Literature DB >> 19115792

Social experience in 10-year-old children born with a cleft: exploring psychosocial resilience.

Kristin Billaud Feragen1, Anne I H Borge, Nichola Rumsey.   

Abstract

OBJECTIVE: The purposes of this study were to investigate self-reported social experience in 10-year-old children born with a cleft lip and/or palate and to gain a better understanding of variables implicated in psychosocial resilience.
DESIGN: Cross-sectional study of 10-year-old children from five consecutive birth cohorts, born from 1992 to 1997. PARTICIPANTS: A total of 268 children treated by the Oslo cleft team (Norway) participated in the study. The children's cleft conditions included cleft lip and palate, cleft lip alveolus, cleft palate, and submucous cleft palate. OUTCOME MEASURES: Psychosocial resilience was measured with the Child Experience Questionnaire (CEQ). Other variables were obtained during a clinical interview with the child. Cognitive, emotional, and psychosocial functioning was measured with the Personality Inventory for Children (PIC). Satisfaction with appearance was assessed through the use of the Satisfaction with Appearance Scales (SWA). Informants were both children and parents.
RESULTS: Cleft types differed significantly with respect to subtype and frequency of additional difficulties. Psychosocial resilience was associated with adequate emotional functioning, high satisfaction with appearance, and a lower frequency of reported teasing. Child characteristics such as visibility of cleft, gender, and additional diagnosis did not contribute to explain psychosocial resilience.
CONCLUSIONS: Results reported here emphasise the importance of assessing the child's subjective report of satisfaction with appearance and psychosocial experience.

Entities:  

Mesh:

Year:  2008        PMID: 19115792     DOI: 10.1597/07-124.1

Source DB:  PubMed          Journal:  Cleft Palate Craniofac J        ISSN: 1055-6656


  16 in total

1.  No deficit in neurocortical information processing in patients with cleft lip and palate.

Authors:  Volker Gassling; Kai Receveur; Uwe Niederberger; Bernd Koos; Claudia Helene Overath; Falk Birkenfeld; Jörg Wiltfang; Wolf-Dieter Gerber; Michael Siniatchkin
Journal:  Clin Oral Investig       Date:  2015-04-02       Impact factor: 3.573

2.  Body Image and Quality of Life in Adolescents With Craniofacial Conditions.

Authors:  Canice E Crerand; David B Sarwer; Anne E Kazak; Alexandra Clarke; Nichola Rumsey
Journal:  Cleft Palate Craniofac J       Date:  2016-01-11

3.  Mothers' and fathers' reports of stress in families of infants with and without single-suture craniosynostosis.

Authors:  Janine M Rosenberg; Kathleen A Kapp-Simon; Jacqueline R Starr; Mary Michaeleen Cradock; Matthew L Speltz
Journal:  Cleft Palate Craniofac J       Date:  2010-08-19

4.  Shared Surgical Decision Making and Youth Resilience Correlates of Satisfaction With Clinical Outcomes.

Authors:  Kathleen A Kapp-Simon; Todd Edwards; Caroline Ruta; Claudia Crilly Bellucci; Cassandra L Aspirnall; Ronald P Strauss; Tari D Topolski; Nichola J Rumsey; Donald L Patrick
Journal:  J Craniofac Surg       Date:  2015-07       Impact factor: 1.046

5.  Oral health-related quality of life in youth receiving cleft-related surgery: self-report and proxy ratings.

Authors:  Hillary L Broder; Maureen Wilson-Genderson; Lacey Sischo
Journal:  Qual Life Res       Date:  2016-10-03       Impact factor: 4.147

6.  A Population-Based Exploration of the Social Implications Associated with Cleft Lip and/or Palate.

Authors:  Adam D Glener; Alexander C Allori; Ronnie L Shammas; Anna R Carlson; Irene J Pien; Arthur S Aylsworth; Robert Meyer; Luiz Pimenta; Ronald Strauss; Stephanie Watkins; Jeffrey R Marcus
Journal:  Plast Reconstr Surg Glob Open       Date:  2017-06-29

7.  Sex differences in perceived stigmatization, body image disturbance, and satisfaction with facial appearance and speech among adolescents with craniofacial conditions.

Authors:  Canice E Crerand; Nichola Rumsey; Anne Kazak; Alexandra Clarke; Joseph Rausch; David B Sarwer
Journal:  Body Image       Date:  2020-01-30

8.  Association of Velopharyngeal Insufficiency With Quality of Life and Patient-Reported Outcomes After Speech Surgery.

Authors:  Aditi Bhuskute; Jonathan R Skirko; Christina Roth; Ahmed Bayoumi; Blythe Durbin-Johnson; Travis T Tollefson
Journal:  JAMA Facial Plast Surg       Date:  2017-09-01       Impact factor: 4.611

9.  Stress-coping and cortisol analysis in patients with non-syndromic cleft lip and palate: an explorative study.

Authors:  Volker Gassling; Paul-Martin Holterhus; Dorothee Herbers; Alexandra Kulle; Uwe Niederberger; Jürgen Hedderich; Jörg Wiltfang; Wolf-Dieter Gerber
Journal:  PLoS One       Date:  2012-07-20       Impact factor: 3.240

10.  Evaluating aesthetics of the nasolabial region in children with cleft lip and palate: professional analysis and patient satisfaction.

Authors:  Tatiana Saito Paiva; Marcia Andre
Journal:  Patient Prefer Adherence       Date:  2012-11-05       Impact factor: 2.711

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