Literature DB >> 23055657

From Diagnosis to Death: A Case Study of Coping With Breast Cancer as Seen Through Online Discussion Group Messages.

Kuang-Yi Wen1, Fiona McTavish, Gary Kreps, Meg Wise, David Gustafson.   

Abstract

To understand the underlying psychosocial reactions against the unfolding of medical events that announce the disease progression, the objective of this analysis was to identify the patterns of online discussion group message themes in relation to the medical timeline of one woman's breast cancer trajectory. 202 messages posted by Darlene (our studied case) were analyzed by 2 independent coders using a grounded theory approach. The findings suggest that the pattern of messages was clearly correlated with distress-inducing events. The most frequent interaction theme was about building friendship with peers through communication of encouragement, validation, appreciation, and life sharing. Narratives of medical progression were constantly updated to identify similarities with peers. Family issues were increasingly raised at the end of life.

Entities:  

Year:  2011        PMID: 23055657      PMCID: PMC3466054          DOI: 10.1111/j.1083-6101.2011.01542.x

Source DB:  PubMed          Journal:  J Comput Mediat Commun        ISSN: 1083-6101


  46 in total

1.  Empowering patients using computer based health support systems.

Authors:  D H Gustafson; F M McTavish; E Boberg; B H Owens; C Sherbeck; M Wise; S Pingree; R P Hawkins
Journal:  Qual Health Care       Date:  1999-03

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Authors:  K A Luker; K Beaver; S J Leinster; R G Owens
Journal:  J Adv Nurs       Date:  1996-03       Impact factor: 3.187

3.  Effectiveness of a short-term group psychotherapy program on endocrine and immune function in breast cancer patients: an exploratory study.

Authors:  G van der Pompe; H J Duivenvoorden; M H Antoni; A Visser; C J Heijnen
Journal:  J Psychosom Res       Date:  1997-05       Impact factor: 3.006

4.  Online help: cancer patients participate in a computer-mediated support group.

Authors:  N Weinberg; J Schmale; J Uken; K Wessel
Journal:  Health Soc Work       Date:  1996-02

5.  Gender differences on Internet cancer support groups.

Authors:  P Klemm; M Hurst; S L Dearholt; S R Trone
Journal:  Comput Nurs       Date:  1999 Mar-Apr

Review 6.  Psychoneuroimmune and endocrine pathways in cancer: effects of stress and support.

Authors:  D Spiegel; S E Sephton
Journal:  Semin Clin Neuropsychiatry       Date:  2001-10

7.  Perceived benefits of online support groups for women with metastatic breast cancer.

Authors:  Ruvanee P Vilhauer
Journal:  Women Health       Date:  2009 Jul-Aug

8.  Electronic support groups for breast carcinoma: a clinical trial of effectiveness.

Authors:  Morton A Lieberman; Mitch Golant; Janine Giese-Davis; Andy Winzlenberg; Harold Benjamin; Keith Humphreys; Carol Kronenwetter; Stefani Russo; David Spiegel
Journal:  Cancer       Date:  2003-02-15       Impact factor: 6.860

9.  How cancer survivors provide support on cancer-related Internet mailing lists.

Authors:  Andrea Meier; Elizabeth J Lyons; Gilles Frydman; Michael Forlenza; Barbara K Rimer
Journal:  J Med Internet Res       Date:  2007-05-14       Impact factor: 5.428

Review 10.  Needs assessment for cancer patients and their families.

Authors:  Kuang-Yi Wen; David H Gustafson
Journal:  Health Qual Life Outcomes       Date:  2004-02-26       Impact factor: 3.186

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  5 in total

1.  Voices of the "99 Percent": The Role of Online Narrative to Improve Health Care.

Authors:  Beth Sundstrom; Stephanie J Meier; Michael Anderson; Kathleen E Booth; Lacey Cooper; Ellie Flock; Jackelyn B Payne; Priya Hirway
Journal:  Perm J       Date:  2016-07-15

2.  Longitudinal analysis of discussion topics in an online breast cancer community using convolutional neural networks.

Authors:  Shaodian Zhang; Edouard Grave; Elizabeth Sklar; Noémie Elhadad
Journal:  J Biomed Inform       Date:  2017-03-18       Impact factor: 6.317

3.  Self-management of buprenorphine/naloxone among online discussion board users.

Authors:  Shan-Estelle Brown; Frederick L Altice
Journal:  Subst Use Misuse       Date:  2014-06       Impact factor: 2.164

4.  Living fully in the shadow of mortal time: psychosocial assets in advanced cancer.

Authors:  Meg Wise; Lucille Marchand
Journal:  J Palliat Care       Date:  2013       Impact factor: 2.250

Review 5.  The unfulfilled promise: a systematic review of interventions to reduce the unmet supportive care needs of cancer patients.

Authors:  Mariko Carey; Sylvie Lambert; Rochelle Smits; Chris Paul; Rob Sanson-Fisher; Tara Clinton-McHarg
Journal:  Support Care Cancer       Date:  2011-11-17       Impact factor: 3.603

  5 in total

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