Literature DB >> 19727847

End-of-life experiences in adolescents dying with cancer.

Cynthia J Bell1, Jodi Skiles, Kamnesh Pradhan, Victoria L Champion.   

Abstract

PURPOSE: This study explores the experiences of individuals in early, middle, and late adolescence dying from cancer. Place of death, medications used at end of life (EOL), and discussions prior to death are examined.
METHODS: Data were obtained from a retrospective review of medical charts from 103 adolescents who died of cancer between 2000 and 2005.
RESULTS: Adolescents with leukemia/lymphoma were relatively more likely to die in an intensive care unit (p = 0.028) where cause of death was more likely to be treatment-related (p < 0.001), and EOL discussions more likely to occur in the last 7 days of life (p = 0.002). Anxiolytic use was significantly higher during late adolescence (p = 0.037).
CONCLUSIONS: Adolescents have unique developmental needs that should be considered at EOL. Timing of EOL discussions occurred very close to death for a significant number of adolescents, allowing very little time to psychologically prepare for death.

Entities:  

Mesh:

Year:  2009        PMID: 19727847     DOI: 10.1007/s00520-009-0716-1

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  29 in total

1.  Longitudinal study of pediatric house officers' attitudes toward death and dying.

Authors:  R M Vazirani; S J Slavin; J D Feldman
Journal:  Crit Care Med       Date:  2000-11       Impact factor: 7.598

2.  When death is imminent: where terminally ill patients with cancer prefer to die and why.

Authors:  Siew Tzuh Tang
Journal:  Cancer Nurs       Date:  2003-06       Impact factor: 2.592

3.  Continuity of care and caring: what matters to parents of children with life-threatening conditions.

Authors:  Karen S Heller; Mildred Z Solomon
Journal:  J Pediatr Nurs       Date:  2005-10       Impact factor: 2.145

4.  Advanced cancer in children: how parents decide on final place of care for their dying child.

Authors:  Julia Hannan; Faith Gibson
Journal:  Int J Palliat Nurs       Date:  2005-06

5.  "I learned that no death is routine": description of a death and bereavement seminar for pediatrics residents.

Authors:  Janet R Serwint; Lorene E Rutherford; Nancy Hutton; Peter C Rowe; Susan Barker; Graceanne Adamo
Journal:  Acad Med       Date:  2002-04       Impact factor: 6.893

6.  Fear of death.

Authors:  Richard T Penson; Rosamund A Partridge; Muhammad A Shah; David Giansiracusa; Bruce A Chabner; Thomas J Lynch
Journal:  Oncologist       Date:  2005-02

7.  When children die: a seminar series for pediatric residents.

Authors:  Rochelle Bagatell; Robyn Meyer; Sandra Herron; Alice Berger; Rodrigo Villar
Journal:  Pediatrics       Date:  2002-08       Impact factor: 7.124

8.  Symptoms, treatment and "dying peacefully" in terminally ill cancer patients: a prospective study.

Authors:  Jean-Jacques Georges; Bregje D Onwuteaka-Philipsen; Agnes van der Heide; Gerrit van der Wal; Paul J van der Maas
Journal:  Support Care Cancer       Date:  2004-12-02       Impact factor: 3.603

9.  Caring for dying children: a comparative study of nurses' experiences in Greece and Hong Kong.

Authors:  D Papadatou; I M Martinson; P M Chung
Journal:  Cancer Nurs       Date:  2001-10       Impact factor: 2.592

10.  The symptoms of dying children.

Authors:  Ross Drake; Judy Frost; John J Collins
Journal:  J Pain Symptom Manage       Date:  2003-07       Impact factor: 3.612

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  20 in total

Review 1.  Palliative Care as a Standard of Care in Pediatric Oncology.

Authors:  Meaghann S Weaver; Katherine E Heinze; Katherine P Kelly; Lori Wiener; Robert L Casey; Cynthia J Bell; Joanne Wolfe; Amy M Garee; Anne Watson; Pamela S Hinds
Journal:  Pediatr Blood Cancer       Date:  2015-12       Impact factor: 3.167

Review 2.  Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review.

Authors:  Meaghann S Weaver; Katherine E Heinze; Cynthia J Bell; Lori Wiener; Amy M Garee; Katherine P Kelly; Robert L Casey; Anne Watson; Pamela S Hinds
Journal:  Palliat Med       Date:  2015-04-28       Impact factor: 4.762

Review 3.  Understanding death with limited experience in life: dying children's and adolescents' understanding of their own terminal illness and death.

Authors:  Alan T Bates; Julia A Kearney
Journal:  Curr Opin Support Palliat Care       Date:  2015-03       Impact factor: 2.302

Review 4.  Communication in pediatric oncology: State of the field and research agenda.

Authors:  Bryan A Sisk; Jennifer W Mack; Rachel Ashworth; James DuBois
Journal:  Pediatr Blood Cancer       Date:  2017-07-27       Impact factor: 3.167

5.  Palliative care in adolescents and young adults with cancer.

Authors:  Sheila Pritchard; Geoff Cuvelier; Mike Harlos; Ronald Barr
Journal:  Cancer       Date:  2011-05-15       Impact factor: 6.860

6.  End-of-life care characteristics for young adults with cancer who die in the hospital.

Authors:  Jessica Keim-Malpass; Jeanne M Erickson; H Charles Malpass
Journal:  J Palliat Med       Date:  2014-12       Impact factor: 2.947

7.  Japanese physicians' attitudes toward end-of-life discussion with pediatric patients with cancer.

Authors:  Saran Yoshida; Chitose Ogawa; Ken Shimizu; Mariko Kobayashi; Hironobu Inoguchi; Yoshio Oshima; Chikako Dotani; Rika Nakahara; Masashi Kato
Journal:  Support Care Cancer       Date:  2018-05-17       Impact factor: 3.603

8.  End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice.

Authors:  Ursula M Sansom-Daly; Claire E Wakefield; Pandora Patterson; Richard J Cohn; Abby R Rosenberg; Lori Wiener; Joanna E Fardell
Journal:  J Adolesc Young Adult Oncol       Date:  2019-10-29       Impact factor: 2.223

9.  Clinical audit on "evaluation of special issues in adolescents with cancer treated in an adult cancer setting": an Indian experience.

Authors:  Naveen S Salins; Nandini Vallath; Prince Varkey; Kavya Ranganath; Malathi G Nayak
Journal:  Indian J Palliat Care       Date:  2012-09

10.  Pediatric Palliative Care for Children with Cancer in a Children's Tertiary Hospital in China: Six-Year Experience of a Pediatric Palliative Care Service.

Authors:  Anan Zhang; Ling Bing; Qiang Mi; Fen Zhou; Jianmin Wang
Journal:  Palliat Med Rep       Date:  2021-01-06
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