Literature DB >> 19462423

Quality of web-based information on inflammatory bowel diseases.

Sander van der Marel1, Marjolijn Duijvestein, James C Hardwick, Gijs R van den Brink, Roeland Veenendaal, Daniel W Hommes, Herma H Fidder.   

Abstract

BACKGROUND: The Internet is the largest source of health information and is widely used by inflammatory bowel disease (IBD) patients. As information is largely unregulated, our objective was to evaluate the quality, readability, accuracy, and accessibility of the information concerning IBD available on the World Wide Web.
METHODS: The phrases "inflammatory bowel disease," "Crohn's disease," and "Ulcerative Colitis" were entered separately as search terms into the 6 most commonly used search engines. Sites were categorized as institutional, pharmaceutical, nonpharmaceutical commercial sites, charitable, support, or alternative medicine. Websites were evaluated for content quality using the validated DISCERN rating instrument. Readability was graded by the Flesch Reading Ease and the Flesch-Kincaid Grade Level score.
RESULTS: Of the 76 websites evaluated by DISCERN, 43% of the sites were rated as excellent to good and 57% as fair to poor. Alternative medicine sites scored significant lower (P > 0.05) than institutional, pharmaceutical, and nonpharmaceutical commercial sites. There was no relation between a rating score and the position of a website on the search engine ranking. The median Flesch Reading Ease Score was 41.65 (range, 2.6-77.7) and 11.85 (range, 6.2-21.1) for the Flesch-Kincaid Grade Level.
CONCLUSIONS: The quality of websites containing information on IBD varies widely. Most of the online material available is too difficult to comprehend for a substantial portion of the patient population, and good quality information may be beyond reach of the average information seeker.
Copyright © 2009 Crohn's & Colitis Foundation of America, Inc.

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Mesh:

Year:  2009        PMID: 19462423     DOI: 10.1002/ibd.20976

Source DB:  PubMed          Journal:  Inflamm Bowel Dis        ISSN: 1078-0998            Impact factor:   5.325


  25 in total

Review 1.  Identifying Complementary and Alternative Medicine Usage Information from Internet Resources. A Systematic Review.

Authors:  Vivekanand Sharma; John H Holmes; Indra N Sarkar
Journal:  Methods Inf Med       Date:  2016-06-28       Impact factor: 2.176

2.  Patient Concerns and Perceptions Regarding Biologic Therapies in Ankylosing Spondylitis: Insights From a Large-Scale Survey of Social Media Platforms.

Authors:  Eldin Dzubur; Carine Khalil; Christopher V Almario; Benjamin Noah; Deeba Minhas; Mariko Ishimori; Corey Arnold; Yujin Park; Jonathan Kay; Michael H Weisman; Brennan M R Spiegel
Journal:  Arthritis Care Res (Hoboken)       Date:  2019-02       Impact factor: 4.794

3.  Assessment of Quality and Readability of Internet Dietary Information on Irritable Bowel Syndrome.

Authors:  Ligia Alfaro-Cruz; Isha Kaul; Yan Zhang; Robert Jay Shulman; Bruno Pedro Chumpitazi
Journal:  Clin Gastroenterol Hepatol       Date:  2018-05-22       Impact factor: 11.382

4.  Adapting the content of cancer web sites to the information needs of patients: reliability and readability.

Authors:  Ruben Alba-Ruiz; Clara Bermúdez-Tamayo; Jaime Jiménez Pernett; Jose Francisco Garcia-Gutierrez; José Manuel Cózar-Olmo; Beatriz Valero-Aguilera
Journal:  Telemed J E Health       Date:  2013-09-27       Impact factor: 3.536

5.  How well does the Internet answer patients' questions about inflammatory bowel disease?

Authors:  Steven Promislow; John R Walker; Mohammed Taheri; Charles Noah Bernstein
Journal:  Can J Gastroenterol       Date:  2010-11       Impact factor: 3.522

6.  [Quality of patient information leaflets on atopic eczema : An analysis using the DISCERN instrument].

Authors:  J Wahl; C Apfelbacher
Journal:  Hautarzt       Date:  2018-10       Impact factor: 0.751

7.  Quality of Internet-based information on gastrointestinal diseases.

Authors:  Vikram Tangri; Nilesh Chande
Journal:  Can J Gastroenterol       Date:  2011-02       Impact factor: 3.522

Review 8.  Completeness, accuracy, and presentation of information on interactions between prescription drugs and alternative medicines: an internet review.

Authors:  Lou Ann Scarton; Guilherme Del Fiol; Qing Treitler-Zeng
Journal:  Stud Health Technol Inform       Date:  2013

9.  Internet Searches About Therapies Do Not Impact Willingness to Accept Prescribed Therapy in Inflammatory Bowel Disease Patients.

Authors:  Alexandra Feathers; Tommy Yen; Laura Yun; Garrett Strizich; Arun Swaminath
Journal:  Dig Dis Sci       Date:  2015-12-10       Impact factor: 3.199

10.  Assessing the quality, suitability and readability of internet-based health information about warfarin for patients.

Authors:  Sayeed Nasser; Judy Mullan; Beata Bajorek
Journal:  Australas Med J       Date:  2012-03-31
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