Literature DB >> 32910454

Optimizing the measurement of health-related quality of life in adolescents and young adults with cancer.

John M Salsman1, Suzanne C Danhauer1, Justin B Moore2, Mollie R Canzona1,3, David E Victorson4, Bradley J Zebrack5, Bryce B Reeve6.   

Abstract

Entities:  

Keywords:  adolescent and young adult; health-related quality of life; measurement; oncology; patient-reported outcomes

Mesh：

Year:  2020        PMID： 32910454      PMCID： PMC8005324          DOI： 10.1002/cncr.33155

Source DB:  PubMed          Journal:  Cancer        ISSN： 0008-543X            Impact factor:   6.860


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  64 in total

1.  Missing content from health-related quality of life instruments: interviews with young adult survivors of childhood cancer.

Authors:  Gwendolyn P Quinn; I-Chan Huang; Devin Murphy; Katie Zidonik-Eddelton; Kevin R Krull
Journal:  Qual Life Res       Date:  2013-02       Impact factor: 4.147

Review 2.  Measuring the psychosocial health of adolescent and young adult (AYA) cancer survivors: a critical review.

Authors:  Tara Clinton-McHarg; Mariko Carey; Rob Sanson-Fisher; Anthony Shakeshaft; Kathy Rainbird
Journal:  Health Qual Life Outcomes       Date:  2010-03-06       Impact factor: 3.186

3.  Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study.

Authors:  Theresa H M Keegan; Daphne Y Lichtensztajn; Ikuko Kato; Erin E Kent; Xiao-Cheng Wu; Michelle M West; Ann S Hamilton; Brad Zebrack; Keith M Bellizzi; Ashley W Smith
Journal:  J Cancer Surviv       Date:  2012-03-29       Impact factor: 4.442

Review 4.  Understanding, measuring, and addressing the financial impact of cancer on adolescents and young adults.

Authors:  John M Salsman; Kristin Bingen; Ronald D Barr; David R Freyer
Journal:  Pediatr Blood Cancer       Date:  2019-02-12       Impact factor: 3.167

5.  The missing voice of patients in drug-safety reporting.

Authors:  Ethan Basch
Journal:  N Engl J Med       Date:  2010-03-11       Impact factor: 91.245

6.  Development of a PROMIS item bank to measure pain interference.

Authors:  Dagmar Amtmann; Karon F Cook; Mark P Jensen; Wen-Hung Chen; Seung Choi; Dennis Revicki; David Cella; Nan Rothrock; Francis Keefe; Leigh Callahan; Jin-Shei Lai
Journal:  Pain       Date:  2010-07       Impact factor: 6.961

7.  Measuring social health in the patient-reported outcomes measurement information system (PROMIS): item bank development and testing.

Authors:  Elizabeth A Hahn; Robert F Devellis; Rita K Bode; Sofia F Garcia; Liana D Castel; Susan V Eisen; Hayden B Bosworth; Allen W Heinemann; Nan Rothrock; David Cella
Journal:  Qual Life Res       Date:  2010-04-25       Impact factor: 4.147

Review 8.  Reporting of health-related quality of life (HRQOL) data in oncology trials: a comparison of the European Organization for Research and Treatment of Cancer Quality of Life (EORTC QLQ-C30) and the Functional Assessment of Cancer Therapy-General (FACT-G).

Authors:  Adam B Smith; Kim Cocks; David Parry; Matthew Taylor
Journal:  Qual Life Res       Date:  2013-10-05       Impact factor: 4.147

Review 9.  Quality of life in adolescent and young adult cancer patients: a systematic review of the literature.

Authors:  Gwendolyn P Quinn; Vânia Gonçalves; Ivana Sehovic; Meghan L Bowman; Damon R Reed
Journal:  Patient Relat Outcome Meas       Date:  2015-02-17

10.  Emerging Cancer Survival Trends, Disparities, and Priorities in Adolescents and Young Adults: A California Cancer Registry-Based Study.

