Literature DB >> 18308988

US and Scottish health professionals' attitudes toward DNA biobanking.

David A Leiman1, Nancy M Lorenzi, Jeremy C Wyatt, Alex S F Doney, S Trent Rosenbloom.   

Abstract

BACKGROUND: The authors define a DNA biobank as a repository of genetic information correlated with patient medical records. DNA biobanks may assist in the research and identification of genetic factors influencing disease and drug interactions, but may raise ethical issues. How healthcare providers perceive DNA biobanks is unknown.
OBJECTIVES: To determine how useful healthcare professionals believe DNA biobanks will be and whether these attitudes differ between private and socialized healthcare systems.
DESIGN: The authors surveyed 200 healthcare professionals, including research and non-research focused doctors, nurses and other staff from medical centers and independent practice in both the United States and Scotland. The survey included fifteen items evaluated for general receptiveness toward biobanks, presumed usefulness of biobanks and perceived attitudes in recruiting patients for a biobank. MEASUREMENTS: A total of 81 (45%) of 179 eligible participants responded: 41 from the U.S. and 40 from Scotland. Of these respondents, most (70%) were from academic centers.
RESULTS: Results indicate that there is a broadly favorable attitude in both locations toward the creation of a DNA biobank (83%) and its perceived benefit (75%). This enthusiasm is tempered in Scotland when respondents evaluated their comfort in consenting patients for entry into a biobank; 16 of 40 respondents (40%) were uncomfortable doing so, representing a significant difference from those in the U.S. (p=0.001).
CONCLUSIONS: Despite systematic differences in healthcare practice between the U.S. and Scotland, health care professionals in both nations believe DNA biobanks will be useful in curing disease. This finding appears to support further development of such a research tool.

Entities:  

Mesh:

Year:  2008        PMID: 18308988      PMCID: PMC2410009          DOI: 10.1197/jamia.M2571

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  12 in total

1.  Determining the identifiability of DNA database entries.

Authors:  B Malin; L Sweeney
Journal:  Proc AMIA Symp       Date:  2000

2.  Banking (on) genes: DNA sought as key to disease causes and cures.

Authors:  Mike Mitka
Journal:  JAMA       Date:  2002-12-18       Impact factor: 56.272

3.  A vision for the future of genomics research.

Authors:  Francis S Collins; Eric D Green; Alan E Guttmacher; Mark S Guyer
Journal:  Nature       Date:  2003-04-14       Impact factor: 49.962

4.  Disease and disadvantage in the United States and in England.

Authors:  James Banks; Michael Marmot; Zoe Oldfield; James P Smith
Journal:  JAMA       Date:  2006-05-03       Impact factor: 56.272

5.  What genome-wide association studies can do for medicine.

Authors:  Kaare Christensen; Jeffrey C Murray
Journal:  N Engl J Med       Date:  2007-03-15       Impact factor: 91.245

6.  Replicating genotype-phenotype associations.

Authors:  Stephen J Chanock; Teri Manolio; Michael Boehnke; Eric Boerwinkle; David J Hunter; Gilles Thomas; Joel N Hirschhorn; Goncalo Abecasis; David Altshuler; Joan E Bailey-Wilson; Lisa D Brooks; Lon R Cardon; Mark Daly; Peter Donnelly; Joseph F Fraumeni; Nelson B Freimer; Daniela S Gerhard; Chris Gunter; Alan E Guttmacher; Mark S Guyer; Emily L Harris; Josephine Hoh; Robert Hoover; C Augustine Kong; Kathleen R Merikangas; Cynthia C Morton; Lyle J Palmer; Elizabeth G Phimister; John P Rice; Jerry Roberts; Charles Rotimi; Margaret A Tucker; Kyle J Vogan; Sholom Wacholder; Ellen M Wijsman; Deborah M Winn; Francis S Collins
Journal:  Nature       Date:  2007-06-07       Impact factor: 49.962

Review 7.  Should donors be allowed to give broad consent to future biobank research?

Authors:  Mats G Hansson; Joakim Dillner; Claus R Bartram; Joyce A Carlson; Gert Helgesson
Journal:  Lancet Oncol       Date:  2006-03       Impact factor: 41.316

Review 8.  One-time general consent for research on biological samples.

Authors:  David Wendler
Journal:  BMJ       Date:  2006-03-04

9.  Attaining adequate consent for the use of electronic patient records: an opt-out strategy to reconcile individuals' rights and public benefit.

Authors:  Alexander M Clark; Iain N Findlay
Journal:  Public Health       Date:  2005-09-26       Impact factor: 2.427

10.  DNA databanks and consent: a suggested policy option involving an authorization model.

Authors:  Timothy Caulfield; Ross E G Upshur; Abdallah Daar
Journal:  BMC Med Ethics       Date:  2003-01-03       Impact factor: 2.652

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  6 in total

1.  The value of using top-down and bottom-up approaches for building trust and transparency in biobanking.

Authors:  Eric M Meslin
Journal:  Public Health Genomics       Date:  2010-04-15       Impact factor: 2.000

Review 2.  Health professionals' opinions on supporting a cancer biobank: identification of barriers to combat biobanking pitfalls.

Authors:  Nicole J Caixeiro; Hei Lan Byun; Joseph Descallar; Janelle V Levesque; Paul de Souza; Cheok Soon Lee
Journal:  Eur J Hum Genet       Date:  2015-09-02       Impact factor: 4.246

3.  Ethical and practical challenges to studying patients who opt out of large-scale biorepository research.

Authors:  S Trent Rosenbloom; Jennifer L Madison; Kyle B Brothers; Erica A Bowton; Ellen Wright Clayton; Bradley A Malin; Dan M Roden; Jill Pulley
Journal:  J Am Med Inform Assoc       Date:  2013-07-25       Impact factor: 4.497

4.  Development and validation of the biobanking attitudes and knowledge survey (BANKS).

Authors:  Kristen J Wells; Mariana Arevalo; Cathy D Meade; Clement K Gwede; Gwendolyn P Quinn; John S Luque; Gloria San Miguel; Dale Watson; Rebecca Phillips; Carmen Reyes; Margarita Romo; Jim West; Paul B Jacobsen
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2014-03       Impact factor: 4.254

Review 5.  Ethical aspects of human biobanks: a systematic review.

Authors:  Danijela Budimir; Ozren Polasek; Ana Marusić; Ivana Kolcić; Tatijana Zemunik; Vesna Boraska; Ana Jeroncić; Mladen Boban; Harry Campbell; Igor Rudan
Journal:  Croat Med J       Date:  2011-06       Impact factor: 1.351

6.  "It's my blood": ethical complexities in the use, storage and export of biological samples: perspectives from South African research participants.

Authors:  Keymanthri Moodley; Nomathemba Sibanda; Kelsey February; Theresa Rossouw
Journal:  BMC Med Ethics       Date:  2014-01-22       Impact factor: 2.652

  6 in total

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