Literature DB >> 19186228

Measuring outcomes in oncology treatment: the importance of patient-centered outcomes.

Aundrea Oliver1, Caprice C Greenberg.   

Abstract

An important component of quality healthcare is that it be patient-centered with a focus on the patient, including his or her preferences, values, and beliefs. The goal of this article is to provide a broad overview of patient-centered outcomes in oncologic research. It starts with an introduction to the different types of patient-centered measures including patient satisfaction, decision regret, patient preference, and health-related quality of life. It then offers an overview of survey instrument design and selection. Finally, it provides examples of existing approaches to measurement and previously validated instruments for each type of patient-centered outcome.

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Year:  2009        PMID: 19186228      PMCID: PMC4539252          DOI: 10.1016/j.suc.2008.09.015

Source DB:  PubMed          Journal:  Surg Clin North Am        ISSN: 0039-6109            Impact factor:   2.741


  22 in total

1.  Quality of life evaluation in oncological clinical trials - the EORTC model. The EORTC Quality of Life Study Group.

Authors:  J de Haes; D Curran; T Young; A Bottomley; H Flechtner; N Aaronson; J Blazeby; K Bjordal; Y Brandberg; E Greimel; J Maher; M Sprangers; A Cull
Journal:  Eur J Cancer       Date:  2000-05       Impact factor: 9.162

Review 2.  The measurement and meaning of patient satisfaction.

Authors:  J E Ware; A Davies-Avery; A L Stewart
Journal:  Health Med Care Serv Rev       Date:  1978 Jan-Feb

3.  The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection.

Authors:  J E Ware; C D Sherbourne
Journal:  Med Care       Date:  1992-06       Impact factor: 2.983

4.  Randomized trial of a patient decision aid for choice of surgical treatment for breast cancer.

Authors:  V Goel; C A Sawka; E C Thiel; E H Gort; A M O'Connor
Journal:  Med Decis Making       Date:  2001 Jan-Feb       Impact factor: 2.583

Review 5.  Patient, clinician, and population perspectives on determining the clinical significance of quality-of-life scores.

Authors:  Marlene H Frost; Amy E Bonomi; Carol Estwing Ferrans; Gilbert Y Wong; Ron D Hays
Journal:  Mayo Clin Proc       Date:  2002-05       Impact factor: 7.616

Review 6.  Patient preference for cancer therapy: an overview of measurement approaches.

Authors:  A M Stiggelbout; J C de Haes
Journal:  J Clin Oncol       Date:  2001-01-01       Impact factor: 44.544

7.  Determinants of patient satisfaction in oncology settings from European and Asian countries: preliminary results based on the EORTC IN-PATSAT32 questionnaire.

Authors:  A Brédart; C Coens; N Aaronson; W-C Chie; F Efficace; T Conroy; J M Blazeby; E Hammerlid; M Costantini; F Joly; S Schraub; O Sezer; J I Arraras; C Rodary; A Costantini; M Mehlitz; D Razavi; A Bottomley
Journal:  Eur J Cancer       Date:  2006-12-06       Impact factor: 9.162

8.  Decisional regret and quality of life after participating in medical decision-making for early-stage prostate cancer.

Authors:  B J Davison; S L Goldenberg
Journal:  BJU Int       Date:  2003-01       Impact factor: 5.588

9.  Satisfaction with care: an independent outcome measure in surgical oncology.

Authors:  Kerry N L Avery; Chris Metcalfe; Joanna Nicklin; C Paul Barham; Derek Alderson; Jenny L Donovan; Jane M Blazeby
Journal:  Ann Surg Oncol       Date:  2006-04-14       Impact factor: 5.344

10.  Validation of a decision regret scale.

Authors:  Jamie C Brehaut; Annette M O'Connor; Timothy J Wood; Thomas F Hack; Laura Siminoff; Elisa Gordon; Deb Feldman-Stewart
Journal:  Med Decis Making       Date:  2003 Jul-Aug       Impact factor: 2.583

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  18 in total

1.  Evaluating Progression-Free Survival as a Surrogate Outcome for Health-Related Quality of Life in Oncology: A Systematic Review and Quantitative Analysis.

