Literature DB >> 19452265

A comparative analysis of ethical and professional challenges experienced by Australian and U.S. genetic counselors.

Sarah Alliman1, Patricia McCarthy Veach, Dianne M Bartels, Fengqin Lian, Carolyn James, Bonnie S LeRoy.   

Abstract

Ethical issues are an inevitable part of genetic counseling practice. Prior research identified 16 domains of ethical and professional challenges encountered by practitioners in the United States. In order to further validate these domains, the present study surveyed Australian genetic counselors. Sixty-three respondents rated the frequency with which they encountered each domain, and 39 individuals also provided personal anecdotes detailing their most challenging ethical and professional dilemmas. Every domain reportedly was experienced by the Australian sample. However, there were some differences between Australian respondents and U.S. genetic counselors in frequencies of domain occurrence, and in strategies recommended for resolving them. Several anecdotes illustrate challenging situations due to Australia's geography, universal healthcare system, and the genetic counseling profession's evolution in that country. The results generally validate domains identified for U.S. genetic counselors. They further suggest that certain ethical issues may manifest in ways unique to a given country, and therefore they must be addressed in a culturally-appropriate manner.

Mesh:

Year:  2009        PMID: 19452265     DOI: 10.1007/s10897-009-9229-9

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  14 in total

1.  Ethical issues in genetic counseling: a comparison of M.S. counselor and medical geneticist perspectives.

Authors:  Deborah F Pencarinha; Nora K Bell; Janice G Edwards; Robert G Best
Journal:  J Genet Couns       Date:  1992-03       Impact factor: 2.537

2.  Genetic counselling in the era of genomic medicine. As we move towards personalized medicine, it becomes more important to help patients understand genetic tests and make complex decisions about their health.

Authors:  Jon Weil
Journal:  EMBO Rep       Date:  2002-07       Impact factor: 8.807

3.  Educating genetic counselors in Australia: developing an international perspective.

Authors:  Margaret A Sahhar; Mary-Anne Young; Leslie J Sheffield; Maryanne Aitken
Journal:  J Genet Couns       Date:  2005-08       Impact factor: 2.537

4.  The Genetic Counseling Workplace-An Australasian Perspective. A National Study of Workplace Issues for Genetic Counselors and Associate Genetic Counselors.

Authors:  Carolyn James; Sharron Worthington; Alison Colley
Journal:  J Genet Couns       Date:  2003-10       Impact factor: 2.537

5.  Moral reasoning among medical geneticists in eighteen nations.

Authors:  D C Wertz; J C Fletcher
Journal:  Theor Med       Date:  1989-06

6.  Predictive and pre-natal testing for Huntington Disease in Australia: results and challenges encountered during a 10-year period (1994-2003).

Authors:  R J Tassicker; P K Marshall; T A Liebeck; M A Keville; B M Singaram; F H Richards
Journal:  Clin Genet       Date:  2006-12       Impact factor: 4.438

7.  Ethical and professional challenges posed by patients with genetic concerns: a report of focus group discussions with genetic counselors, physicians, and nurses.

Authors:  P M Veach; D M Bartels; B S LeRoy
Journal:  J Genet Couns       Date:  2001-04       Impact factor: 2.537

8.  A survey of genetic counselors' strategies for addressing ethical and professional challenges in practice.

Authors:  Matthew A Bower; Patricia McCarthy Veach; Dianne M Bartels; Bonnie S LeRoy
Journal:  J Genet Couns       Date:  2002-06       Impact factor: 2.537

9.  "Holding your breath": interviews with young people who have undergone predictive genetic testing for Huntington disease.

Authors:  Rony E Duncan; Lynn Gillam; Julian Savulescu; Robert Williamson; John G Rogers; Martin B Delatycki
Journal:  Am J Med Genet A       Date:  2007-09-01       Impact factor: 2.802

10.  Ethics and medical genetics in the United States: a national survey.

Authors:  D C Wertz; J C Fletcher
Journal:  Am J Med Genet       Date:  1988-04
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  14 in total

1.  A profile of the genetic counsellor and genetic nurse profession in European countries.

Authors:  Cristophe Cordier; Debby Lambert; Marie-Antoinette Voelckel; Ulrika Hosterey-Ugander; Heather Skirton
Journal:  J Community Genet       Date:  2011-12-14

2.  Genetic Test Results and Disclosure to Family Members: Qualitative Interviews of Healthcare Professionals' Perceptions of Ethical and Professional Issues in France.

Authors:  Diane D' Audiffret Van Haecke; Sandrine de Montgolfier
Journal:  J Genet Couns       Date:  2015-10-19       Impact factor: 2.537

3.  Ethical and professional challenges of genetic counseling - the case of Austria.

Authors:  Brigitte Gschmeidler; Magdalena Flatscher-Thoeni
Journal:  J Genet Couns       Date:  2013-06-01       Impact factor: 2.537

4.  A survey of ethical and professional challenges experienced by Spanish health-care professionals that provide genetic counseling services.

Authors:  Reyes Abad-Perotín; Ángel Asúnsolo-Del Barco; Agustín Silva-Mato
Journal:  J Genet Couns       Date:  2011-06-24       Impact factor: 2.537

5.  Ethical and Professional Challenges Encountered by Laboratory Genetic Counselors.

Authors:  Daniel Groepper; Patricia McCarthy Veach; Bonnie S LeRoy; Matthew Bower
Journal:  J Genet Couns       Date:  2014-11-16       Impact factor: 2.537

6.  Are Australasian Genetic Counselors Interested in Private Practice at the Primary Care Level of Health Service?

Authors:  Vrunda Sane; Linda Humphreys; Madelyn Peterson
Journal:  J Genet Couns       Date:  2015-01-21       Impact factor: 2.537

7.  Respecting autonomous decision making among Filipinos: a re-emphasis in genetic counseling.

Authors:  Jonathan Diego Cura
Journal:  J Genet Couns       Date:  2015-02-10       Impact factor: 2.537

8.  Availability of treatment drives decisions of genetic health professionals about disclosure of incidental findings.

Authors:  Erin Turbitt; Michelle M Wiest; Jane L Halliday; David J Amor; Sylvia A Metcalfe
Journal:  Eur J Hum Genet       Date:  2014-02-05       Impact factor: 4.246

Review 9.  The Genetic Counselor's Role in Managing Ethical Dilemmas Arising in the Laboratory Setting.

Authors:  Jessica R Balcom; Katrina E Kotzer; Lindsey A Waltman; Jennifer L Kemppainen; Brittany C Thomas
Journal:  J Genet Couns       Date:  2016-04-22       Impact factor: 2.537

10.  Genetic Counseling for Indigenous Australians: an Exploratory Study from the Perspective of Genetic Health Professionals.

Authors:  Emma Kowal; Lyndon Gallacher; Ivan Macciocca; Margaret Sahhar
Journal:  J Genet Couns       Date:  2014-10-28       Impact factor: 2.537

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