Literature DB >> 18281920

The feasibility of online genetic testing for lung cancer susceptibility: uptake of a web-based protocol and decision outcomes.

Suzanne C O'Neill1, Della Brown White, Saskia C Sanderson, Isaac M Lipkus, Gerold Bepler, Lori A Bastian, Colleen M McBride.   

Abstract

PURPOSE: To examine the feasibility of offering genetic susceptibility testing for lung cancer (GSTM1) via the Internet to smokers who were blood relatives of patients with lung cancer. Outcomes include proportion who logged on to the study website to consider testing, made informed decisions to log on and to be tested.
METHODS: Baseline measures were assessed via telephone survey. Participants could choose to log on to the study website; those who did were offered testing. Informed decisions to log on and to be tested were indicated by concordance between the decision outcome and test-related attitudes and knowledge.
RESULTS: Three hundred four relatives completed baseline interviews. One hundred sixteen eligible relatives expressed further interest in receiving information via the web. Fifty-eight logged on and 44 tested. Those logging on expressed greater quit motivation, awareness of cancer genetic testing, and were more likely to be daily Internet users than those who did not log on. Approximately half of the sample made informed decisions to log on and to be tested.
CONCLUSION: Interest in a web-based protocol for genetic susceptibility testing was high. Internet-delivered decision support was as likely as other modalities to yield informed decisions. Some subgroups may need additional support to improve their decision outcomes.

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Year:  2008        PMID: 18281920     DOI: 10.1097/GIM.0b013e31815f8e06

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


  21 in total

1.  Responses to online GSTM1 genetic test results among smokers related to patients with lung cancer: a pilot study.

Authors:  Saskia C Sanderson; Suzanne C O'Neill; Della Brown White; Gerold Bepler; Lori Bastian; Isaac M Lipkus; Colleen M McBride
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2009-06-30       Impact factor: 4.254

Review 2.  Direct-to-consumer genomic testing: systematic review of the literature on user perspectives.

Authors:  Lesley Goldsmith; Leigh Jackson; Anita O'Connor; Heather Skirton
Journal:  Eur J Hum Genet       Date:  2012-02-15       Impact factor: 4.246

3.  Patient's lung cancer diagnosis as a cue for relatives' smoking cessation: evaluating the constructs of the teachable moment.

Authors:  Colleen M McBride; Michelle Blocklin; Isaac M Lipkus; William M P Klein; Thomas H Brandon
Journal:  Psychooncology       Date:  2015-10-30       Impact factor: 3.894

4.  A Genetic Lung Cancer Susceptibility Test may have a Positive Effect on Smoking Cessation.

Authors:  Tammy Kammin; Andrew K Fenton; Kathryn Thirlaway
Journal:  J Genet Couns       Date:  2014-11-19       Impact factor: 2.537

5.  Online Education and e-Consent for GeneScreen, a Preventive Genomic Screening Study.

Authors:  R Jean Cadigan; Rita Butterfield; Christine Rini; Margaret Waltz; Kristine J Kuczynski; Kristin Muessig; Katrina A B Goddard; Gail E Henderson
Journal:  Public Health Genomics       Date:  2017-10-26       Impact factor: 2.000

6.  Age differences in genetic knowledge, health literacy and causal beliefs for health conditions.

Authors:  S Ashida; M Goodman; C Pandya; L M Koehly; C Lachance; J Stafford; K A Kaphingst
Journal:  Public Health Genomics       Date:  2010-09-09       Impact factor: 2.000

7.  Genetic risk assessment for women with epithelial ovarian cancer: referral patterns and outcomes in a university gynecologic oncology clinic.

Authors:  Sue V Petzel; Rachel Isaksson Vogel; Tracy Bensend; Anna Leininger; Peter A Argenta; Melissa A Geller
Journal:  J Genet Couns       Date:  2013-05-16       Impact factor: 2.537

8.  Analysis of genetic variants in never-smokers with lung cancer facilitated by an Internet-based blood collection protocol: a preliminary report.

Authors:  Nicolas Girard; Emil Lou; Christopher G Azzoli; Rekha Reddy; Mark Robson; Megan Harlan; Irene Orlow; Yasushi Yatabe; Khedoudja Nafa; Marc Ladanyi; Agnes Viale; Mark G Kris; Gregory Riely; Vincent Miller; Robert J Klein; Keitaro Matsuo; William Pao
Journal:  Clin Cancer Res       Date:  2010-01-12       Impact factor: 12.531

9.  Improving referral for genetic risk assessment in ovarian cancer using an electronic medical record system.

Authors:  Sue V Petzel; Rachel Isaksson Vogel; Jena McNiel; Anna Leininger; Peter A Argenta; Melissa A Geller
Journal:  Int J Gynecol Cancer       Date:  2014-07       Impact factor: 3.437

10.  What can interest tell us about uptake of genetic testing? Intention and behavior amongst smokers related to patients with lung cancer.

Authors:  S C Sanderson; S C O'Neill; L A Bastian; G Bepler; C M McBride
Journal:  Public Health Genomics       Date:  2009-06-29       Impact factor: 2.000

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