J Wahl1, C Apfelbacher2. 1. Medizinische Soziologie, Institut für Epidemiologie und Präventivmedizin, Universität Regensburg, Dr.-Gessler-Str. 17, Regensburg, Deutschland. Josephawahl@web.de. 2. Medizinische Soziologie, Institut für Epidemiologie und Präventivmedizin, Universität Regensburg, Dr.-Gessler-Str. 17, Regensburg, Deutschland.
Abstract
BACKGROUND: As in other chronic diseases, providing medical information plays a key role in the therapy of atopic eczema. It is already known that information leaflets often do not meet the criteria of evidence-based patient information (EBPI). OBJECTIVE: Therefore, the aim of this study was to examine the quality of information leaflets on atopic eczema. MATERIAL AND METHODS: A total of 35 leaflets were included in the study. They were collected from self-aid groups, from the internet, from general practitioners, from pediatricians and dermatologists as well as from pharmacies in Regensburg. The quality of information provided was assessed using the DISCERN instrument. RESULTS: Almost all of the 35 patient information leaflets assessed had shortcomings, scoring only mid- or low-point in the analysis. None of the leaflets was of excellent quality. Only three leaflets were estimated to contain good quality information. CONCLUSION: Most of the leaflets did not meet the criteria of evidence-based patient information. In conclusion, there may be a lack of quality information about atopic eczema. Improving the existing material and comparing the EBPI standards with the information needs of atopic eczema patients should be topics of future research.
BACKGROUND: As in other chronic diseases, providing medical information plays a key role in the therapy of atopic eczema. It is already known that information leaflets often do not meet the criteria of evidence-based patient information (EBPI). OBJECTIVE: Therefore, the aim of this study was to examine the quality of information leaflets on atopic eczema. MATERIAL AND METHODS: A total of 35 leaflets were included in the study. They were collected from self-aid groups, from the internet, from general practitioners, from pediatricians and dermatologists as well as from pharmacies in Regensburg. The quality of information provided was assessed using the DISCERN instrument. RESULTS: Almost all of the 35 patient information leaflets assessed had shortcomings, scoring only mid- or low-point in the analysis. None of the leaflets was of excellent quality. Only three leaflets were estimated to contain good quality information. CONCLUSION: Most of the leaflets did not meet the criteria of evidence-based patient information. In conclusion, there may be a lack of quality information about atopic eczema. Improving the existing material and comparing the EBPI standards with the information needs of atopic eczemapatients should be topics of future research.
Entities:
Keywords:
Child-friendly information material; Evidence-based patient information; Health services research; Information needs; health services needs and demands
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