Literature DB >> 17911131

Age-related macular degeneration: what do patients find on the internet?

Christina A Rennie1, Shabeeba Hannan, Nick Maycock, Chee Kang.   

Abstract

OBJECTIVE: To assess the quality of information and readability of the top internet sites for age-related macular degeneration (AMD).
DESIGN: An examination of the technical information provision, quality and readability of websites found during an internet search for 'age-related macular degeneration'. Setting Six internet search engines were used to find 26 unique sites on AMD. MAIN OUTCOME MEASURES: Technical information and quality were assessed using a simple grading system. Readability was assessed using a Simple Measure Of Gobbledygook (SMOG) rating.
RESULTS: Twelve organizational, seven academic and seven commercial sites were identified. The average technical scores were 82.3%, 67.9% and 65.2% for each type of site, respectively (P=0.097, one way ANOVA). The average quality scores were 62.2%, 62.6%, and 49.5% for each type of site, respectively (P=0.356, one-way ANOVA). The average SMOG ratings were 16.3, 16.1, and 16.2 for each type of site, respectively (P=0.983, one-way ANOVA). Fifteen of the sites provided details of new and emerging treatments, with seven providing a detailed discussion.
CONCLUSIONS: Many websites are now meeting the challenge of providing comprehensive information about AMD and its new treatments. Quality scores were disappointing, with sites needing to provide more evidence of authorship and attribution of information. The majority of sites had SMOG scores above 10, making them difficult for the average person to understand. As physicians we need to help design and direct patients to sites that provide high quality, current information.

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Year:  2007        PMID: 17911131      PMCID: PMC1997261          DOI: 10.1177/014107680710001017

Source DB:  PubMed          Journal:  J R Soc Med        ISSN: 0141-0768            Impact factor:   5.344


  15 in total

Review 1.  Information about age-related macular degeneration on the Internet.

Authors:  T W Stone; J M Jumper
Journal:  South Med J       Date:  2001-01       Impact factor: 0.954

Review 2.  Do Internet interventions for consumers cause more harm than good? A systematic review.

Authors:  Tracey L Bessell; Steve McDonald; Chris A Silagy; Jeremy N Anderson; Janet E Hiller; Lloyd N Sansom
Journal:  Health Expect       Date:  2002-03       Impact factor: 3.377

Review 3.  Avastin and new treatments for AMD: where are we?

Authors:  William R Freeman; Iryna Falkenstein
Journal:  Retina       Date:  2006-10       Impact factor: 4.256

4.  Evaluation of internet websites about retinopathy of prematurity patient education.

Authors:  E N Martins; L S Morse
Journal:  Br J Ophthalmol       Date:  2005-05       Impact factor: 4.638

5.  A randomized, placebo-controlled, clinical trial of high-dose supplementation with vitamins C and E, beta carotene, and zinc for age-related macular degeneration and vision loss: AREDS report no. 8.

Authors: 
Journal:  Arch Ophthalmol       Date:  2001-10

6.  Randomised controlled trial of an interactive multimedia decision aid on hormone replacement therapy in primary care.

Authors:  E Murray; H Davis; S S Tai; A Coulter; A Gray; A Haines
Journal:  BMJ       Date:  2001-09-01

7.  An evaluation of the quality and contents of asthma education on the World Wide Web.

Authors:  Donita R Croft; Michael W Peterson
Journal:  Chest       Date:  2002-04       Impact factor: 9.410

8.  Ophthalmology on the internet: what do our patients find?

Authors:  Alon Kahana; Justin L Gottlieb
Journal:  Arch Ophthalmol       Date:  2004-03

Review 9.  The doctor, the patient and the world-wide web: how the internet is changing healthcare.

Authors:  J A Powell; M Darvell; J A M Gray
Journal:  J R Soc Med       Date:  2003-02       Impact factor: 18.000

Review 10.  Review of internet health information quality initiatives.

Authors:  A Risk; J Dzenowagis
Journal:  J Med Internet Res       Date:  2001 Oct-Dec       Impact factor: 5.428

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  2 in total

1.  eHealth as a challenge to 'expert' power: a focus group study of internet use for health information and management.

Authors:  Louise S Donnelly; Rachel L Shaw; Olga B A van den Akker
Journal:  J R Soc Med       Date:  2008-10       Impact factor: 5.344

2.  Patient information in Graves' disease and thyroid-associated ophthalmopathy: readability assessment of online resources.

Authors:  Matthew R Edmunds; Alastair K Denniston; Kristien Boelaert; Jayne A Franklyn; Omar M Durrani
Journal:  Thyroid       Date:  2013-10-29       Impact factor: 6.568

  2 in total

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