Literature DB >> 24073899

Adapting the content of cancer web sites to the information needs of patients: reliability and readability.

Ruben Alba-Ruiz1, Clara Bermúdez-Tamayo, Jaime Jiménez Pernett, Jose Francisco Garcia-Gutierrez, José Manuel Cózar-Olmo, Beatriz Valero-Aguilera.   

Abstract

BACKGROUND: People who use the Internet to research health topics do not usually find all the information they need and do not trust what they read. This study was designed to assess the reliability, accessibility, readability, and popularity of cancer Web sites in Spanish and to analyze the suitability of Web site content in accordance with the specific information needs of cancer patients.
MATERIALS AND METHODS: This was a two-phase, cross-sectional, descriptive study. The first phase involved data gathering through online searches and direct observation. The second phase involved individual structured interviews with 169 patients with breast, prostate, bladder, and kidney cancer. Spearman rank correlations were calculated between variables.
RESULTS: Most sites belonged to nonprofit organizations, followed by universities or medical centers (14%). Thirty-one percent of the Web sites had quality seals, 59% provided details of authorship, 62% provided references to bibliographic sources, 38% identified their funding sources, and 54% showed the date of their last update. Twenty-one percent of the Web sites did not meet the minimum accessibility criteria. With regard to readability, 24% of the texts were considered to be "quite difficult." Patients' information needs vary depending on the type of cancer they have, although all patients want to know about the likelihood of a cure, survival rates, the side effects, and risks of treatment.
CONCLUSIONS: The health information on cancer available on the Internet in Spanish is not very reliable, accessible, or readable and is not necessarily the information that breast, kidney, prostate, and bladder cancer patients require. The content of cancer Web sites needs to be assessed according to the information needs of patients.

Entities:  

Mesh:

Year:  2013        PMID: 24073899      PMCID: PMC3850662          DOI: 10.1089/tmj.2013.0050

Source DB:  PubMed          Journal:  Telemed J E Health        ISSN: 1530-5627            Impact factor:   3.536


  31 in total

1.  Health information on the Internet: accessibility, quality, and readability in English and Spanish.

Authors:  G K Berland; M N Elliott; L S Morales; J I Algazy; R L Kravitz; M S Broder; D E Kanouse; J A Muñoz; J A Puyol; M Lara; K E Watkins; H Yang; E A McGlynn
Journal:  JAMA       Date:  2001 May 23-30       Impact factor: 56.272

Review 2.  Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review.

Authors:  Gunther Eysenbach; John Powell; Oliver Kuss; Eun-Ryoung Sa
Journal:  JAMA       Date:  2002 May 22-29       Impact factor: 56.272

3.  Instruments to assess the quality of health information on the World Wide Web: what can our patients actually use?

Authors:  Elmer V Bernstam; Dawn M Shelton; Muhammad Walji; Funda Meric-Bernstam
Journal:  Int J Med Inform       Date:  2005-01       Impact factor: 4.046

4.  Unraveling the web: an evaluation of the content quality, usability, and readability of nutrition web sites.

Authors:  Lisa A Sutherland; Barbara Wildemuth; Marci K Campbell; Pamela S Haines
Journal:  J Nutr Educ Behav       Date:  2005 Nov-Dec       Impact factor: 3.045

5.  Cancer patients' information needs across the cancer care continuum: evidence from the cancer information service.

Authors:  Linda Squiers; Lila J Finney Rutten; Katherine Treiman; Mary Anne Bright; Bradford Hesse
Journal:  J Health Commun       Date:  2005

6.  [Internet use by cancer patients and their relatives].

Authors:  Carolina Ortega-Ruipérez; Aurelia González Martínez; Alfredo Cabrejas Sánchez; Jaime Feliu Batlle
Journal:  Med Clin (Barc)       Date:  2010-02-06       Impact factor: 1.725

7.  Defining information need in health - assimilating complex theories derived from information science.

Authors:  Paula Ormandy
Journal:  Health Expect       Date:  2011-03       Impact factor: 3.377

8.  Gynaecology on the Net: evaluation of the information on hysterectomy contained in health-related web sites.

Authors:  A Galimberti; S Jain
Journal:  J Obstet Gynaecol       Date:  2000-05       Impact factor: 1.246

9.  Improving on-line information for potential living kidney donors.

Authors:  E M Moody; K K Clemens; L Storsley; A Waterman; C R Parikh; A X Garg
Journal:  Kidney Int       Date:  2007-03-14       Impact factor: 10.612

10.  Quality of web-based information on pathological gambling.

Authors:  Yasser Khazaal; Anne Chatton; Sophie Cochand; Françoise Jermann; Christian Osiek; Guido Bondolfi; Daniele Zullino
Journal:  J Gambl Stud       Date:  2008-03-29
View more
  3 in total

1.  The Development of a Mobile Health App for Breast Cancer Self-Management Support in Taiwan: Design Thinking Approach.

Authors:  I-Ching Hou; Min-Fang Lan; Shan-Hsiang Shen; Pei Yu Tsai; King Jen Chang; Hao-Chih Tai; Ay-Jen Tsai; Polun Chang; Tze-Fang Wang; Shuh-Jen Sheu; Patricia C Dykes
Journal:  JMIR Mhealth Uhealth       Date:  2020-04-30       Impact factor: 4.773

2.  Multidimensional Feature Classification of the Health Information Needs of Patients With Hypertension in an Online Health Community Through Analysis of 1000 Patient Question Records: Observational Study.

Authors:  Aijing Luo; Zirui Xin; Yifeng Yuan; Tingxiao Wen; Wenzhao Xie; Zhuqing Zhong; Xiaoqing Peng; Wei Ouyang; Chao Hu; Fei Liu; Yang Chen; Haiyan He
Journal:  J Med Internet Res       Date:  2020-05-29       Impact factor: 5.428

3.  eHealth Literacy and General Interest in Using Online Health Information: A Survey Among Patients with Dental Diseases.

Authors:  Saeideh Valizadeh-Haghi; Shahabedin Rahmatizadeh
Journal:  Online J Public Health Inform       Date:  2018-12-30
  3 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.