Literature DB >> 16939851

The hard work of living in the face of death.

Nessa Coyle1.   

Abstract

This study examines, from the patient's perspective, the work of trying to live with advanced cancer at the same time as facing the immediacy of death. The findings are part of an exploratory qualitative study that examined the first-hand accounts of seven patients being cared for at an urban cancer research center who were living with advanced disease. Using interpretive phenomenology, a series of in-depth, semistructured interviews were audiotaped, transcribed, coded, and organized into themes. Three subthemes emerged from the data that reflected the hard work that these individuals undertook. These were orientating themselves to the disease and maintaining control, searching for and creating a system of support and safety, and struggling to find meaning and create a legacy. The findings confirm that living with advanced cancer in the face of death involves hard work on the part of the patient.

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Year:  2006        PMID: 16939851     DOI: 10.1016/j.jpainsymman.2006.04.003

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  11 in total

1.  Digital storytelling: an innovative legacy-making intervention for children with cancer.

Authors:  Terrah Foster Akard; Mary S Dietrich; Debra L Friedman; Pamela S Hinds; Barbara Given; Sarah Wray; Mary Jo Gilmer
Journal:  Pediatr Blood Cancer       Date:  2015-01-13       Impact factor: 3.167

2.  Transitoriness in cancer patients: a cross-sectional survey of lung and gastrointestinal cancer patients.

Authors:  Maya Shaha; Vinciya Pandian; Michael A Choti; Eden Stotsky; Joseph M Herman; Yasmin Khan; Carol Libonati; Timothy M Pawlik; Richard D Schulick; Anne E Belcher
Journal:  Support Care Cancer       Date:  2010-02-21       Impact factor: 3.603

3.  A concept analysis of the existential experience of adults with advanced cancer.

Authors:  Elise C Tarbi; Salimah H Meghani
Journal:  Nurs Outlook       Date:  2019-03-27       Impact factor: 3.250

4.  Bereaved parents' and siblings' reports of legacies created by children with cancer.

Authors:  Terrah L Foster; Mary Jo Gilmer; Betty Davies; Maru Barrera; Diane Fairclough; Kathryn Vannatta; Cynthia A Gerhardt
Journal:  J Pediatr Oncol Nurs       Date:  2009 Nov-Dec       Impact factor: 1.636

5.  Presentation at computed tomography (CT) scan of the thorax and first year diagnostic and treatment utilization among patients diagnosed with lung cancer.

Authors:  Adam C Powell; Amin J Mirhadi; Bryan A Loy; Laura E Happe; James W Long; Erin M Kren; Amit K Gupta
Journal:  PLoS One       Date:  2017-07-14       Impact factor: 3.240

6.  People With Advanced Cancer: The Process of Living Well With Awareness of Dying.

Authors:  Maria Arantzamendi; Noelia García-Rueda; Ana Carvajal; Carole A Robinson
Journal:  Qual Health Res       Date:  2018-12-12

7.  Improved Parent-Child Communication following a RCT Evaluating a Legacy Intervention for Children with Advanced Cancer.

Authors:  Terrah Foster Akard; Mary S Dietrich; Debra L Friedman; Cynthia A Gerhardt; Barbara Given; Verna Hendricks-Ferguson; Pamela S Hinds; Sheila H Ridner; Nicole Beckmann; Mary Jo Gilmer
Journal:  Prog Palliat Care       Date:  2020-10-20

8.  The attitudes of brain cancer patients and their caregivers towards death and dying: a qualitative study.

Authors:  Nir Lipsman; Abby Skanda; Jonathan Kimmelman; Mark Bernstein
Journal:  BMC Palliat Care       Date:  2007-11-08       Impact factor: 3.234

9.  Challenging conversations with terminally ill patients and their loved ones: Strategies to improve giving information in palliative care.

Authors:  Inger Benkel; Helle Wijk; Ulla Molander
Journal:  SAGE Open Med       Date:  2014-04-22

10.  Randomized Clinical Trial of a Legacy Intervention for Quality of Life in Children with Advanced Cancer.

Authors:  Terrah Foster Akard; Mary S Dietrich; Debra L Friedman; Sarah Wray; Cynthia A Gerhardt; Verna Hendricks-Ferguson; Pamela S Hinds; Bethany Rhoten; Mary Jo Gilmer
Journal:  J Palliat Med       Date:  2020-09-30       Impact factor: 2.947

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