Literature DB >> 26114527

Shared Surgical Decision Making and Youth Resilience Correlates of Satisfaction With Clinical Outcomes.

Kathleen A Kapp-Simon1, Todd Edwards, Caroline Ruta, Claudia Crilly Bellucci, Cassandra L Aspirnall, Ronald P Strauss, Tari D Topolski, Nichola J Rumsey, Donald L Patrick.   

Abstract

The aim of this study was to identify factors associated with youth satisfaction with surgical procedures performed to address oral cleft or craniofacial conditions (CFCs). It was hypothesized that youth mental health, participation in decision making, perceived consequences of living with a CFC, and coping strategies would be associated with satisfaction with past surgeries. A total of 203 youth between the ages of 11 and 18 years (mean age = 14.5, standard deviation = 2.0, 61% male participants, 78% oral cleft) completed a series of questionnaires measuring depression, self-esteem, participation in decision making, condition severity, negative and positive consequences of having a CFC, coping, and satisfaction with past surgeries. Multiple regression analysis using boot-strapping techniques found that youth participation in decision making, youth perception of positive consequences of having a CFC, and coping accounted for 32% of the variance in satisfaction with past surgeries (P < 0.001). Youth age, sex, and assessment of condition severity were not significantly associated with satisfaction with surgical outcome. Depression, self-esteem, and negative consequences of having a CFC were not associated with satisfaction with past surgeries. Youth should be actively involved in the decision for craniofacial surgery. Youth who were more satisfied with their surgical outcomes also viewed themselves as having gained from the experience of living with a CFC. They felt that having a CFC made them stronger people and they believed that they were more accepting of others and more in touch with others' feelings because of what they had been through.

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Year:  2015        PMID: 26114527      PMCID: PMC4500651          DOI: 10.1097/SCS.0000000000001892

Source DB:  PubMed          Journal:  J Craniofac Surg        ISSN: 1049-2275            Impact factor:   1.046


  18 in total

1.  Adolescent quality of life, part II: initial validation of a new instrument.

Authors:  Donald L Patrick; Todd C Edwards; Tari D Topolski
Journal:  J Adolesc       Date:  2002-06

2.  Adolescent quality of life, part I: conceptual and measurement model.

Authors:  Todd C Edwards; Colleen E Huebner; Frederick A Connell; Donald L Patrick
Journal:  J Adolesc       Date:  2002-06

Review 3.  Self-concept in youth with congenital facial differences: development and recommendations for medical providers.

Authors:  Patricia K Marik; Jennifer A Hoag
Journal:  Pediatr Dermatol       Date:  2012-05-29       Impact factor: 1.588

4.  Psychological and social factors in undergoing reconstructive surgery among individuals with craniofacial conditions: an exploratory study.

Authors:  Heather Bemmels; Barbara Biesecker; Johanna L Schmidt; Alyson Krokosky; Rick Guidotti; Erica J Sutton
Journal:  Cleft Palate Craniofac J       Date:  2012-02-08

5.  Habilitation of patients with clefts: parent and child ratings of satisfaction with appearance and speech.

Authors:  H L Broder; F B Smith; R P Strauss
Journal:  Cleft Palate Craniofac J       Date:  1992-05

6.  Psychological outcomes amongst cleft patients and their families.

Authors:  S R Turner; P W Thomas; T Dowell; N Rumsey; J R Sandy
Journal:  Br J Plast Surg       Date:  1997-01

7.  Appraisal and coping in adults with cleft lip: associations with well-being and social anxiety.

Authors:  V M Cochrane; P Slade
Journal:  Br J Med Psychol       Date:  1999-12

8.  Parameters for evaluation and treatment of patients with cleft lip/palate or other craniofacial anomalies. American Cleft Palate-Craniofacial Association. March, 1993.

Authors: 
Journal:  Cleft Palate Craniofac J       Date:  1993-03

9.  Visible difference amongst children and adolescents: issues and interventions.

Authors:  Nichola Rumsey; Diana Harcourt
Journal:  Dev Neurorehabil       Date:  2007 Apr-Jun       Impact factor: 2.308

10.  The relationships between objective and subjective ratings of disfigurement severity, and psychological adjustment.

Authors:  Timothy P Moss
Journal:  Body Image       Date:  2005-05-31
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  3 in total

1.  The Effect of Forearm Tattoos on Flap Choice in Transmasculine Phalloplasty Patients.

Authors:  Travis A Benson; Elizabeth R Boskey; Oren Ganor
Journal:  MDM Policy Pract       Date:  2020-06-29

2.  Exploring the Experiences of Adults With Microtia: A Qualitative Study.

Authors:  Claire Hamlet; Diana Harcourt
Journal:  Cleft Palate Craniofac J       Date:  2020-07-09

3.  Decision-Making in Cleft-Related Surgery: A Qualitative Analysis of Patients and Caregivers.

Authors:  Katelyn G Bennett; Annie K Patterson; Kylie Schafer; Madeleine Haase; Kavitha Ranganathan; Noelle Carlozzi; Christian J Vercler; Steven J Kasten; Steven R Buchman; Jennifer F Waljee
Journal:  Cleft Palate Craniofac J       Date:  2019-08-05
  3 in total

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