Literature DB >> 22350329

End-of-life management in pediatric cancer.

Claudia L Epelman1.   

Abstract

Pediatric palliative care at the end-of-life is focused on ensuring the best possible quality of life for patients with life-threatening illness and their families. To achieve this goal, important needs include: engaging with patients and families; improving communication and relationships; relieving pain and other symptoms, whether physical, psychosocial, or spiritual; establishing continuity and consistency of care across different settings; considering patients and families in the decision-making process about services and treatment choices to the fullest possible and desired degree; being sensitive to culturally diverse beliefs and values about death and dying; and responding to suffering, bereavement, and providing staff support. Any effort to improve quality of palliative and end-of-life care in pediatric oncology must be accompanied by an educational strategy to enhance the level of competence among health care professionals with regard to palliative care and end-of-life management skills as well as understanding of individualized care planning and coordination processes.

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Year:  2012        PMID: 22350329     DOI: 10.1007/s11912-012-0218-z

Source DB:  PubMed          Journal:  Curr Oncol Rep        ISSN: 1523-3790            Impact factor:   5.075


  26 in total

Review 1.  Involving children with cancer in decision-making about research participation.

Authors:  Steven Joffe; Conrad V Fernandez; Rebecca D Pentz; David R Ungar; N Ajoy Mathew; Curtis W Turner; Angela J Alessandri; Catherine L Woodman; Dale A Singer; Eric Kodish
Journal:  J Pediatr       Date:  2006-12       Impact factor: 4.406

Review 2.  Multidisciplinary care of the dying adolescent.

Authors:  David R Freyer; Aura Kuperberg; David J Sterken; Steven L Pastyrnak; Dan Hudson; Tom Richards
Journal:  Child Adolesc Psychiatr Clin N Am       Date:  2006-07

Review 3.  Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis.

Authors:  Jennifer W Mack; Joanne Wolfe
Journal:  Curr Opin Pediatr       Date:  2006-02       Impact factor: 2.856

Review 4.  Paediatric palliative care: challenges and emerging ideas.

Authors:  Stephen Liben; Danai Papadatou; Joanne Wolfe
Journal:  Lancet       Date:  2008-03-08       Impact factor: 79.321

5.  Stress and burnout in oncology.

Authors:  K M Kash; J C Holland; W Breitbart; S Berenson; J Dougherty; S Ouellette-Kobasa; L Lesko
Journal:  Oncology (Williston Park)       Date:  2000-11       Impact factor: 2.990

6.  Symptoms affecting children with malignancies during the last month of life: a nationwide follow-up.

Authors:  Li Jalmsell; Ulrika Kreicbergs; Erik Onelöv; Gunnar Steineck; Jan-Inge Henter
Journal:  Pediatrics       Date:  2006-04       Impact factor: 7.124

7.  Children's perspectives of a pediatric hospice program.

Authors:  Betty Davies; John B Collins; Rose Steele; Karen Cook; Amy Brenner; Stephany Smith
Journal:  J Palliat Care       Date:  2005       Impact factor: 2.250

Review 8.  Key factors affecting dying children and their families.

Authors:  Pamela S Hinds; Lisa Schum; Justin N Baker; Joanne Wolfe
Journal:  J Palliat Med       Date:  2005       Impact factor: 2.947

9.  Talking about death with children who have severe malignant disease.

Authors:  Ulrika Kreicbergs; Unnur Valdimarsdóttir; Erik Onelöv; Jan-Inge Henter; Gunnar Steineck
Journal:  N Engl J Med       Date:  2004-09-16       Impact factor: 91.245

Review 10.  Integration of palliative care practices into the ongoing care of children with cancer: individualized care planning and coordination.

Authors:  Justin N Baker; Pamela S Hinds; Sheri L Spunt; Raymond C Barfield; Caitlin Allen; Brent C Powell; Lisa H Anderson; Javier R Kane
Journal:  Pediatr Clin North Am       Date:  2008-02       Impact factor: 3.278

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  3 in total

Review 1.  The adolescent and young adult with cancer: state of the art -- psychosocial aspects.

Authors:  Claudia L Epelman
Journal:  Curr Oncol Rep       Date:  2013-08       Impact factor: 5.075

2.  Specialist Pediatric Palliative Care Referral Practices in Pediatric Oncology: A Large 5-year Retrospective Audit.

Authors:  Arunangshu Ghoshal; Naveen Salins; Anuja Damani; Jayita Deodhar; MaryAnn Muckaden
Journal:  Indian J Palliat Care       Date:  2016 Jul-Sep

3.  Physicians working in oncology identified challenges and factors that facilitated communication with families when children could not be cured.

Authors:  Camilla Udo; Ulrika Kreicbergs; Bertil Axelsson; Olle Björk; Malin Lövgren
Journal:  Acta Paediatr       Date:  2019-07-12       Impact factor: 2.299

  3 in total

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