Authors:  Bruno Kovic; Xuejing Jin; Sean Alexander Kennedy; Mathieu Hylands; Michal Pedziwiatr; Akira Kuriyama; Huda Gomaa; Yung Lee; Morihiro Katsura; Masafumi Tada; Brian Y Hong; Sung Min Cho; Patrick Jiho Hong; Ashley M Yu; Yasmin Sivji; Augustin Toma; Li Xie; Ludwig Tsoi; Marcin Waligora; Manya Prasad; Neera Bhatnagar; Lehana Thabane; Michael Brundage; Gordon Guyatt; Feng Xie
Journal:  JAMA Intern Med       Date:  2018-12-01       Impact factor: 21.873

2.  An analysis of the influence of framework aspects on the study design of health economic modeling evaluations.

Authors:  Sebastian Gurtner
Journal:  Eur J Health Econ       Date:  2011-11-05

3.  Assessment of Health-Related Quality of Life Among Caregivers of Patients with Cancer Diagnosis: A Cross-Sectional Study in Saudi Arabia.

Authors:  Khalid M Almutairi; Abdulaziz A Alodhayani; Wadi B Alonazi; Jason M Vinluan
Journal:  J Relig Health       Date:  2017-02

Review 4.  Assessment of patient-reported outcomes in patients with melanoma.

Authors:  Janice N Cormier; Robert L Askew
Journal:  Surg Oncol Clin N Am       Date:  2011-01       Impact factor: 3.495

5.  Germline variants disrupting microRNAs predict long-term genitourinary toxicity after prostate cancer radiation.

Authors:  Amar U Kishan; Nicholas Marco; Melanie-Birte Schulz-Jaavall; Michael L Steinberg; Phuoc T Tran; Jesus E Juarez; Audrey Dang; Donatello Telesca; Wolfgang A Lilleby; Joanne B Weidhaas
Journal:  Radiother Oncol       Date:  2022-01-03       Impact factor: 6.901

6.  Symptom prevalence in lung and colorectal cancer patients.

Authors:  Anne M Walling; Jane C Weeks; Katherine L Kahn; Diana Tisnado; Nancy L Keating; Sydney M Dy; Neeraj K Arora; Jennifer W Mack; Philip M Pantoja; Jennifer L Malin
Journal:  J Pain Symptom Manage       Date:  2014-06-26       Impact factor: 3.612

7.  Factors Associated With Decision Regret Among Patients With Diverticulitis in the Elective Setting.

Authors:  Jessica N Cohan; Brian Orleans; Federica S Brecha; Lyen C Huang; Angela Presson; Angela Fagerlin; Elissa M Ozanne
Journal:  J Surg Res       Date:  2021-01-08       Impact factor: 2.192

Review 8.  Effectiveness of exercise training on cancer-related fatigue in colorectal cancer survivors: a systematic review and meta-analysis of randomized controlled trials.

Authors:  Pedro Machado; Miguel Morgado; João Raposo; Marco Mendes; Cândida G Silva; Nuno Morais
Journal:  Support Care Cancer       Date:  2022-02-02       Impact factor: 3.603

9.  Putting the "Person" in Personalized Cancer Medicine: A Systematic Review of Psychological Aspects of Targeted Therapy.

Authors:  Daniel C McFarland; Jada G Hamilton; Rosanne Fox; Jimmie Holland
Journal:  Pers Med Oncol       Date:  2014-12

10.  Health-related quality of life and life satisfaction in colorectal cancer survivors: trajectories of adjustment.

Authors:  Jeff Dunn; Shu Kay Ng; William Breitbart; Joanne Aitken; Pip Youl; Peter D Baade; Suzanne K Chambers
Journal:  Health Qual Life Outcomes       Date:  2013-03-14       Impact factor: 3.186

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