Literature DB >> 19892963

Biobanks: too long to wait for consent.

Kyle B Brothers, Ellen Wright Clayton.   

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Year:  2009        PMID： 19892963     DOI： 10.1126/science.326_798a

Source DB:  PubMed          Journal:  Science        ISSN： 0036-8075            Impact factor:   47.728


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  11 in total

Review 1.  Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries.

Authors:  Nola M Ries; Jane LeGrandeur; Timothy Caulfield
Journal:  BMC Med Ethics       Date:  2010-03-23       Impact factor: 2.652

2.  Ethical and practical challenges to studying patients who opt out of large-scale biorepository research.

Authors:  S Trent Rosenbloom; Jennifer L Madison; Kyle B Brothers; Erica A Bowton; Ellen Wright Clayton; Bradley A Malin; Dan M Roden; Jill Pulley
Journal:  J Am Med Inform Assoc       Date:  2013-07-25       Impact factor: 4.497

Review 3.  The Bio-PIN: a concept to improve biobanking.

Authors:  J J Nietfeld; Jeremy Sugarman; Jan-Eric Litton
Journal:  Nat Rev Cancer       Date:  2011-03-17       Impact factor: 60.716

4.  Practical guidance on informed consent for pediatric participants in a biorepository.

Authors:  Kyle B Brothers; John A Lynch; Sharon A Aufox; John J Connolly; Bruce D Gelb; Ingrid A Holm; Saskia C Sanderson; Jennifer B McCormick; Janet L Williams; Wendy A Wolf; Armand H M Antommaria; Ellen W Clayton
Journal:  Mayo Clin Proc       Date:  2014-09-26       Impact factor: 7.616

Review 5.  Children and biobanks: a review of the ethical and legal discussion.

Authors:  Kristien Hens; Emmanuelle Lévesque; Kris Dierickx
Journal:  Hum Genet       Date:  2011-06-10       Impact factor: 4.132

6.  Biobanking in pediatrics: the human nonsubjects approach.

Authors:  Kyle Bertram Brothers
Journal:  Per Med       Date:  2011-01       Impact factor: 2.512

7.  Developing a policy for paediatric biobanks: principles for good practice.

Authors:  Kristien Hens; Carla E Van El; Pascal Borry; Anne Cambon-Thomsen; Martina C Cornel; Francesca Forzano; Anneke Lucassen; Christine Patch; Lisbeth Tranebjaerg; Eric Vermeulen; Elena Salvaterra; Aad Tibben; Kris Dierickx
Journal:  Eur J Hum Genet       Date:  2012-06-20       Impact factor: 4.246

Review 8.  Ethical aspects of human biobanks: a systematic review.

Authors:  Danijela Budimir; Ozren Polasek; Ana Marusić; Ivana Kolcić; Tatijana Zemunik; Vesna Boraska; Ana Jeroncić; Mladen Boban; Harry Campbell; Igor Rudan
Journal:  Croat Med J       Date:  2011-06       Impact factor: 1.351

9.  Banking the Future: Adolescent Capacity to Consent to Biobank Research.

Authors:  Kyle A McGregor; Mary A Ott
Journal:  Ethics Hum Res       Date:  2019-07

Review 10.  When Children Become Adults: Should Biobanks Re-Contact?

Authors:  Noor A A Giesbertz; Annelien L Bredenoord; Johannes J M van Delden
Journal:  PLoS Med       Date:  2016-02-16       Impact factor: 11.069
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