Literature DB >> 26958227

Design of a Community-Engaged Health Informatics Platform with an Architecture of Participation.

Mari Millery1, Wilson Ramos1, Chueh Lien1, Alejandra N Aguirre2, Rita Kukafka1.   

Abstract

Community-engaged health informatics (CEHI) applies information technology and participatory approaches to improve the health of communities. Our objective was to translate the concept of CEHI into a usable and replicable informatics platform that will facilitate community-engaged practice and research. The setting is a diverse urban neighborhood in New York City. The methods included community asset mapping, stakeholder interviews, logic modeling, analysis of affordances in open-source tools, elicitation of use cases and requirements, and a survey of early adopters. Based on synthesis of data collected, GetHealthyHeigths.org (GHH) was developed using open-source LAMP stack and Drupal content management software. Drupal's organic groups module was used for novel participatory functionality, along with detailed user roles and permissions. Future work includes evaluation of GHH and its impact on agency and service networks. We plan to expand GHH with additional functionality to further support CEHI by combining informatics solutions with community engagement to improve health.

Entities:  

Mesh:

Year:  2015        PMID: 26958227      PMCID: PMC4765661     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN: 1559-4076


  14 in total

1.  The NewYork-Presbyterian Regional Health Collaborative: a three-year progress report.

Authors:  J Emilio Carrillo; Victor A Carrillo; Robert Guimento; Jaclyn Mucaria; Joan Leiman
Journal:  Health Aff (Millwood)       Date:  2014-11       Impact factor: 6.301

2.  Strategies for academic and clinician engagement in community-participatory partnered research.

Authors:  Loretta Jones; Kenneth Wells
Journal:  JAMA       Date:  2007-01-24       Impact factor: 56.272

3.  The nature of evidence resources and knowledge translation for health promotion practitioners.

Authors:  Rebecca Armstrong; Elizabeth Waters; Belinda Crockett; Helen Keleher
Journal:  Health Promot Int       Date:  2007-06-27       Impact factor: 2.483

4.  Digital partnerships for health: steps to develop a community-specific health portal aimed at promoting health and well-being.

Authors:  Rita Kukafka; Sharib A Khan; Carly Hutchinson; Delano J McFarlane; Jianhua Li; Jessica S Ancker; Alwyn Cohall
Journal:  AMIA Annu Symp Proc       Date:  2007-10-11

Review 5.  Review of community-based research: assessing partnership approaches to improve public health.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Annu Rev Public Health       Date:  1998       Impact factor: 21.981

6.  Building healthy communities beyond the hospital walls.

Authors:  T R Goldman
Journal:  Health Aff (Millwood)       Date:  2014-11       Impact factor: 6.301

7.  Using innovative instructional technology to meet training needs in public health: a design process.

Authors:  Mari Millery; Michelle Hall; Joanna Eisman; Marita Murrman
Journal:  Health Promot Pract       Date:  2014-03

8.  Implementing evidence-based practice in community mental health agencies: a multiple stakeholder analysis.

Authors:  Gregory A Aarons; Rebecca S Wells; Karen Zagursky; Danielle L Fettes; Lawrence A Palinkas
Journal:  Am J Public Health       Date:  2009-09-17       Impact factor: 9.308

9.  Toward a science of learning systems: a research agenda for the high-functioning Learning Health System.

Authors:  Charles Friedman; Joshua Rubin; Jeffrey Brown; Melinda Buntin; Milton Corn; Lynn Etheredge; Carl Gunter; Mark Musen; Richard Platt; William Stead; Kevin Sullivan; Douglas Van Houweling
Journal:  J Am Med Inform Assoc       Date:  2014-10-23       Impact factor: 4.497

10.  What is "community health"? Examining the meaning of an evolving field in public health.

Authors:  Richard A Goodman; Rebecca Bunnell; Samuel F Posner
Journal:  Prev Med       Date:  2014-07-26       Impact factor: 4.018

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  6 in total

1.  Using a community-engaged health informatics approach to develop a web analytics research platform for sharing data with community stakeholders.

Authors:  Karen H Wang; Luis Marenco; Johanna Elumn Madera; Jenerius A Aminawung; Emily A Wang; Kei-Hoi Cheung
Journal:  AMIA Annu Symp Proc       Date:  2018-04-16

2.  Does a Community-Engaged Health Informatics Platform Facilitate Resource Connectivity? An Evaluation Framework.

Authors:  Mari Millery; Alejandra N Aguirre; Rita Kukafka
Journal:  AMIA Annu Symp Proc       Date:  2018-04-16

3.  Toward Reducing Health Information Inequities in the Caribbean: Our Experience Building a Participatory Health Informatics Project.

Authors:  Karen Wang; Ian Hambleton; Erika Linnander; Luis Marenco; Saria Hassan; Mahima Kumara; Lyna E Fredericks; Saida Harrigan; Trevor A Hasse; Cynthia Brandt; Marcella Nunez-Smith
Journal:  Ethn Dis       Date:  2020-04-02       Impact factor: 1.847

4.  Trust and credibility of information sources related to COVID-19 among high-risk ethnically diverse adults at the onset of the New York City outbreak: A cross-sectional survey conducted via a community health portal.

Authors:  Rita Kukafka; Mari Millery; Samuel Pan; Thomas B Silverman; Julia E McGuinness; Katherine D Crew
Journal:  AMIA Annu Symp Proc       Date:  2022-02-21

Review 5.  Intersection of Health Informatics Tools and Community Engagement in Health-Related Research to Reduce Health Inequities: Scoping Review.

Authors:  Geetanjali Rajamani; Patricia Rodriguez Espinosa; Lisa G Rosas
Journal:  J Particip Med       Date:  2021-11-19

6.  Patient Engagement in Medical Research Among Older Adults: Analysis of the Health Information National Trends Survey.

Authors:  Lynette Hammond Gerido; Xiang Tang; Brittany Ernst; Aisha Langford; Zhe He
Journal:  J Med Internet Res       Date:  2019-10-29       Impact factor: 5.428

  6 in total

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