R Lia; J Spinetta; G Masera
Journal:  J Pediatr Hematol Oncol       Date:  2000 Sep-Oct       Impact factor: 1.289

3.  The Minneapolis-Manchester Quality of Life instrument: reliability and validity of the Adolescent Form.

Authors:  Smita Bhatia; Meriel E M Jenney; Monica K Bogue; Todd H Rockwood; James H Feusner; Debra L Friedman; Leslie L Robison; Robert L Kane
Journal:  J Clin Oncol       Date:  2002-12-15       Impact factor: 44.544

4.  PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations.

Authors:  J W Varni; M Seid; P S Kurtin
Journal:  Med Care       Date:  2001-08       Impact factor: 2.983

5.  From chump to champ: people's appraisals of their earlier and present selves.

Authors:  A E Wilson; M Ross
Journal:  J Pers Soc Psychol       Date:  2001-04

6.  Symptoms of posttraumatic stress in young adult survivors of childhood cancer.

Authors:  W L Hobbie; M Stuber; K Meeske; K Wissler; M T Rourke; K Ruccione; A Hinkle; A E Kazak
Journal:  J Clin Oncol       Date:  2000-12-15       Impact factor: 44.544

7.  Quality of life in childhood cancer survivors.

Authors:  Brad J Zebrack; Mark A Chesler
Journal:  Psychooncology       Date:  2002 Mar-Apr       Impact factor: 3.894

8.  The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module.

Authors:  James W Varni; Tasha M Burwinkle; Ernest R Katz; Kathy Meeske; Paige Dickinson
Journal:  Cancer       Date:  2002-04-01       Impact factor: 6.860

9.  Study design and cohort characteristics of the Childhood Cancer Survivor Study: a multi-institutional collaborative project.

Authors:  Leslie L Robison; Ann C Mertens; John D Boice; Norman E Breslow; Sarah S Donaldson; Daniel M Green; Frederic P Li; Anna T Meadows; John J Mulvihill; Joseph P Neglia; Mark E Nesbit; Roger J Packer; John D Potter; Charles A Sklar; Malcolm A Smith; Marilyn Stovall; Louise C Strong; Yutaka Yasui; Lonnie K Zeltzer
Journal:  Med Pediatr Oncol       Date:  2002-04

10.  Psychological outcomes in long-term survivors of childhood leukemia, Hodgkin's disease, and non-Hodgkin's lymphoma: a report from the Childhood Cancer Survivor Study.

Authors:  Brad J Zebrack; Lonnie K Zeltzer; John Whitton; Ann C Mertens; Lorrie Odom; Roger Berkow; Leslie L Robison
Journal:  Pediatrics       Date:  2002-07       Impact factor: 9.703
View more
  21 in total

1.  The Minneapolis-Manchester Quality of Life Instrument: reliability and validity of the Adult Form in cancer survivors.

Authors:  Alysia Bosworth; Elizabeth L Goodman; Eric Wu; Liton Francisco; Leslie L Robison; Smita Bhatia
Journal:  Qual Life Res       Date:  2017-08-02       Impact factor: 4.147

2.  Life satisfaction in adult survivors of childhood brain tumors.

Authors:  Deborah B Crom; Zhenghong Li; Tara M Brinkman; Melissa M Hudson; Gregory T Armstrong; Joseph Neglia; Kirsten K Ness
Journal:  J Pediatr Oncol Nurs       Date:  2014-07-15       Impact factor: 1.636

3.  The perceived impact of cancer on quality of life for post-treatment survivors of childhood cancer.

Authors:  Brad J Zebrack; Wendy Landier
Journal:  Qual Life Res       Date:  2011-03-31       Impact factor: 4.147

4.  Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: in their own words.

Authors:  Alex W K Wong; Ting-Ting Chang; Katrina Christopher; Stephen C L Lau; Lynda K Beaupin; Brad Love; Kim L Lipsey; Michael Feuerstein
Journal:  J Cancer Surviv       Date:  2017-03-29       Impact factor: 4.442

5.  Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies.

Authors:  Chandylen L Nightingale; Gwendolyn P Quinn; Elizabeth A Shenkman; Barbara A Curbow; Bradley J Zebrack; Kevin R Krull; I-Chan Huang
Journal:  J Adolesc Young Adult Oncol       Date:  2011-09       Impact factor: 2.223

6.  Assessing quality of life in young adult cancer survivors: development of the Survivorship-Related Quality of Life scale.

Authors:  Crystal L Park; Jennifer H Wortmann; Amy E Hale; Dalnim Cho; Thomas O Blank
Journal:  Qual Life Res       Date:  2014-04-13       Impact factor: 4.147

7.  Optimizing the measurement of health-related quality of life in adolescents and young adults with cancer.

Authors:  John M Salsman; Suzanne C Danhauer; Justin B Moore; Mollie R Canzona; David E Victorson; Bradley J Zebrack; Bryce B Reeve
Journal:  Cancer       Date:  2020-09-10       Impact factor: 6.860

8.  Using three legacy measures to develop a health-related quality of life tool for young adult survivors of childhood cancer.

Authors:  I-Chan Huang; Gwendolyn P Quinn; Pey-Shan Wen; Elizabeth A Shenkman; Dennis A Revicki; Kevin Krull; Zhushan Li; Patricia D Shearer
Journal:  Qual Life Res       Date:  2011-11-20       Impact factor: 4.147

9.  Head-to-head comparisons of quality of life instruments for young adult survivors of childhood cancer.

Authors:  I-Chan Huang; Gwendolyn P Quinn; Kevin Krull; Katie Z Eddleton; Devin C Murphy; Elizabeth A Shenkman; Patricia D Shearer
Journal:  Support Care Cancer       Date:  2011-11-22       Impact factor: 3.603

10.  The relationship between posttraumatic stress and posttraumatic growth among adolescent and young adult (AYA) cancer patients.

Authors:  Brad Zebrack; Minyoung Kwak; John Salsman; Melissa Cousino; Kathleen Meeske; Christine Aguilar; Leanne Embry; Rebecca Block; Brandon Hayes-Lattin; Steve Cole
Journal:  Psychooncology       Date:  2014-06-11       Impact factor: 3.894
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.