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Literature DB >> 19014811

Patient registry analyses: seize the data, but caveat lector.

Michael S Schechter.

Abstract

Entities: Species

Mesh：

Year: 2008 PMID： 19014811 DOI： 10.1016/j.jpeds.2008.09.011

Source DB: PubMed Journal: J Pediatr ISSN： 0022-3476 Impact factor: 4.406

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Cited

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11 in total

1. Sociodemographic attributes and spina bifida outcomes.

Authors: Michael S Schechter; Tiebin Liu; Minn Soe; Mark Swanson; Elisabeth Ward; Judy Thibadeau
Journal: Pediatrics Date: 2015-03-16 Impact factor: 7.124

2. Variation in bowel and bladder continence across US spina bifida programs: A descriptive study.

Authors: Kurt A Freeman; Heidi Castillo; Jonathan Castillo; Tiebin Liu; Michael Schechter; John S Wiener; Judy Thibadeau; Elisabeth Ward; Timothy Brei
Journal: J Pediatr Rehabil Med Date: 2017-12-11

Review 3. The changing microbial epidemiology in cystic fibrosis.

Authors: John J Lipuma
Journal: Clin Microbiol Rev Date: 2010-04 Impact factor: 26.132

4. The National Spina Bifida Patient Registry: profile of a large cohort of participants from the first 10 clinics.

Authors: Kathleen J Sawin; Tiebin Liu; Elisabeth Ward; Judy Thibadeau; Michael S Schechter; Minn M Soe; William Walker
Journal: J Pediatr Date: 2014-10-30 Impact factor: 4.406

Review 5. Use of FEV₁ in cystic fibrosis epidemiologic studies and clinical trials: A statistical perspective for the clinical researcher.

Authors: Rhonda Szczesniak; Sonya L Heltshe; Sanja Stanojevic; Nicole Mayer-Hamblett
Journal: J Cyst Fibros Date: 2017-01-20 Impact factor: 5.482

6. Dynamics of Disease Progression and Gastrostomy Tube Placement in Children and Adolescents with Cystic Fibrosis: Application of Joint Models for Longitudinal and Time-to-Event Data.

Authors: Rhonda Szczesniak; Weiji Su; J P Clancy
Journal: Intern Med Rev (Wash D C) Date: 2016-10

10. Factors Associated With Ambulation in Myelomeningocele: A Longitudinal Study From the National Spina Bifida Patient Registry.

Authors: W Austin Davis; Christina K Zigler; Theresa M Crytzer; Sara Izzo; Amy J Houtrow; Brad E Dicianno
Journal: Am J Phys Med Rehabil Date: 2020-07 Impact factor: 3.412

Patient registry analyses: seize the data, but caveat lector.

1. Sociodemographic attributes and spina bifida outcomes.

2. Variation in bowel and bladder continence across US spina bifida programs: A descriptive study.

Review 3. The changing microbial epidemiology in cystic fibrosis.

4. The National Spina Bifida Patient Registry: profile of a large cohort of participants from the first 10 clinics.

Review 5. Use of FEV₁ in cystic fibrosis epidemiologic studies and clinical trials: A statistical perspective for the clinical researcher.

6. Dynamics of Disease Progression and Gastrostomy Tube Placement in Children and Adolescents with Cystic Fibrosis: Application of Joint Models for Longitudinal and Time-to-Event Data.

Review 7. Can outcomes in Duchenne muscular dystrophy be improved by public reporting of data?

8. Relationship of Initial Pancreatic Enzyme Replacement Therapy Dose With Weight Gain in Infants With Cystic Fibrosis.

9. Testing the feasibility of a National Spina Bifida Patient Registry.

10. Factors Associated With Ambulation in Myelomeningocele: A Longitudinal Study From the National Spina Bifida Patient Registry.

Review 3. The changing microbial epidemiology in cystic fibrosis.

Review 5. Use of FEV1 in cystic fibrosis epidemiologic studies and clinical trials: A statistical perspective for the clinical researcher.

Review 7. Can outcomes in Duchenne muscular dystrophy be improved by public reporting of data?

Review 5. Use of FEV₁ in cystic fibrosis epidemiologic studies and clinical trials: A statistical perspective for the clinical researcher.