Literature DB >> 19028135

The development of a Patients Concerns Inventory (PCI) to help reveal patients concerns in the head and neck clinic.

S N Rogers1, J El-Sheikha, D Lowe.   

Abstract

The purpose of the Patients Concerns Inventory (PCI) is to identify the concerns that patients would like to discuss during their consultation. The PCI covers a range of issues including hearing, intimacy, fatigue, financial/benefits, PEG tube, relationships, regret, support for family, and wound healing. It also lists MDT members that patients would like to see or be referred on to. The PCI is completed using a touch-screen computer (TST) immediately before consultation. Responses are networked into the consultation room. A 28 weeks pilot for one consultant ran from August 2007 with 123 (of maximum 150) patients. The median time to complete the TST was 8min. Patients most frequently selected fear of recurrence (37%), dental health/teeth (27%), chewing (24%), pain in head/neck (20%), fatigue/tiredness (19%), saliva (18%) and swallowing (18%). The two MDT members they wished to see were dentist (19%) and speech/language therapist (10%). The vast majority felt the PCI made a difference (quite a bit/very much) to their consultation as it made it 'a bit more personal', 'reminds them of the points they want discussed', 'allows the consultation to get straight to the point'. Although the PCI can raise many issues it did not noticeably prolong the consultation (median 8min with PCI, 7min without PCI). The Patients Concerns Inventory (PCI) helps focus the consultation onto patient needs and promotes multidisciplinary care. Following this very successful pilot the PCI is being rolled out to other consultants in the H & N clinic.

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Mesh:

Year:  2008        PMID: 19028135     DOI: 10.1016/j.oraloncology.2008.09.004

Source DB:  PubMed          Journal:  Oral Oncol        ISSN: 1368-8375            Impact factor:   5.337


  41 in total

1.  Psychometric testing of the Chinese-version cancer needs questionnaire short form head and neck cancer-specific version in oral cavity cancer patients.

Authors:  Shu-Ching Chen; Yeur-Hur Lai; Sue-Yueh Cheng; Chun-Ta Liao; Joseph Tung-Chien Chang
Journal:  Support Care Cancer       Date:  2010-04-28       Impact factor: 3.603

2.  Treatment referral before and after the introduction of the Liverpool Patients Concerns Inventory (PCI) into routine head and neck oncology outpatient clinics.

Authors:  Naseem Ghazali; Anastasios Kanatas; Daniel J R Langley; Barry Scott; Derek Lowe; Simon N Rogers
Journal:  Support Care Cancer       Date:  2011-07-03       Impact factor: 3.603

Review 3.  Fear of cancer recurrence in adult cancer survivors: a systematic review of quantitative studies.

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4.  The (head and neck) carcinologic handicap index: validation of a modular type questionnaire and its ability to prioritise patients' needs.

Authors:  Mathieu Balaguer; Maëlle Champenois; Jérôme Farinas; Julien Pinquier; Virginie Woisard
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5.  Follow-up care in cancer: adjusting for referral targets and extending choice.

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6.  Issues patients would like to discuss at their review consultation: variation by early and late stage oral, oropharyngeal and laryngeal subsites.

Authors:  A Kanatas; N Ghazali; D Lowe; M Udberg; J Heseltine; E O'Mahony; S N Rogers
Journal:  Eur Arch Otorhinolaryngol       Date:  2012-06-29       Impact factor: 2.503

7.  Identifying pain-related concerns in routine follow-up clinics following oral and oropharyngeal cancer.

Authors:  Simon N Rogers; Alexander J Cleator; Derek Lowe; Naseem Ghazali
Journal:  World J Clin Oncol       Date:  2012-08-10

8.  Dismantling the present and future threats of testicular cancer: a grounded theory of positive and negative adjustment trajectories.

Authors:  Lauren Matheson; Mary Boulton; Verna Lavender; Andrew Protheroe; Sue Brand; Marta Wanat; Eila Watson
Journal:  J Cancer Surviv       Date:  2015-07-10       Impact factor: 4.442

9.  Follow-up care for cancer survivors: views of the younger adult.

Authors:  K Absolom; C Eiser; G Michel; S J Walters; B W Hancock; R E Coleman; J A Snowden; D M Greenfield
Journal:  Br J Cancer       Date:  2009-07-28       Impact factor: 7.640

10.  Assessment of a brain-tumour-specific Patient Concerns Inventory in the neuro-oncology clinic.

Authors:  Alasdair G Rooney; Anouk Netten; Shanne McNamara; Sara Erridge; Sharon Peoples; Ian Whittle; Belinda Hacking; Robin Grant
Journal:  Support Care Cancer       Date:  2013-11-29       Impact factor: 3.603

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