Literature DB >> 18256910

Narrative constructions of health care issues and policies: the case of President Clinton's apology-by-proxy for the Tuskegee syphilis experiment.

Heather J Carmack1, Benjamin R Bates, Lynn M Harter.   

Abstract

The Tuskegee Syphilis Experiment (TSE) has shaped African Americans' views of the American health care system, contributing to a reluctance to participate in biomedical research and a suspicion of the medical system. This essay examines public discourses surrounding President Clinton's attempt to restore African Americans' trust by apologizing for the TSE. Through a narrative reading, we illustrate the failure of this text as an attempt to reconcile the United States Public Health Service and the African American public. We conclude by noting the limitations of rhetoric when equal prominence is not given to policy proposals in national apologies.

Mesh:

Year:  2008        PMID: 18256910     DOI: 10.1007/s10912-008-9053-5

Source DB:  PubMed          Journal:  J Med Humanit        ISSN: 1041-3545


  5 in total

1.  Healing dramas and clinical plots: the narrative structure of experience

Authors: 
Journal:  BMJ       Date:  1999-05-01

2.  Rethinking the Tuskegee Syphilis Study. Nurse Rivers, silence and the meaning of treatment.

Authors:  S M Reverby
Journal:  Nurs Hist Rev       Date:  1999

3.  The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: a focus group study.

Authors:  Benjamin R Bates; Tina M Harris
Journal:  J Natl Med Assoc       Date:  2004-08       Impact factor: 1.798

4.  The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research.

Authors: 
Journal:  J Am Coll Dent       Date:  2014

5.  The patient-physician relationship. Narrative medicine: a model for empathy, reflection, profession, and trust.

Authors:  R Charon
Journal:  JAMA       Date:  2001-10-17       Impact factor: 56.272

  5 in total
  2 in total

1.  Redressing past wrongs: changing the common rule to increase minority voices in research.

Authors:  William C Rencher; Leslie E Wolf
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

2.  Research Challenges and Bioethics Responsibilities in the Aftermath of the Presidential Apology to the Survivors of the U. S. Public Health Services Syphilis Study at Tuskegee.

Authors:  Vickie M Mays
Journal:  Ethics Behav       Date:  2012
  2 in total

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