Literature DB >> 20032298

Bereaved parents' and siblings' reports of legacies created by children with cancer.

Terrah L Foster1, Mary Jo Gilmer, Betty Davies, Maru Barrera, Diane Fairclough, Kathryn Vannatta, Cynthia A Gerhardt.   

Abstract

This qualitative study explored bereaved parents' and siblings' reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18 years). Individual interviews were completed at home approximately 10.68 months (SD = 3.48) after the child's death. Content analysis of interviews indicated that many children living with cancer did specific things to be remembered, such as making crafts for others, willing away belongings, writing letters to loved ones, and giving special gifts. Some children, particularly those who were very ill or died unexpectedly, did not intentionally do or say anything to be remembered. Legacies included bereaved individuals remembering children's qualities, concern for family, and beliefs about afterlife. Having advanced cancer appeared to motivate children to influence others' lives and prepare for their own deaths. Children's advice about how to live life inspired bereaved family members. Findings contribute to the current knowledge of legacy-making in children and offer implications for practice and future research.

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Year:  2009        PMID: 20032298      PMCID: PMC2835334          DOI: 10.1177/1043454209340322

Source DB:  PubMed          Journal:  J Pediatr Oncol Nurs        ISSN: 1043-4542            Impact factor:   1.636


  6 in total

1.  Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life.

Authors:  Harvey Max Chochinov; Thomas Hack; Thomas Hassard; Linda J Kristjanson; Susan McClement; Mike Harlos
Journal:  J Clin Oncol       Date:  2005-08-20       Impact factor: 44.544

Review 2.  Meaningful moments.

Authors:  Kathie Kobler; Rana Limbo; Karen Kavanaugh
Journal:  MCN Am J Matern Child Nurs       Date:  2007 Sep-Oct       Impact factor: 1.412

3.  The hard work of living in the face of death.

Authors:  Nessa Coyle
Journal:  J Pain Symptom Manage       Date:  2006-09       Impact factor: 3.612

4.  Anxiety in the dying child.

Authors:  J J Spinetta; D Rigler; M Karon
Journal:  Pediatrics       Date:  1973-12       Impact factor: 7.124

5.  American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative care for children.

Authors: 
Journal:  Pediatrics       Date:  2000-08       Impact factor: 7.124

6.  Talking about death with children who have severe malignant disease.

Authors:  Ulrika Kreicbergs; Unnur Valdimarsdóttir; Erik Onelöv; Jan-Inge Henter; Gunnar Steineck
Journal:  N Engl J Med       Date:  2004-09-16       Impact factor: 91.245

  6 in total
  18 in total

1.  Legacy Making Through Illness Blogs: Online Spaces for Young Adults Approaching the End-of-Life.

Authors:  Jessica Keim-Malpass; Katharine Adelstein; Dio Kavalieratos
Journal:  J Adolesc Young Adult Oncol       Date:  2015-12       Impact factor: 2.223

2.  Changes in siblings after the death of a child from cancer.

Authors:  Terrah L Foster; Mary Jo Gilmer; Kathryn Vannatta; Maru Barrera; Betty Davies; Mary S Dietrich; Diane L Fairclough; Cynthia A Gerhardt
Journal:  Cancer Nurs       Date:  2012 Sep-Oct       Impact factor: 2.592

Review 3.  Pediatric palliative care - The role of the patient's family.

Authors:  Carl Friedrich Classen
Journal:  World J Clin Pediatr       Date:  2012-10-08

4.  Digital storytelling: an innovative legacy-making intervention for children with cancer.

Authors:  Terrah Foster Akard; Mary S Dietrich; Debra L Friedman; Pamela S Hinds; Barbara Given; Sarah Wray; Mary Jo Gilmer
Journal:  Pediatr Blood Cancer       Date:  2015-01-13       Impact factor: 3.167

5.  Commentary: Dennis D. Drotar Distinguished Research Award: Academic and Personal Reflections on Childhood Cancer Research Across the Illness Spectrum.

Authors:  Cynthia A Gerhardt
Journal:  J Pediatr Psychol       Date:  2016-09-28

6.  A qualitative study of advice from bereaved parents and siblings.

Authors:  Amanda L Thompson; Kimberly S Miller; Maru Barrera; Betty Davies; Terrah L Foster; Mary Jo Gilmer; Nancy Hogan; Kathryn Vannatta; Cynthia A Gerhardt
Journal:  J Soc Work End Life Palliat Care       Date:  2011

7.  Perinatal and pediatric issues in palliative and end-of-life care from the 2011 Summit on the Science of Compassion.

Authors:  Jonne M Youngblut; Dorothy Brooten
Journal:  Nurs Outlook       Date:  2012-10-01       Impact factor: 3.250

8.  Bereaved parents and siblings offer advice to health care providers and researchers.

Authors:  Amii C Steele; Julia Kaal; Amanda L Thompson; Maru Barrera; Bruce E Compas; Betty Davies; Diane L Fairclough; Terrah L Foster; Mary Jo Gilmer; Nancy Hogan; Kathryn Vannatta; Cynthia A Gerhardt
Journal:  J Pediatr Hematol Oncol       Date:  2013-05       Impact factor: 1.289

9.  Long-term psychosocial outcomes among bereaved siblings of children with cancer.

Authors:  Abby R Rosenberg; Andrea Postier; Kaci Osenga; Ulrika Kreicbergs; Bridget Neville; Veronica Dussel; Joanne Wolfe
Journal:  J Pain Symptom Manage       Date:  2014-05-28       Impact factor: 3.612

10.  National survey of children's hospitals on legacy-making activities.

Authors:  Terrah L Foster; Mary S Dietrich; Debra L Friedman; Jessie E Gordon; Mary J Gilmer
Journal:  J Palliat Med       Date:  2012-05       Impact factor: 2.947

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