Literature DB >> 26078727

Leaping the Data Chasm: Structuring Donation of Clinical Data for Healthcare Innovation and Modeling.

Patrick L Taylor, Kenneth D Mandl.   

Abstract

Entities:  

Year:  2015        PMID： 26078727      PMCID： PMC4465121     

Source DB:  PubMed          Journal:  Harvard Health Policy Rev        ISSN： 1533-774X


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  14 in total

1.  Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm.

Authors:  Paul Wicks; Timothy E Vaughan; Michael P Massagli; James Heywood
Journal:  Nat Biotechnol       Date:  2011-04-24       Impact factor: 54.908

2.  Mobile push: Blue Button focus of government IT strategy.

Authors:  Joseph Conn
Journal:  Mod Healthc       Date:  2012-05-28

3.  No small change for the health information economy.

Authors:  Kenneth D Mandl; Isaac S Kohane
Journal:  N Engl J Med       Date:  2009-03-26       Impact factor: 91.245

4.  Personal genomes: when consent gets in the way.

Authors:  Patrick Taylor
Journal:  Nature       Date:  2008-11-06       Impact factor: 49.962

5.  Tectonic shifts in the health information economy.

Authors:  Kenneth D Mandl; Isaac S Kohane
Journal:  N Engl J Med       Date:  2008-04-17       Impact factor: 91.245

6.  Patient interest in sharing personal health record information: a web-based survey.

Authors:  Donna M Zulman; Kim M Nazi; Carolyn L Turvey; Todd H Wagner; Susan S Woods; Larry C An
Journal:  Ann Intern Med       Date:  2011-12-20       Impact factor: 25.391

7.  A systems approach to designing effective clinical trials using simulations.

Authors:  Vincent A Fusaro; Prasad Patil; Chih-Lin Chi; Charles F Contant; Peter J Tonellato
Journal:  Circulation       Date:  2012-12-21       Impact factor: 29.690

8.  A public resource facilitating clinical use of genomes.

Authors:  Madeleine P Ball; Joseph V Thakuria; Alexander Wait Zaranek; Tom Clegg; Abraham M Rosenbaum; Xiaodi Wu; Misha Angrist; Jong Bhak; Jason Bobe; Matthew J Callow; Carlos Cano; Michael F Chou; Wendy K Chung; Shawn M Douglas; Preston W Estep; Athurva Gore; Peter Hulick; Alberto Labarga; Je-Hyuk Lee; Jeantine E Lunshof; Byung Chul Kim; Jong-Il Kim; Zhe Li; Michael F Murray; Geoffrey B Nilsen; Brock A Peters; Anugraha M Raman; Hugh Y Rienhoff; Kimberly Robasky; Matthew T Wheeler; Ward Vandewege; Daniel B Vorhaus; Joyce L Yang; Luhan Yang; John Aach; Euan A Ashley; Radoje Drmanac; Seong-Jin Kim; Jin Billy Li; Leonid Peshkin; Christine E Seidman; Jeong-Sun Seo; Kun Zhang; Heidi L Rehm; George M Church
Journal:  Proc Natl Acad Sci U S A       Date:  2012-07-13       Impact factor: 11.205

9.  Sharing data for public health research by members of an international online diabetes social network.

Authors:  Elissa R Weitzman; Ben Adida; Skyler Kelemen; Kenneth D Mandl
Journal:  PLoS One       Date:  2011-04-27       Impact factor: 3.240

10.  Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another's data.

Authors:  Jeana H Frost; Michael P Massagli
Journal:  J Med Internet Res       Date:  2008-05-27       Impact factor: 5.428
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  3 in total

1.  Driving Innovation in Health Systems through an Apps-Based Information Economy.

Authors:  Kenneth D Mandl; Joshua C Mandel; Isaac S Kohane
Journal:  Cell Syst       Date:  2015-07       Impact factor: 10.304

2.  A proposal for shoring up Federal Trade Commission protections for electronic health record-connected consumer apps under 21st Century Cures.

Authors:  Raheel Sayeed; James Jones; Daniel Gottlieb; Joshua C Mandel; Kenneth D Mandl
Journal:  J Am Med Inform Assoc       Date:  2021-03-01       Impact factor: 4.497

3.  To Share or Not to Share: Ethical Acquisition and Use of Medical Data.

Authors:  Kate Fultz Hollis
Journal:  AMIA Jt Summits Transl Sci Proc       Date:  2016-07-20
  3 in total

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