Literature DB >> 18472317

Supporting bereaved parents: practical steps in providing compassionate perinatal and neonatal end-of-life care. A North American perspective.

Constance Williams1, David Munson, John Zupancic, Haresh Kirpalani.   

Abstract

Providing compassionate bereavement support challenges care-givers in perinatal medicine. A practical and consistent approach tailored to individual families may increase the care-giver's ability to relieve parental grief. This approach includes: (1) clear and consistent communication compassionately delivered; (2) shared decision-making; (3) physical and emotional support; and (4) follow-up medical, psychological and social care. Challenges to providing comprehensive end-of-life care include care-giver comfort, consistency of care, cultural and legal barriers, and lack of adequate training.

Mesh:

Year:  2008        PMID: 18472317     DOI: 10.1016/j.siny.2008.03.005

Source DB:  PubMed          Journal:  Semin Fetal Neonatal Med        ISSN: 1744-165X            Impact factor:   3.926


  18 in total

Review 1.  Support for mothers, fathers and families after perinatal death.

Authors:  Laura Koopmans; Trish Wilson; Joanne Cacciatore; Vicki Flenady
Journal:  Cochrane Database Syst Rev       Date:  2013-06-19

2.  Parental Moral Distress and Moral Schism in the Neonatal ICU.

Authors:  Gabriella Foe; Jonathan Hellmann; Rebecca A Greenberg
Journal:  J Bioeth Inq       Date:  2018-05-25       Impact factor: 1.352

3.  Parent's Lived Experience of Memory Making With Their Child at or Near End of Life.

Authors:  Terrie Clarke; Michael Connolly
Journal:  Am J Hosp Palliat Care       Date:  2021-09-16       Impact factor: 2.090

Review 4.  Perinatal bereavement: a principle-based concept analysis.

Authors:  Kimberly Fenstermacher; Judith E Hupcey
Journal:  J Adv Nurs       Date:  2013-03-04       Impact factor: 3.187

5.  A qualitative study of nurse observations of symptoms in infants at end-of-life in the neonatal intensive care unit.

Authors:  Christine A Fortney; Deborah K Steward
Journal:  Intensive Crit Care Nurs       Date:  2017-02-08       Impact factor: 3.072

6.  Medical record documentation and symptom management at the end of life in the NICU.

Authors:  Christine A Fortney; Deborah K Steward
Journal:  Adv Neonatal Care       Date:  2015-02       Impact factor: 1.968

7.  Using Agency Nurses to Fill RN Vacancies Within Specialized Hospice and Palliative Care.

Authors:  Melanie J Cozad; Lisa C Lindley; Sandy J Mixer
Journal:  Policy Polit Nurs Pract       Date:  2016-09-27

8.  Acknowledged Dependence and the Virtues of Perinatal Hospice.

Authors:  Aaron D Cobb
Journal:  J Med Philos       Date:  2015-12-08

Review 9.  The model of Palliative Care in the perinatal setting: a review of the literature.

Authors:  Albert Balaguer; Ana Martín-Ancel; Darío Ortigoza-Escobar; Joaquín Escribano; Josep Argemi
Journal:  BMC Pediatr       Date:  2012-03-12       Impact factor: 2.125

10.  Women's Experiences With Palliative Care During Pregnancy.

Authors:  Andrea Crawford; Amelia Hopkin; Mary Rindler; Erin Johnson; Lauren Clark; Erin Rothwell
Journal:  J Obstet Gynecol Neonatal Nurs       Date:  2021-03-26
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