Literature DB >> 19851944

Perceived benefits of online support groups for women with metastatic breast cancer.

Ruvanee P Vilhauer1.   

Abstract

Women with metastatic breast cancer (MBC), a life-threatening illness, stand to benefit a great deal from online support groups, but none have been studied specifically within this population. The present mixed-method study was carried out to determine which therapeutic factors occurred in online MBC support groups, and to see how such factors might have acted to benefit participants. Participants were 20 women with MBC who participated in online peer support groups. Most reported benefiting in some way from their groups. Six therapeutic factors theorized to be helpful in online support groups and cancer support groups were present in the groups studied: group cohesiveness, information exchange, universality, instillation of hope, catharsis, and altruism. However, although participants reported being able to discuss many other concerns freely, they had difficulty discussing death and dying, which are critical issues for this category of women with BC.

Entities:  

Mesh:

Year:  2009        PMID: 19851944     DOI: 10.1080/03630240903238719

Source DB:  PubMed          Journal:  Women Health        ISSN: 0363-0242


  20 in total

1.  Towards Supporting Patient Decision-making In Online Diabetes Communities.

Authors:  Jing Zhang; Rebecca Marmor; Jina Huh
Journal:  AMIA Annu Symp Proc       Date:  2018-04-16

Review 2.  Online communities for breast cancer survivors: a review and analysis of their characteristics and levels of use.

Authors:  Jacqueline L Bender; M Carolina Jimenez-Marroquin; Lorraine E Ferris; Joel Katz; Alejandro R Jadad
Journal:  Support Care Cancer       Date:  2012-11-23       Impact factor: 3.603

3.  Centering perspectives on Black women, hair politics, and physical activity.

Authors:  H Shellae Versey
Journal:  Am J Public Health       Date:  2014-03-13       Impact factor: 9.308

4.  From Diagnosis to Death: A Case Study of Coping With Breast Cancer as Seen Through Online Discussion Group Messages.

Authors:  Kuang-Yi Wen; Fiona McTavish; Gary Kreps; Meg Wise; David Gustafson
Journal:  J Comput Mediat Commun       Date:  2011-01-13

5.  A qualitative analysis of the benefits and barriers of support groups for patients with brain tumours and their caregivers.

Authors:  Sasha Mallya; Maureen Daniels; Cheryl Kanter; Alyson Stone; Amanda Cipolla; Kim Edelstein; Norma D'Agostino
Journal:  Support Care Cancer       Date:  2019-10-22       Impact factor: 3.603

6.  Engagement of young adult cancer survivors within a Facebook-based physical activity intervention.

Authors:  Carmina G Valle; Deborah F Tate
Journal:  Transl Behav Med       Date:  2017-12       Impact factor: 3.046

7.  Evaluation of CancerChatCanada: a program of online support for Canadians affected by cancer.

Authors:  J Stephen; A Rojubally; K Macgregor; D McLeod; M Speca; J Taylor-Brown; K Fergus; K Collie; J Turner; S Sellick; G Mackenzie
Journal:  Curr Oncol       Date:  2013-02       Impact factor: 3.677

8.  Online support groups for young women with breast cancer: a proof-of-concept study.

Authors:  Joanne Stephen; Adina Rojubally; Wolfgang Linden; Lihong Zhong; Gina Mackenzie; Sahar Mahmoud; Janine Giese-Davis
Journal:  Support Care Cancer       Date:  2017-03-09       Impact factor: 3.603

9.  How language affects peer responsiveness in an online cancer support group: implications for treatment design and facilitation.

Authors:  Andrea C Lewallen; Jason E Owen; Erin O'Carroll Bantum; Annette L Stanton
Journal:  Psychooncology       Date:  2014-02-11       Impact factor: 3.894

10.  Increase in contralateral prophylactic mastectomy conversation online unrelated to decision-making.

Authors:  Rebecca A Marmor; Wenrui Dai; Xiaoqian Jiang; Shuang Wang; Sarah L Blair; Jina Huh
Journal:  J Surg Res       Date:  2017-07-07       Impact factor: 2.192

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