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Literature DB >> 19702179

Growing up as a research subject: ethical and legal issues in birth cohort studies involving genetic research.

Nola M Ries¹.

Abstract

Mesh：

Year: 2007 PMID： 19702179

Source DB: PubMed Journal: Health Law J ISSN： 1192-8336

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10 in total

1. Retrospective access to data: the ENGAGE consent experience.

Authors: Anne Marie Tassé; Isabelle Budin-Ljøsne; Bartha Maria Knoppers; Jennifer R Harris
Journal: Eur J Hum Genet Date: 2010-03-24 Impact factor: 4.246

Review 2. Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries.

Authors: Nola M Ries; Jane LeGrandeur; Timothy Caulfield
Journal: BMC Med Ethics Date: 2010-03-23 Impact factor: 2.652

Review 3. Biobanking and deceased persons.

Authors: Anne Marie Tassé
Journal: Hum Genet Date: 2011-06-25 Impact factor: 4.132

4. Clarifying assent in pediatric research.

Authors: Noor A A Giesbertz; Annelien L Bredenoord; Johannes J M van Delden
Journal: Eur J Hum Genet Date: 2013-06-12 Impact factor: 4.246

5. Behavioral Science Research Informs Bioethical Issues in the Conduct of Large-Scale Studies of Children's Disease Risk.

Authors: Kenneth P Tercyak; Ulrica Swartling; Darren Mays; Suzanne Bennett Johnson; Johnny Ludvigsson
Journal: AJOB Prim Res Date: 2013-01-01

Growing up as a research subject: ethical and legal issues in birth cohort studies involving genetic research.

1. Retrospective access to data: the ENGAGE consent experience.

Review 2. Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries.

Review 3. Biobanking and deceased persons.

4. Clarifying assent in pediatric research.

5. Behavioral Science Research Informs Bioethical Issues in the Conduct of Large-Scale Studies of Children's Disease Risk.

Review 6. Paediatric biobanking: Dutch experts reflecting on appropriate legal standards for practice.

7. Sharing longitudinal, non-biological birth cohort data: a cross-sectional analysis of parent consent preferences.

8. Emerging issues in paediatric health research consent forms in Canada: working towards best practices.

9. Parental perspectives on consent for participation in large-scale, non-biological data repositories.

10. Illawarra Born cross-generational health study: feasibility of a multi-generational birth cohort study.