Literature DB >> 19957020

Changing defaults in biobank research could save lives too.

Joanna Stjernschantz Forsberg1, Stefan Eriksson, Mats G Hansson.   

Abstract

In an effort to increase the amount of organs available for transplantation, many countries have implemented presumed consent for organ donation. Presuming a wish to contribute to medical advances through biobank research on previously taken tissue samples could similarly improve health and wellbeing. In this article we analyze common arguments for and against presumed consent for organ donation and assess their relevance in the context of biobank research. In spite of obvious differences between biobank research and organ transplantation the cases for implementing presumption of a positive attitude appear quite analogous. It has repeatedly been shown that a majority of the general population supports these projects and selecting informed consent as the default position decreases the amount of organs and samples available and thus reduces the prospect of promoting health. We conclude that instead of presuming that individuals do not wish to contribute to the advancement of healthcare through biobank research on previously taken samples, ethics committees should presume that they do.

Mesh:

Year:  2009        PMID: 19957020     DOI: 10.1007/s10654-009-9413-0

Source DB:  PubMed          Journal:  Eur J Epidemiol        ISSN: 0393-2990            Impact factor:   8.082


  20 in total

1.  Medicine. Do defaults save lives?

Authors:  Eric J Johnson; Daniel Goldstein
Journal:  Science       Date:  2003-11-21       Impact factor: 47.728

2.  Presumed consent: an international comparison and possibilities for change in the United States.

Authors:  Kenneth Gundle
Journal:  Camb Q Healthc Ethics       Date:  2005       Impact factor: 1.284

Review 3.  Biobanking: international norms.

Authors:  Bartha Maria Knoppers
Journal:  J Law Med Ethics       Date:  2005       Impact factor: 1.718

Review 4.  One-time general consent for research on biological samples.

Authors:  David Wendler
Journal:  BMJ       Date:  2006-03-04

5.  Impact of new legislation on presumed consent on organ donation on liver transplant in Singapore: a preliminary analysis.

Authors:  How-Cheng Low; Maureen Da Costa; Krishnan Prabhakaran; Manjit Kaur; Aileen Wee; Seng-Gee Lim; Chun-Tao Wai
Journal:  Transplantation       Date:  2006-11-15       Impact factor: 4.939

6.  Perceptions of potential donors in the Swedish public towards information and consent procedures in relation to use of human tissue samples in biobanks: a population-based study.

Authors:  Asa Kettis-Lindblad; Lena Ring; Eva Viberth; Mats G Hansson
Journal:  Scand J Public Health       Date:  2007       Impact factor: 3.021

7.  Impact of culture and policy on organ donation: a comparison between two urban trauma centers in developed nations.

Authors:  Maureen McCunn; Walter Mauritz; Richard P Dutton; Charles Alexander; Christopher Handley; Thomas M Scalea
Journal:  J Trauma       Date:  2003-05

8.  Presumed consent for transplantation: a dead issue after Alder Hey?

Authors:  V English; A Sommerville
Journal:  J Med Ethics       Date:  2003-06       Impact factor: 2.903

9.  Two perspectives on organ donation: experiences of potential donor families and intensive care physicians of the same event.

Authors:  Margareta A Sanner
Journal:  J Crit Care       Date:  2007-07-05       Impact factor: 3.425

10.  Patients' refusal to consent to storage and use of samples in Swedish biobanks: cross sectional study.

Authors:  Linus Johnsson; Mats G Hansson; Stefan Eriksson; Gert Helgesson
Journal:  BMJ       Date:  2008-07-10
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  5 in total

Review 1.  Biobanking residual tissues.

Authors:  Peter H J Riegman; Evert-Ben van Veen
Journal:  Hum Genet       Date:  2011-08-04       Impact factor: 4.132

2.  Withdrawal from biobank research: considerations and the way forward.

Authors:  Kristina Hug; Göran Hermerén; Mats Johansson
Journal:  Stem Cell Rev Rep       Date:  2012-12       Impact factor: 5.739

3.  Formative research on perceptions of biobanking: what community members think.

Authors:  John S Luque; Gwendolyn P Quinn; Francisco A Montel-Ishino; Mariana Arevalo; Shalanda A Bynum; Shalewa Noel-Thomas; Kristen J Wells; Clement K Gwede; Cathy D Meade
Journal:  J Cancer Educ       Date:  2012-03       Impact factor: 2.037

4.  Incorporating exclusion clauses into informed consent for biobanking.

Authors:  Zubin Master; David B Resnik
Journal:  Camb Q Healthc Ethics       Date:  2013-04       Impact factor: 1.284

Review 5.  Ethical aspects of human biobanks: a systematic review.

Authors:  Danijela Budimir; Ozren Polasek; Ana Marusić; Ivana Kolcić; Tatijana Zemunik; Vesna Boraska; Ana Jeroncić; Mladen Boban; Harry Campbell; Igor Rudan
Journal:  Croat Med J       Date:  2011-06       Impact factor: 1.351

  5 in total

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