Literature DB >> 18693872

Digital partnerships for health: steps to develop a community-specific health portal aimed at promoting health and well-being.

Rita Kukafka1, Sharib A Khan, Carly Hutchinson, Delano J McFarlane, Jianhua Li, Jessica S Ancker, Alwyn Cohall.   

Abstract

We describe the steps taken by the Harlem Health Promotion Center to develop a community-specific health web portal aimed at promoting health and well-being in Harlem. Methods and results that begin with data collection and move onto elucidating requirements for the web portal are discussed. Sentiments of distrust in medical institutions, and the desire for community specific content and resources were among the needs emanating from our data analysis. These findings guided our decision to customize social software designed to foster connections, collaborations, flexibility, and interactivity; an "architecture of participation". While, we maintain that the leveraging of social software may indeed be the way to build healthy communities and support learning and engagement in underserved communities, our conclusion calls for careful thinking, testing and evaluation research to establish best practice models for leveraging these emerging technologies to support health improvements in the community.

Mesh:

Year:  2007        PMID: 18693872      PMCID: PMC2655847     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN: 1559-4076


  4 in total

1.  Race, ethnicity, and the health care system: public perceptions and experiences.

Authors:  M Lillie-Blanton; M Brodie; D Rowland; D Altman; M McIntosh
Journal:  Med Care Res Rev       Date:  2000       Impact factor: 3.929

2.  Attitudes about racism, medical mistrust, and satisfaction with care among African American and white cardiac patients.

Authors:  T A LaVeist; K J Nickerson; J V Bowie
Journal:  Med Care Res Rev       Date:  2000       Impact factor: 3.929

3.  How white and African Americans view their health and social problems. Different experiences, different expectations.

Authors:  R J Blendon; A C Scheck; K Donelan; C A Hill; M Smith; D Beatrice; D Altman
Journal:  JAMA       Date:  1995-01-25       Impact factor: 56.272

4.  Attitudes and beliefs of African Americans toward participation in medical research.

Authors:  G Corbie-Smith; S B Thomas; M V Williams; S Moody-Ayers
Journal:  J Gen Intern Med       Date:  1999-09       Impact factor: 5.128

  4 in total
  12 in total

1.  GetHealthyHarlem.org: developing a web platform for health promotion and wellness driven by and for the Harlem community.

Authors:  Sharib A Khan; Jessica S Ancker; Jianhua Li; David Kaufman; Carly Hutchinson; Alwyn Cohall; Rita Kukafka
Journal:  AMIA Annu Symp Proc       Date:  2009-11-14

2.  Using health information technology to engage communities in health, education, and research.

Authors:  Lisa K Marriott; David A Nelson; Shauntice Allen; Karen Calhoun; Christina E Eldredge; Kim S Kimminau; Robert J Lucero; Fernando Pineda-Reyes; Bernice B Rumala; Arti P Varanasi; June S Wasser; Jackilen Shannon
Journal:  Sci Transl Med       Date:  2012-02-01       Impact factor: 17.956

3.  A vector space method to quantify agreement in qualitative data.

Authors:  Delano J McFarlane; Jessica S Ancker; Rita Kukafka
Journal:  AMIA Annu Symp Proc       Date:  2008-11-06

4.  Social determinants of health in mental health care and research: a case for greater inclusion.

Authors:  Joseph J Deferio; Scott Breitinger; Dhruv Khullar; Amit Sheth; Jyotishman Pathak
Journal:  J Am Med Inform Assoc       Date:  2019-08-01       Impact factor: 4.497

5.  Does a Community-Engaged Health Informatics Platform Facilitate Resource Connectivity? An Evaluation Framework.

Authors:  Mari Millery; Alejandra N Aguirre; Rita Kukafka
Journal:  AMIA Annu Symp Proc       Date:  2018-04-16

6.  Good intentions are not enough: how informatics interventions can worsen inequality.

Authors:  Tiffany C Veinot; Hannah Mitchell; Jessica S Ancker
Journal:  J Am Med Inform Assoc       Date:  2018-08-01       Impact factor: 4.497

7.  Design of a Community-Engaged Health Informatics Platform with an Architecture of Participation.

Authors:  Mari Millery; Wilson Ramos; Chueh Lien; Alejandra N Aguirre; Rita Kukafka
Journal:  AMIA Annu Symp Proc       Date:  2015-11-05

8.  Peer-to-peer communication, cancer prevention, and the internet.

Authors:  Jessica S Ancker; Kristen M Carpenter; Paul Greene; Randi Hoffman; Rita Kukafka; Laura A V Marlow; Holly G Prigerson; John M Quillin
Journal:  J Health Commun       Date:  2009

9.  Interactive graphics for expressing health risks: development and qualitative evaluation.

Authors:  Jessica S Ancker; Connie Chan; Rita Kukafka
Journal:  J Health Commun       Date:  2009 Jul-Aug

10.  Iterative evaluation of a web-based health information resource.

Authors:  Lindsay Rosenfeld; Amy Shepherd; Amenah A Agunwamba; Alexa T McCray
Journal:  J Health Commun       Date:  2013-04-11
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