Authors:  Diana J Moke; Kaiya Tsai; Ann S Hamilton; Amie Hwang; Lihua Liu; David R Freyer; Dennis Deapen
Journal:  JNCI Cancer Spectr       Date:  2019-06-12
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  9 in total

1.  Next Step for Global Adolescent and Young Adult Oncology: A Core Patient-Centered Outcome Set.

Authors:  Olga Husson; Bryce B Reeve; Anne-Sophie Darlington; Christabel K Cheung; Samantha Sodergren; Winette T A van der Graaf; John M Salsman
Journal:  J Natl Cancer Inst       Date:  2022-04-11       Impact factor: 13.506

2.  Inclusion of Patient-Reported Outcomes in Adolescent and Young Adult Phase III Therapeutic Trials: An Analysis of Cancer Clinical Trials Registered on ClinicalTrials.gov.

Authors:  Amy M Berkman; Karly M Murphy; Elizabeth J Siembida; Nancy Lau; Yimin Geng; Susan K Parsons; John M Salsman; Michael E Roth
Journal:  Value Health       Date:  2021-08-08       Impact factor: 5.725

3.  Stakeholder-informed conceptual framework for financial burden among adolescents and young adults with cancer.

Authors:  Suzanne C Danhauer; Mollie Canzona; Reginald D Tucker-Seeley; Bryce B Reeve; Chandylen L Nightingale; Dianna S Howard; Nicole Puccinelli-Ortega; Denisha Little-Greene; John M Salsman
Journal:  Psychooncology       Date:  2021-11-05       Impact factor: 3.955

4.  A qualitative assessment of body image in adolescents and young adults (AYAs) with cancer.

Authors:  Justin B Moore; Mollie R Canzona; Nicole Puccinelli-Ortega; Denisha Little-Greene; Katie E Duckworth; Michelle C Fingeret; Edward H Ip; Stacy D Sanford; John M Salsman
Journal:  Psychooncology       Date:  2020-12-19       Impact factor: 3.894

5.  Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals.

Authors:  Suzanne E J Kaal; Emma K Lidington; Judith B Prins; Rosemarie Jansen; Eveliene Manten-Horst; Petra Servaes; Winette T A van der Graaf; Olga Husson
Journal:  J Clin Med       Date:  2021-04-22       Impact factor: 4.241

6.  A conceptual model of fertility concerns among adolescents and young adults with cancer.

Authors:  Mollie R Canzona; David E Victorson; Karly Murphy; Marla L Clayman; Bonnie Patel; Nicole Puccinelli-Ortega; Thomas W McLean; Onengiya Harry; Denisha Little-Greene; John M Salsman
Journal:  Psychooncology       Date:  2021-04-17       Impact factor: 3.955

7.  Reply to the Importance of a collaborative health-related quality of life measurement strategy for adolescents and young adults with cancer.

Authors:  John M Salsman; Suzanne C Danhauer; Justin B Moore; Mollie R Canzona; David E Victorson; Bradley J Zebrack; Bryce B Reeve
Journal:  Cancer       Date:  2021-01-26       Impact factor: 6.921

8.  Recruiting Adolescent and Young Adult Cancer Survivors for Patient-Reported Outcome Research: Experiences and Sample Characteristics of the SURVAYA Study.

Authors:  Carla Vlooswijk; Lonneke V van de Poll-Franse; Silvie H M Janssen; Esther Derksen; Milou J P Reuvers; Rhodé Bijlsma; Suzanne E J Kaal; Jan Martijn Kerst; Jacqueline M Tromp; Monique E M M Bos; Tom van der Hulle; Roy I Lalisang; Janine Nuver; Mathilde C M Kouwenhoven; Winette T A van der Graaf; Olga Husson
Journal:  Curr Oncol       Date:  2022-07-29       Impact factor: 3.109

9.  Measuring health-related quality of life in adolescent and young adult cancer survivors with the National Institutes of Health Patient-Reported Outcomes Measurement Information System® : Comparing adolescent, emerging adult, and young adult survivor perspectives.

Authors:  Elizabeth J Siembida; Bryce B Reeve; Brad J Zebrack; Mallory A Snyder; John M Salsman
Journal:  Psychooncology       Date:  2020-10-30       Impact factor: 3.894
  9 in total

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