Literature DB >> 18693814

Threading together patient expertise.

Andrea Civan1, Wanda Pratt.   

Abstract

Patients are valuable sources of expertise for other patients in similar situations, but little is understood about the nature of this expertise. To address this knowledge gap, we investigated informational support as a mechanism for peers to help one another learn to cope with the breast cancer experience. We analyzed the types of problems discussed and recommendations offered by correspondents in three online breast cancer communities. Informational support was prevalent and directed towards problems in which correspondents were planning for future events or coping with emergent situations. Peers shared a wealth of patient expertise, including action strategies, recommended knowledge, suggested approaches, and information resources for dealing with problems. Our results highlight how peers are helping one another to learn. These findings bring insight to new support we could provide to patients for developing and sharing patient expertise, such as problem-based information organization and functionality for collaborative problem solving.

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Mesh:

Year:  2007        PMID: 18693814      PMCID: PMC2655889     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN: 1559-4076


  12 in total

Review 1.  Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions.

Authors:  Gunther Eysenbach; John Powell; Marina Englesakis; Carlos Rizo; Anita Stern
Journal:  BMJ       Date:  2004-05-15

2.  Self-help on-line: an outcome evaluation of breast cancer bulletin boards.

Authors:  Morton A Lieberman; Benjamin A Goldstein
Journal:  J Health Psychol       Date:  2005-11

3.  Communicating breast cancer on-line: support and empowerment on the Internet.

Authors:  B F Sharf
Journal:  Women Health       Date:  1997

Review 4.  Social support and adjustment to cancer: reconciling descriptive, correlational, and intervention research.

Authors:  V S Helgeson; S Cohen
Journal:  Health Psychol       Date:  1996-03       Impact factor: 4.267

5.  Online help: cancer patients participate in a computer-mediated support group.

Authors:  N Weinberg; J Schmale; J Uken; K Wessel
Journal:  Health Soc Work       Date:  1996-02

6.  Gender differences on Internet cancer support groups.

Authors:  P Klemm; M Hurst; S L Dearholt; S R Trone
Journal:  Comput Nurs       Date:  1999 Mar-Apr

7.  Evaluation of an internet support group for women with primary breast cancer.

Authors:  Andrew J Winzelberg; Catherine Classen; Georg W Alpers; Heidi Roberts; Cheryl Koopman; Robert E Adams; Heidemarie Ernst; Parvati Dev; C Barr Taylor
Journal:  Cancer       Date:  2003-03-01       Impact factor: 6.860

8.  Online interaction. Effects of storytelling in an internet breast cancer support group.

Authors:  Mette Terp Høybye; Christoffer Johansen; Tine Tjørnhøj-Thomsen
Journal:  Psychooncology       Date:  2005-03       Impact factor: 3.894

9.  What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs.

Authors:  Linda Rozmovits; Sue Ziebland
Journal:  Patient Educ Couns       Date:  2004-04

Review 10.  Online cancer support groups: a review of the research literature.

Authors:  Paula Klemm; Dyane Bunnell; Maureen Cullen; Rachna Soneji; Patricia Gibbons; Andrea Holecek
Journal:  Comput Inform Nurs       Date:  2003 May-Jun       Impact factor: 1.985

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  21 in total

1.  Characterizing the sublanguage of online breast cancer forums for medications, symptoms, and emotions.

Authors:  Noémie Elhadad; Shaodian Zhang; Patricia Driscoll; Samuel Brody
Journal:  AMIA Annu Symp Proc       Date:  2014-11-14

2.  The meaning of social support for persons with serious mental illness.

Authors:  Julie Chronister; Chih-Chin Chou; Kwong-Liem Karl Kwan; Melissa Lawton; Kurt Silver
Journal:  Rehabil Psychol       Date:  2015-05-25

3.  Factors Contributing to Dropping-out in an Online Health Community: Static and Longitudinal Analyses.

Authors:  Shaodian Zhang; Noémie Elhadad
Journal:  AMIA Annu Symp Proc       Date:  2017-02-10

4.  Advice to patients undergoing stem cell transplant: Content analysis of survivor peer support narratives.

Authors:  Yael R Symes; Clare Barrington; Jane Austin; Lisa M Wu; Edwin B Fisher; Christine Rini
Journal:  J Health Psychol       Date:  2016-05-29

5.  The Invisible Work of Being a Patient and Implications for Health Care: "[the doctor is] my business partner in the most important business in my life, staying alive"

Authors:  Kenton T Unruh; Wanda Pratt
Journal:  Conf Proc Ethnogr Prax Ind Conf       Date:  2008-11

6.  Exploring the Design of an Inpatient Peer Support Tool: Views of Adult Patients.

Authors:  Shefali Haldar; Sonali R Mishra; Maher Khelifi; Ari H Pollack; Wanda Pratt
Journal:  AMIA Annu Symp Proc       Date:  2018-12-05

7.  Catalyzing Social Support for Breast Cancer Patients.

Authors:  Meredith M Skeels; Kenton T Unruh; Christopher Powell; Wanda Pratt
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2010-04

8.  Online discussion of drug side effects and discontinuation among breast cancer survivors.

Authors:  Jun J Mao; Annie Chung; Adrian Benton; Shawndra Hill; Lyle Ungar; Charles E Leonard; Sean Hennessy; John H Holmes
Journal:  Pharmacoepidemiol Drug Saf       Date:  2013-01-16       Impact factor: 2.890

9.  Peer-to-peer communication, cancer prevention, and the internet.

Authors:  Jessica S Ancker; Kristen M Carpenter; Paul Greene; Randi Hoffman; Rita Kukafka; Laura A V Marlow; Holly G Prigerson; John M Quillin
Journal:  J Health Commun       Date:  2009

10.  Closing the Gap: Supporting Patients' Transition to Self-Management after Hospitalization.

Authors:  Ari H Pollack; Uba Backonja; Andrew D Miller; Sonali R Mishra; Maher Khelifi; Logan Kendall; Wanda Pratt
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2016-05
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